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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Hi! Make sure you are getting the complete celiac panel which includes the TTG, DGP and EMA. Know that some celiacs are seronegative. Know that people like me never test positive to the more popular screening TTG IgA and TTG IgG versions yet intestinal biopsies proved otherwise. All celiac disease testing requires you to be on a full gluten diet....
  2. cyclinglady
    No sorghum is naturally gluten free. If it was in a pancake mix that was labeled gluten free, the gluten content should be less than 20 ppm and safe to eat. The company took the steps to insure the sorghum flour was not cross contaminated. Was the pancake mix certified? That is even safer. Chances are you might have an intolerance to sorghum products...
  3. cyclinglady
    Have you had follow-up testing to see if your celiac disease is still active? It could be something else or it could be due to gluten exposures.
  4. cyclinglady
    You are so lucky to have a doctor who knows what she is doing!
  5. cyclinglady
    Did you wash it to death? But seriously, you have some pretty severe damage (based on your endoscopy done six weeks after you had gone gluten-free and that is very telling). It is going to take lots of time to heal. Stick with foods that are easier to digest. I felt better when I gave up a lot of grains. They were just too hard to digest. I can...
  6. cyclinglady
    I am interested! My last endoscopy revealed healthy villi, which meant that I was doing a good job of being gluten free. However, I had a nodule in my stomach (did not have one six years ago) Gastric biopsies ruled out H. Plylori (as did my first gastric biopsies some five years ago), the pathologist identified autoimmune gastritis commonly linked...
  7. cyclinglady
    I was just anemic when I was diagnosed. No GI issues. But now, when expososed to gluten, I get severe reactions (GI). So, I think your response is common. I avoid gluten like crazy. Who wants to feel that bad?
  8. cyclinglady
    I got to eat out today. It was at the Asian Box which is 100% gluten free! Yum!
  9. cyclinglady
    Have you had follow-up testing? Is your celiac disease still flaring/simmering? You should try to find out if celiac disease is the cause of your current malabsorption issues or if you have another illness. If you have been strictly gluten free, you should have healed by now. Please see your doctor.
  10. cyclinglady
    The AIP diet might be a great place to start in helping to identifying food intolerances. It is very strict to start with and then you slowly add in foods and track symptoms. If you suspect that you have DH (celiac disease which manifest s in the skin) and can confirm it using the AIP diet, you will need to remain gluten free for life. There is...
  11. cyclinglady
    It looks like you are on the right path to getting a diagnosis. I agree that if that diagnosis continues to elude you, you should trial the gluten-free diet. My hubby went gluten-free 12 years before my diagnosis. Does he really have celiac disease? We will never know as he refuses to go back on gluten to get tested because we know gluten makes...
  12. cyclinglady
    I am shocked! I am also hoping that you did not receive a complete report as Karen suggested.
  13. cyclinglady
    At least you know where you stand. Now, you can move forward and heal. Avoid eating out until you are feeling really good. Avoid proceeded foods as much as possible. I think it helps speed healing. Know that concurrent food intolerances are common and can resolve. Listen to the advice of seasoned forum members. Knowledge/research is your best...
  14. cyclinglady
    Does your GI have the latest and greatest scope with super magnification? If not, you have to wait for the pathologist’s report. My endoscopy looked normal when I was diagnosed. The pathologist’s report revealed a Marsh Stage IIIB. The sigmoidoscopy only checks a portion of the large intestine (colon), so it sounds like he used his own equipment. ...
  15. cyclinglady
    Those cookies look and sound amazing!
  16. cyclinglady
    Welcome! You should not put on weight unless you eat lots of gluten free processed junk food. Whether it is a gluten free cookie or a wheat-filled cookie is pretty much the same in terms of calories. I hope your GI was able to have you work with a dietician. It can be very helpful. Focus on non-processed foods like meats, veggies, fruits...
  17. cyclinglady
    Sorry, but you are not correct. One case study about a patient with refractory type 2 celiac disease (very rare) does not make a cure. The only treatment for non -refractory celiac disease is a strict gluten free diet. Celiac disease can not be cured, but it can go into remission.
  18. cyclinglady
    Are you sure your supplements are actually gluten free? Have they been tested? New reports on reveal that even prescription genetic drugs are contaminated. Almost all come from China and India. The same China that is smuggling in Fentanyl in quantities that could millions of people. https://www.cnbc.com/2019/09/17/schwarzman-im-hearing-china-is...
  19. cyclinglady
    But what is feeling anemic? One usually thinks about fatigue, but that symptom covers so many illnesses (including active celiac disease). I was severely anemic. So much that I could not catch my breath. I had to stop all exercise. You could just be tired because you have a three year old! (Been there, done that.) Have you had your thyroid checked...
  20. cyclinglady
    White distilled vinegar is gluten free. You must watch out for malt vinegar (barley). http://www.glutenfreedietitian.com/vinegar/
  21. cyclinglady
    While, it might not be DH, it could still related to active celiac disease. There are all kinds of various skin issues related with celiac disease. For example, I get hives when I have a gluten exposure. That did not occur until after my diagnosis. I do have Hashimoto’s so my doctors are not sure what to blame the hives on, but they are confident it i...
  22. cyclinglady
    I think there are some typos. Where is the flour? Did it get mixed up with the nutmeg? I personally never use shortening anymore (trans fats). I prefer butter or coconut oil or a combination. I also prefer guar gum over Xanthan. Fall baking. I can not wait!
  23. cyclinglady
    I agree, probably not DH. I would say it is like vesicles which can be due to things like allergic reactions, chicken pox, shingles (way to young!) https://www.healthline.com/health/vesicles
  24. cyclinglady
    I would not take iron unless you are iron-deficient. One gluten exposure is probably not going to make you anemic. You can overdose on iron. I did take iron at the advice of my doctor when I was first diagnosed with celiac disease. I had the lab tests to show it was necessary. Otherwise, the gluten-free diet and iron supplements resolved my iron...
  25. cyclinglady
    In case you have no medical insurance, you can try to find a walk-in lab if it is allowed in your state. But...your PCP (GP, Internist) can usually order the screening tests for celiac disease. https://www.walkinlab.com/lab-locator Whatever you do, do NOT order the gene test in my opinion. It does not help diagnose celiac disease, just to exclude...
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