Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Well, you have resources here! ? My local celiac group is dying, literally. Lots of older people and possibly some mis-management of the group as another city group is very active. Some groups that gather to discuss illness can be over run by people who talk of nothing else but being sick. Most of us are sick or recovering and we do not want to listen...
  2. cyclinglady
    I agree about France. Finland and Italy are the easiest for gluten-free travel in my opinion. The UK was pretty nice too since language was not an additional issue. There is a travel company that coordinates gluten-free groups. We would like to do a river cruise or bike. It would be so nice and relaxing to NEVER worry about gluten while sightseeing....
  3. cyclinglady
    Ennis, you are so lucky that you can consume nuts. I still struggle with almonds (the most). I can tolerate walnuts in small amounts depending on allergy season. Garlic, onions, mushrooms, and peppers still bother me. Cooking without those is hard. It is hard to want cook Mexican or Italian dishes and serve them to my family while I eat bland food...
  4. cyclinglady
    I have been making my own mayonnaise lately. I use a stick blender and a jar. I have been working towards a diet that contains fewer ingredients and is less processed. But I am on vacation and have been buying Hellman’s mayonnaise again. The Netherlands! We are hoping to visit there. Such a beautiful part of the world. ?
  5. cyclinglady
    I used to use Cerave facial sunscreen, but I seem to recall that they changed formulations a year or so ago and added Vitamin E. I did not call the manufacturer to determine the source. I just found a different brand. I really resist change — it must be my age. ?. Cerave moisturizing lotion is still gluten free, but Walmart has a generic version made i...
  6. cyclinglady
    This sunscreen has no listed gluten ingredients. So, it is safe. Personally, I choose a sunscreen that has a physical blocker when I am going to sweat a lot (like riding in my bike). The sunscreen you asked about would sting my eyes for sure. I do use a chemical sunscreen on my body. For under foundation, I use a chemical sunscreen, but sparingly...
  7. cyclinglady
    @Gemini — I seriously think we are related! ?
  8. cyclinglady
    Your doctor can test you for deficiencies or you can allow some time to heal. I think the current recommendation is a simple gluten-free multi-vitamin. You can supplement with additional vitamins as you think necessary. For example, I was only low on iron for a few months after my diagnosis. I took Iron supplements for a few months based on my doctor...
  9. cyclinglady
    Not sure you have a leg to stand on regarding the ADA. I would be concerned about the school following health codes for preschool classrooms. My daughter attended a cooperative preschool where we had accredited teachers, but the assistants were parents. We washed a lot of toys and cleaned like crazy. Check with your state’s codes to see if the school i...
  10. cyclinglady
    Just a slice or two of bread (or equivalent) is the recommendation. You do not need to go overboard. Hang in here! Just four more days. Wear loose clothing, but you already know that! ? My niece has Crohn’s, but no celiac. I thought for sure she had celiac disease, but it was firmly ruled out. I do remind her that she could develop it later. ...
  11. cyclinglady
    You HAVE to be consuming gluten for two weeks prior to an endoscopy. Please let your GI know that you went gluten free. If your biopsies come back negative, you would not be able to rule out celiac disease. You have gone through so much. What is another week or so? If you can tough it out, I would stay on a full gluten diet. Why? Because without...
  12. cyclinglady
    It just seems that if you have one autoimmune disorder, you can develop more. I have read a lot about Lyme Disease and CFS. Any chance of her having Lyme? Does she have celiac disease like the original poster? Had follow-up testing to determine healing?
  13. cyclinglady
    First, not all celiacs test positive to the TTG tests. You can ask your doctor to run the rest of the celiac panel which includes the DGP and EMA. I have never had a positive TTG or EMA, yet I am biopsy confirmed and in remission (five years later more biopsies) from celiac disease. Elevated Immunoglobulins can be due to autoimmune disease or MGUS...
  14. cyclinglady
    Half and half is what I am enjoying in my coffee this very minute. I can do dairy and I like the fact that it is real. I buy organic whenever possible. Hubby...he likes to add some Carmel Coffee Mate creamer and a blob of whole milk. I bet he will out live me. That stuff has lots of extra ingredients that I can not pronounce, but it is gluten...
  15. cyclinglady
    While your son is in your custody, be sure to continue giving him gluten. It does not have to be much. Just the equivalent of one to two slices a day for at least six weeks. His doctor should be willing to test him based on your family history of celiac disease. Be sure to take in a handout that shows that celiac disease is the first autoimmune disease...
  16. cyclinglady
    All this worried thinking? It is most likely due to celiac disease. Remember it is an autoimmune disorder that has over 200 known symptoms. All those little aches and pains, swollen lymph nodes, etc. are most likely due to untreated or not managed celiac disease. Actively flaring autoimmune illnesses cause inflammation all over your body. Most symptoms...
  17. cyclinglady
    Yes. Maize or corn starch is gluten free. In the USA, one of our most popular brands, Best Foods (or Hellman’s on the east cost), is actually labeled gluten free. If you called it Maize, I assume you are not in the USA.
  18. cyclinglady
    I am sorry that you have not gotten eggs back. It is one of the top 8 food allergens. Me? I consume two eggs or more a day. Prior to my celiac disease diagnosis, I had trouble digesting eggs (lactose too). Now, I suffer from no ill effects and a repeat endoscopy revealed healed intestinal villi. Have you had any follow-up celiac disease testing...
  19. cyclinglady
    Thanks for sharing! Your comments may very well help someone else. ?
  20. cyclinglady
    When I was diagnosed over five years ago, my GI had an older scope. He told me that everything looked good during the endoscopy. Biopsies though revealed moderate to severe patches of damage. ?. My new GI has a much stronger magnification on his scope. He could see my healthy villi. I did not have to wait for the biopsies. The gluten free diet works...
  21. cyclinglady
    My bone pain was located in my ribs and hips before my diagnosis. Two months later, I experienced spinal fractures doing nothing. I was diagnosed with osteoporosis. My bone pain resolved once I started to heal from celiac disease. I haven’t had any more fractures and my bones are stable per scans. Pretty good considering that I am past menopause. ...
  22. cyclinglady
    Well, it is often best to treat known issues (like celiac disease) first before trying to treat or diagnosis another issue. Chances are, your bone pain is indeed related to celiac disease. Bone and joint pain are common based on forum member input. Remember, celiac disease is systemic. It can affect your brain too causing anxiety and depression. When...
  23. cyclinglady
    Congratulations on your pregnancy! ? Is the rest of your thyroid panel (TSH, etc.) normal? Do you have an actual enlargement of your thyroid? Have they determined which type of thyroiditis you have? It is very important to treat your thyroid while you are pregnant if your thyroid is not functioning. Talk to your doctor about your possible need for...
  24. cyclinglady
    Keep advocating for yourself! Get a second opinion. Preferably from an orthopedist.
  25. cyclinglady
    Hi! False positives are not common. They can occur if you have another autoimmune disease like Type 1 diabetes. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ I am sorry that you have to wait for your endoscopy. Be sure that you are consuming gluten at least two weeks prior to the scope. As far as symptoms...
×
×
  • Create New...