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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I just bought this sparkle/compound. It is gluten free at both Lowe’s and Home Depot. However, be cautious when tearing out old plaster. I live in a very old house and it contains all kinds of bad things from lead, asbestos and gluten in the plaster. Research, protect and use common sense. Follow directions! Use wet rags to clean up instead of a v...
  2. cyclinglady
    I am sorry that your daughter is unwell. How long has she been gluten free? It can take a year or longer for her to heal. Yes, that long! Why? The gluten free diet has a steep learning curve. Mistakes are made. That is normal. Glut n can be hidden in so many places. Consider feeding her non-processed foods. Do NOT eat out and if she does eat...
  3. cyclinglady
    Hi! I have not had genetic testing, so I have not researched this topic well in terms of interpretation. However, I do know that about 35% of the population carries the genes that MAY develop into celiac disease. Only a tiny few actually develop celiac disease. If you suspect celiac disease, you should have the antibodies blood tests to start...
  4. cyclinglady
    I had a positive only on the DGP IgA only and I have biopsy-confirmed celiac disease. You should see a Gastroenterologist if possible. That is the normal course of action after a positive on the celiac blood test panel. Note that you can be symptom free and still have celiac disease.
  5. cyclinglady
    You could have both, but only a doctor can formally diagnose you. The genetic test just means that you have the possibility of developing celiac disease as about 35% of the population has these genes. Did you have an endoscopy or is one scheduled? It might be worth is to get back on gluten free the two weeks prior to the endoscopy to obtain...
  6. cyclinglady
    Celiac disease is like a chameleon. Symptoms can change. This is why it is usually so hard to get a diagnosis. Chances are his gut has healed so that a small amount of cross contamination might not be enough to trigger the autoimmune response. On the other hand, he may have developed into a silent celiac where you do not have symptoms, yet you have small...
  7. cyclinglady
    You are totally correct. You must be on a gluten diet for all celiac testing including small intestinal biopsies. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ https://www.mayoclinic.org/diseases-conditions/celiac-disease/diagnosis-treatment/drc-20352225
  8. cyclinglady
    Unless you have had repeat blood tests measuring antibodies (good) and repeat intestinal biopsies (best), you can never know for SURE if you have healed or have had a gluten exposure while consuming a gluten free diet. Without testing you can only base your symptoms on how you feel which, quite frankly, works for most celiacs. The problem is that often...
  9. cyclinglady
    @Leve — Wow! I read my older posting and found typo errors that I can not fix now. Anyway, maybe you have not heard my story. I was glutened a few years ago. I am not even sure of the source, but it occurred after a tooth infection, rounds of antibiotics, the flu, and a cold all within a month or so. I experienced many GI symptoms and d...
  10. cyclinglady
    It probably is safe. The gluten-free pharmacist list 2017 indicates it is gluten free: https://www.glutenfreedrugs.com/list.pdf You can check pill box too, a US gov site. https://pillbox.nlm.nih.gov/pillimage/search_results.php?getimprint=&getingredient=Clomid&getshape=&getinactiveingredients=&getfirstcolor=&getauthor...
  11. cyclinglady
    Good point. During my first year, I kept thinking I was getting glutened. Turns out it was Xanthan Gum. It bothered me, but not my gluten-free husband. I bake using other gums now. Since healing, I can have commercial products containing Xanthan Gum in small amounts. Usually it is a treat while on vacation or a holiday. But I bet if I consumed it...
  12. cyclinglady
    I buy KIND bars, but give them to my gluten-eating daughter (no gluten in our house). I have some nut intolerances and almost everything has almonds in it, so I buy gluten-free nuts and peanuts and make my own granola. I do use Lara bars (the ones without almonds) on occasion. I do not worry about fiber (nuts have fiber). I eat plenty of veggies! Did...
  13. cyclinglady
    A slightly elevated TTG could be something other than celiac disease (like another autoimmune like Crohn’s), but many members have barely elevated numbers and yet have severe small intestinal damage. I never even had an elevated TTG even on follow-up testing (only the DGP IgA) and I had moderate to severe patches. Go figure! Keep eating gluten u...
  14. cyclinglady
    I hope you feel better soon. Well in my personal opinion, General Mills has to recoup their investment in their mechanical sorter! They are probably selling their “gluten free oats” to many little independent gluten-free suppliers. Consider calling the company and asking if their oats were grown in dedicated fields or were mechanically/opt...
  15. cyclinglady
    Have you been tested for celiac disease? Celiac, an Autoimmune disorder, is triggered by gluten found in wheat, barley and rye. A wheat allergy or intolerance is just triggered by wheat alone. Learn more about testing: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  16. cyclinglady
    Does Costco Coffee still have has prepackaged gluten free brownies and chicken wraps? We ate a lot of those when we traveled in the UK, but that was three years ago. Do you have gluten-free travel cards which explain how to carefully prepare your food? Those cards are available in many languages and are free (goggle it). We even found them helpful...
  17. cyclinglady
    You many still have celiac disease as about 10% of celiacs are seronegative and you might not have had the complete celiac blood panel. You might not have celiac disease and may be Non-Celiac Gluten Sensitivity/Intolerance. Still, you have been gluten free for a while, so testing is not possible unless you start eating gluten again. If the diet is working...
  18. cyclinglady
    You are normal. Who wouldn’t freak out after a gluten exposure that causes them to be sick? Think of it as nature’s way of keeping you cautious. Eventually, it will get better. Your anxiety will decrease. I firmly believe that anxiety is one of the 200 symptoms of celiac disease or any autoimmune disorder. It is probably a bit too “over the t...
  19. cyclinglady
    Many members have reported gluten withdrawal symptoms. Another possibility it that the learning curve for celiac disease is very, very steep. You might be getting hidden exposures to gluten. My advice is to eat unprocessed gluten free foods and do NOT eat any food that is NOT prepared by you (or you oversee) until you feel well. Keep researching and learn...
  20. cyclinglady
    Celiac disease is like a chameleon, symptoms can change. Those old “IBS “ symptoms may have been due to undiagnosed celiac disease. Now that you have been gluten free for the past month, the tiniest amount of gluten exposure can provoke symptoms. Maybe even new symptoms that you at never have experienced. Some celiacs do go through a gluten withdrawal too...
  21. cyclinglady
    I am not sure I am communicating well at all! ? The example you gave, Zyrtec, is an H1 antihistamine, but is considered second generation. It does not cause drowsiness as much as the older first-generation antihistamines like Benadryl. H2 antihistamines are acid reducers for the stomach. They work on reducing or blocking histamine receptors in the...
  22. cyclinglady
    Worse yet......nursing homes. Someday, we are all going to be elderly and may need specialized care. Anyone interested in opening the first dedicated gluten free nursing home?
  23. cyclinglady
    I think you are confusing 1st generation antihistamines (drowsy) vs. 2nd generation antihistamines (non-drowsy). Learn difference between H1 and H2 here: https://www.amboss.com/us/knowledge/Antihistamines I took both H1 and H2 antihistamines as prescribed by my doctor/allergist because my stomach actually hurts before I break out in hives...
  24. cyclinglady
    Connie brings up a good point. Be sure your doctor actually touches your thyroid during an examination. I think today’s clinicians spend too much time just listening to patients and checking lab results. Sometimes just touching the patient can reveal issues. My Hashimoto's (Dx 20+ years) was caught by a physical exam which revealed an enlarged t...
  25. cyclinglady
    When my husband went in for scheduled surgery, the hospital delivered in a tiny refrigerator in his room so that I could fill it with gluten-free foods that the nurses could give to him if I was away from the hospital. I also talked to the hospital pharmacist before the surgery and the dietitians. The hospital was pretty good about gluten free options for...
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