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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Four days of being gluten free should be fine for testing. Celiac experts say that healing can in theory occur in two weeks, but that is rare. The learning curve for the diet is pretty steep.
  2. cyclinglady
    You might see if a walk-in lab is near your home. You can get tested without a doctor. The TTG IgA is the commonly used celiac disease test. The full panel is best as the TTG is very, very, good at catching most celiacs, but sometimes issues like an IgA deficiency or other things might not yield a positive on the TTG, but for under a $100 it might be worth...
  3. cyclinglady
    Yep, Ravenwoodglass is right. Celiac disease is like a chameleon, symptoms can ebb and flow. (Some celiac disease researcher, (I think it was Dr. Fasano) came up with that statement.) I was not diagnosed until much later in life. As a kid and young adult, I had GI issues, but when I was diagnosed, I only had anemia. Reflecting back, I experienced a...
  4. cyclinglady
    Sometimes when I bend over, I get a pain in my stomach area. It is enough to take my breath away, literally. I thought I was getting gluten somehow into my diet, but even after the Fasano diet, I would still get this “pinching feeling” and GERD like symptoms that would come and go. I finally caved in and had a repeat endoscopy. My GI found healthy sma...
  5. cyclinglady
    @Fredo Excellent advice. One of the main reasons why celiac disease can be so hard to diagnosis is because symptoms for it overlap with so many other illnesses. I kept thinking that gluten was somehow getting into my diet. Turns out, I have healed from celiac disease. A repeat biopsy confirmed this. Unfortunately, they found Chronic Autoimmune...
  6. cyclinglady
    The consumption of wheat as a cause of alcoholism? I have never heard that as a cause or even as a risk factor. Alcohol has been around for about 9,000 years. The Chinese made it from fermented rice, honey and fruit. I imagine that there was alcoholism back then. The Aztecs and Mayans also had an alcoholic drink, yet they did not cultivate wheat but...
  7. cyclinglady
    Native Americans knew that adding ash to corn would improve the nutritional value of corn. Too bad the poor Southerners did not know this very old trick. https://www.onondaganation.org/blog/2011/cooking-with-ashes/ A celiac who consumes a well-balanced gluten-free diet (taking care to avoid re-activating their celiac disease) should not need...
  8. cyclinglady
    Wow! Just those few thing to eat? You have been gluten free for a year and no improvement? Were you given the full celiac blood panel? Did you know that some celiacs are seronegative, yet they can have intestinal damage? Have you had a Gastroenterologist consult to discuss celiac disease or other illnesses like inflammatory bowel disease? Celiac...
  9. cyclinglady
    I suspect that my GI had just attended a conference and had brushed up on celiac disease but I never asked. We switched insurance and I got a new GI. My other doctors knew I was anemic but I have been all my life due to Thalassemia which is a genetic anemia. I have tiny blood cells and my hemoglobin is just below range. I also had iron-Deficiency anemia...
  10. cyclinglady
    Welcome! Be sure to check out the forum. We have many active members who know the ropes. While I think there might be a small correlation with heart disease and untreated celiac disease, I think our Standard American diet which is full of sugar (which might be the source of chronic inflammation), is probably increasing heart disease in the general...
  11. cyclinglady
    We are visiting family, so our dinner was dull. A nice salad and grilled burgers with cheese. I used a silicon mat to insure the burgers were not exposed to cross contamination. Made a Krusteaz coffee cake for dessert. Luckily, my folks have a stove in the basement, so no worries about cross contamination as I am the only one who uses it. At home...
  12. cyclinglady
    I agree, non-processed foods are best in the beginning when you are learning to read labels. I think you will heal faster too (less accidental gluten exposures). If you must consume processed foods, stick with those marked gluten-free. It will just simplify your life for the next few months. Do NOT eat out until you feel better and can afford to take...
  13. cyclinglady
    I was pretty much GI symptom free until after my diagnosis. Anemia was my main symptom. Now after a gluten exposure, I get severe GI upset which can last for weeks. This means I dread eating ANYTHING, because it hurts. My food intolerances reappear for a while (like lactose/milk). I usually make a big batch of mushy stew or soup and consume it for breakfast...
  14. cyclinglady
    I was never deficient in vitamins or minerals with the exception of iron which was blamed on menstruation for years. I had some pretty severe intestinal damage too. Happy to hear that she is doing better!
  15. cyclinglady
    Maybe Rosacea? Talk to your doctor. In my case, Hashimoto’s thyroiditis flares make my Rosacea worse along with food intolerances (garlic, red wine, spicy foods, etc. for me). https://www.refinery29.com/en-gb/acne-vs-rosacea
  16. cyclinglady
    I have read that the lining in the small intestine can heal within three weeks, but no one actually heals that fast at least from comments based on this forum. Why? The learning curve for the gluten free diet is steep. Mistakes are made and set backs occur. Patients are advised to simply go gluten free and many trade a junky Standard American diet for...
  17. cyclinglady
    You might try ruling out Dermatitis Herpetiformis (DH) which is the hellish rash version of celiac disease. It is commonly linked to Hashimoto’s thyroiditis. Another rash or skin disorder that is also commonly linked to Hashimoto’s or celiac disease is autoimmune hives (urticaria). Usually your doctor can prescribe antihistamines for those. It cal...
  18. cyclinglady
    All celiac disease testing requires you to be on a full gluten diet, even skin biopsies. How long had you been gluten free prior to the skin biopsy? The pathologist should have been looking for antibodies. Did the doctor tell the lab to look for antibodies? Did his clinical notes on the lab order indicate that he was looking for celiac disease...
  19. cyclinglady
    You can google “504 plans celiac disease” and find great information about 504 plans which your child does qualify for. My daughter does not have celiac disease, but I did a bit of research prior to her last celiac disease testing before she heads off to a dorm this fall. I also am on a university campus a lot. So, this is just my personal advice. ...
  20. cyclinglady
    Worth reading. ?
  21. cyclinglady
    Welcome! Just be sure you are consuming a full gluten diet (about one to two lives of bread per day or equivalent). Sometimes doctors fail to relate this information. All celiac disease testing requires patients to be on a gluten diet or the testing could be invalid.
  22. cyclinglady
    Thanks so much for sharing. Your post was not too long. It is a shame that most of us have had to muddle through the medical system and often find answers on our own. Nightshades can cause issues for many. It is probably one of the reasons they are excluded on the Autoimmune Paleo diet. I think that with healing, those with celiac disease or NCGS...
  23. cyclinglady
    Minnie, If you want to hear about experiences with getting an endoscopy, this is the forum for you. Lots of celiacs get endoscopies to help with diagnosing celiac disease. I mentioned celiac disease because it is an autoimmune disorder that is systemic. It can cause anxiety as it affects the brain. Your doctor might want to rule out celiac...
  24. cyclinglady
    Adding niacin to the diet of a confirmed Pellegra patient could be helpful, but I have doubts. The study was done in 2006. Have further studies been done since then? The study took place in Brazil where the chances of developing Pellegra are much greater than in the US where foods are fortified. Finally, the study was super tiny with only 10 participants...
  25. cyclinglady
    Same for me. Easy. You need someone with you to take you home due to possibly being woozy after the sedatives. The hospital made me go get my hubby from the waiting room to verify that he was there. The actual procedure was fast. Processing paperwork, and waiting took longer. You posted on this celiac forum. Are you getting tested for...
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