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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    If you had been gluten light, the celiac blood tests could easily be negative. That happens all the time. Not to mention that some celiacs are seronegative. You can not eliminate celiac disease yet. You could also have Non-celiac gluten sensitivity. I am sorry that you are stuck in diagnostic limbo land. Talk to your GI about your gene results...
  2. cyclinglady
    I think your GIs in Canada are wise. They know that for most celiacs it takes up to a year to expect intestinal healing and to resolve systemic issues. That is because damage varies and the learning curve for the gluten-free diet is steep. The antibodies testing for celiac disease was designed for diagnosing celiac disease and not for dietary compliance...
  3. cyclinglady
    Oh Laura, I can feel the frustration from SquirmingItch. I am a little confused. When you had the gene test, how long were you back on gluten? A gluten challenge ranges from six to eight weeks. If you started the challenge and became very ill within a week or so, your GI might have just ordered the gene test to help rule out celiac disease. It...
  4. cyclinglady
    You would have to be on gluten (1 to 2 slices per day) for solid six to 12 weeks in order for ANY celiac test (measures antibodies) to work. A celiac disease reaction is not the same as an IgE allergy which can be immediate. It can take time for antibodies to ramp up and get to the blood stream. I have celiac disease, but I am not allergic to wheat...
  5. cyclinglady
    I agree. Maybe just pay for one night and bring a little cold food. I can go a weekend just living out of my ice chest. At least you could relax and have fun for two days of con.
  6. cyclinglady
    It certainly sounds like you have healed and are diet compliant. No more canker sores! Celiacs often have intolerances that may or may not resolve even when healed. The most common one is lactose. That is because the enzymes to digest lactose get damaged/blunted and can not release the enzymes. I was able to regain dairy, but genetically I must not...
  7. cyclinglady
    I will have to try them. Thanks!
  8. cyclinglady
    Hey, I rarely drink because of my Gastritis, but are those hard seltzer’s really gluten free and not gluten removed? Gluten removed can be a problem..... Also, I am very careful about eating food not prepared by me. I only eat at Dedicated gluten-free restaurants and bring my own food to parties, etc. I guess six months of being covered in hellish a...
  9. cyclinglady
    The best way to know if your celiac disease is actually active, is a repeat endoscopy to obtain biopsies. A similar issue happened to me. Somehow I got glutened two years ago. My antibodies for DGP IgA were off the charts (never had a positive TTG ever....). They were not coming down. I was going crazy trying to determine the source of gluten...
  10. cyclinglady
    Here is information about the various blood tests available for celiac disease: https://www.verywellhealth.com/celiac-disease-blood-tests-562694 Some celiacs are seronegative. Some are also IgA deficient, which can impact tests. In which case, an endoscopy Is commonly used to make a final diagnosis. If you can not get medical support, you can...
  11. cyclinglady
    Not sure if they are necessary for a celiac. Think about it. Celiacs have intestinal damage when they consume gluten. Many celiacs have SIBO (small intestinal bacterial growth). Bacteria belongs in the large colon and not in the small intestine. When intestinal villi are damaged, transit time is often delayed. Those probiotics might end up populating...
  12. cyclinglady
    You have an elevated/positive TTG IGA and a Marsh Stage 3B with brisk (most likely meaning a lot) lymphocytes. I am not a doctor, but seems like celiac disease. The pathologist’s report is not going to make a diagnosis. He/she leaves that up to the GI who ordered the celiac blood test and considered the endoscopy. I am not sure, but this maybe why y...
  13. cyclinglady
    What you initially wrote was odd: “Blood Test Negative, Biopsy Positive ( 5 - 10 Is the normal range, I was 16 )” I have never seen a 5-10 range on an intestinal biopsy. Your result is a 16. Are you sure they did not run a TTG blood test after discovering villi damage while you were in the hospital? Edit: wait a minute.....you wrote thi...
  14. cyclinglady
    Gene testing helps rule out celiac disease and not diagnose it. That is because about 35% of the population has the genes that MIGHT develop into celiac disease. Only a tiny few do. Some celiacs are seronegative as well (blood tests Are negative). You can either get to a GI for an endoscopy that can determine if you have celiac disease (and rule...
  15. cyclinglady
    Good to know! ?
  16. cyclinglady
    Boring night. Just a green salad, grilled rosemary chicken, sautéed spinach, and rice (for the kid). Nothing fancy. We are detoxing from our vacation. Too many gluten-free goodies and snacks! I did buy that cauliflower pizza for my hubby. He likes to add more veggies and meat to it. He likes it. Not me. No garlic for this girl!
  17. cyclinglady
    I am the first celiac diagnosed in my family. I had no GI issues at all when I was diagnosed. I just went in for a cancer screening colonoscopy like all my friends were getting. During my GI consult, he suggested celiac disease and I was shocked. Shocked because my hubby had been gluten-free for 13 years and I knew exactly what being gluten-free meant...
  18. cyclinglady
    I am old and post-menopausal. I also have osteoporosis and suffered two vertebrae fractures just months after my celiac disease diagnosis. I chose to do HRT for one year, weight-bearing exercise and diet high in calcium and vitamin D. I only took iron supplements because I was very anemic and needed fast results. Within months, my iron stores (ferritin...
  19. cyclinglady
    Okay, this is not technically an ad, but the author is promoting one specific lab to do IgG testing. She is also promoting her own business (listed website) found in her bio listed below. That is a conflict of interest and should have been disclosed in the article, along with references to back her claims.
  20. cyclinglady
    I am not discounting food intolerances, allergies, leaky gut or even cross reactivity. However, it is my understanding that cross reactivity is related to IgE allergies. For example, people with a latex allergy might cross react with bananas. There are no leading celiac disease centers or celiac disease support groups/foundations that support this gluten...
  21. cyclinglady
    Wait a minute. I use peanut butter that lists only peanuts and sea salt. The oil naturally separates when the peanuts are ground and the end product is stored. It must be stirred well after opening and it requires refrigeration once opened (no preservatives). It makes for fine cookies. The disadvantages of a natural peanut butter is that it...
  22. cyclinglady
    Is this a paid advertisement for IgG food allergy/intolerance testing? which is not very accurate per the American Academy of Allergy Asthma and Immunology (plus Canadian and European counterparts)? https://www.aaaai.org/conditions-and-treatments/library/allergy-library/IgG-food-test Celiacs do tend to have additional food intolerances. The...
  23. cyclinglady
    You got me! My Home Ec teacher did not care about which type of peanut butter, but I like to use Costco’s natural peanut butter. I am a peanut butter snob! ?
  24. cyclinglady
    Nothing like being anonymous (as you can get) when you need to talk about GI issues! ?. That is why I use this site and not Facebook. Do I really need to let the world know my personal business? All bets are off if the FBI want to find my location though....I am not that tech savvy.
  25. cyclinglady
    Try the ones my Home Ex teacher in the 7th grade (1970s) taught us. This is so simple that I still recall this recipe! 1 cup peanut butter, natural 1cup sugar 1 egg 1 tsp vanilla (could be optional) Bake 350 degrees for 8 to 10 minutes. Roll into 1 inch balls and flatten with a fork making a criss cross pattern. I leave them...
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