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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    This is new legal territory. Consider talking to a hospital social worker or an attorney. You may have to find another nursing home or smaller facility for him to live that is willing to offer gluten free and keep him safe. A regular hospital is not always able to keep celiacs safe either. https://www.aplaceformom.com/blog/seniors-go-gluten-free...
  2. cyclinglady
    It includes your parents, brother and sisters, and your kids.
  3. cyclinglady
    I guess we are trying to say that fresh grapes when properly cleaned, are SAFE as is any other fruit or vegetable for someone who has celiac disease or NCGS. The odds that your grapes had been dusted with gluten crumbs during harvest and at the store are slim to none. Now, did anyone else in your house handle the grapes? Do you allow gluten into the house...
  4. cyclinglady
    I deal with three different autoimmune disorders. If my celiac disease is flaring, the other two tend to flare up too. Often lasting longer than my celiac disease symptoms. I hope that by managing your celiac disease will help you best deal with your lupus diagnosis. Feel better fast!
  5. cyclinglady
    All grapes contain tannin. Many people are intolerant to tannin. There are other possibilities too. Like my kid just got sick on grapes (she does not have celiac disease). She was a victim of gluttony. Lesson learned. ?
  6. cyclinglady
    I agree. If you want to be absolutely safe (there are no guarantees in life), stick to Dedicated gluten-free restaurants. If not available, try a higher-end restaurant and talk directly to the chef. Do not discuss your food needs with waitstaff. I do not get gluten exposures when I eat out because I follow this advice! Re-think your lifestyle...
  7. cyclinglady
    I am sorry that you are unwell. There are recommendations for a gout diet, but they are not that restrictive. Why are you so limited (even more restrictive than the Autoimmune Paleo diet)? Is your celiac disease flaring too and these are your safe foods (easy to digest and make)? https://www.arthritis.org/about-arthritis/types/gout/articles...
  8. cyclinglady
    Sorry to hear you were glutened! ? I do a few things. First, I fast. That means giving my GI tract a break. Like 12 hours. That means no snacking after dinner and then sleeping! Then I make a big pot of simple stew or soup and eat that morning, noon and night. The mushier and softer the better. If I want fruit, I choose a mushy one like a banana...
  9. cyclinglady
    I think I just got fed up. That and a lot of coffee this morning! ?
  10. cyclinglady
    Two months after my diagnosis, I fractured a few vertebrae in my back doing nothing. I had developed osteoporosis due to long undiagnosed celiac disease. I was devastated, unlike my celiac disease diagnosis which was “I can handle that.” I took a year off from bike riding and running. Instead I did gentle exercises, swam, and walked. I got out...
  11. cyclinglady
    I am so sorry Ennis. It is so difficult to lose a pet. ?
  12. cyclinglady
    I lost my non-functioning, starting to rot, gallbladder a few years before my celiac disease diagnosis was caught. I really think that if I had been treating my celiac disease, I would have kept my gallbladder. I am doing fine without it, but other family members have had issues after their surgeries.
  13. cyclinglady
    This is not a legitimate site. They are trying to sell you supplements. Scare enough people and maybe they’ll buy into it. It is a shame that “snake oil” is still being sold. This is what was posted on the site the OP linked and my responses. I am not a doctor, so correct me if I am wrong. I do not want false information circulating on the inter...
  14. cyclinglady
    Welcome! I think you probably need more healing time. Celiacs on this forum have reported gallbladder, liver, and pancreatic insufficiency issues, that with time and adhering to the gluten free diet, can heal. If you still are having issues and it looks like you have healed from celiac disease, have your GI investigate these organs. You might...
  15. cyclinglady
    So glad to hear you are feeling better! I think your GI doctor might not be very celiac-savvy. Celiacs can definitely be overweight. Just a body’s response in trying obtain nutrients, I guess. Not everyone looks malnourished. I was just normal. In fact, I had just ran in 1/2 marathon and was doing century bike rides when I was diagnosed despite b...
  16. cyclinglady
    I agree with GFinDC! It only takes ONE positive on the panel. I tested only mildly positive to the DGP IgA only, yet I had moderate to severe intestinal damage. Even in follow-up tests, I have never had an elevated TTG or EMA. Your child had two positives. So, the test results were not off the charts? Everyone is different. Your daughter is only...
  17. cyclinglady
    What gluten-free in DC said is true. Antibodies (and damage) appear first in the small intestine before they accumulate in your bloodstream. So, a gluten challenge only requires 2 to 4 weeks (celiac centers vary and I would choose the conservative number of 4 weeks based on member input) going straight to intestinal biopsies via an endoscopy. Your...
  18. cyclinglady
    So your General/family practitioner ordered the month-long gluten challenge to retest only your TTG antibodies and not a Gastroenterologist? He thought your GI and the pathologist’s observations and lab reports were incorrect (initial TTG very elevated and a Marsh Stage IIIB on the endoscopy)? If you really believe (not think) that you do not have c...
  19. cyclinglady
    What does your GI say?
  20. cyclinglady
    I think the answer to your question is still unknown. The UK seems to be the leading research center in the world for gluten ataxia: https://www.coeliac.org.uk/healthcare-professionals/diagnosis/spectrum-of-gluten-related-conditions/neurological-conditions/ I think there is a TTG6 antibodies test for gluten ataxia which is different than the TTG...
  21. cyclinglady
    Dang! One month is NOT enough time for a gluten challenge. The recommendation by major celiac centers is 8 to 12 weeks! It can take time for antibodies to get into your blood stream. https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ I think you need a new GI! (I think I already said that in previous posts.) Obviously, you...
  22. cyclinglady
    Hi Katie! Welcome to the forum. I do not think you can rule out celiac disease yet. Exactly which celiac blood tests did you have? Usually just the TTG is given (cheapest and catches most), but rest includes the DGP and the EMA. In my case, I test positive to only the DGP IgA is even on many repeats. Yet I had intestinal damage. My only symptom...
  23. cyclinglady
    Hey, why wasn’t social services called? This happened in the UK. We know they offer a wide variety of services. How could parents do this? Wouldn’t they be charged with neglect?
  24. cyclinglady
    Hey Audrey. Got back to the post where you commented on and added your last name. This is not safe, and only YOU can remove it. Just go to that post and click the edit next to the “options” button. Then erase it by back spacing. (A concerned mom....who totally supports JROTC! You rock!)
  25. cyclinglady
    I am not an attorney, but what they did is not illegal. Even though celiac disease is a disability, the only challenge that I can recall is for celiacs (under the American Disabilities Act) who were required to purchase a dorm meal plan at universities. The university is not obligated to provide gluten free foods and keep students safe. But they are when...
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