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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    If the tests come back as negative, then retest in six months to a year. Some kids take longer to develop antibodies, but you will never know until you try. Consider a gluten challenge for yourself. It will definitely help you, your family and even medical (future issues). I know with my diagnosis, our family doctor has not hesitated to retest my...
  2. cyclinglady
    Did your doctor check for thyroid antibodies? You can have Hashimoto’s (hypo) or Graves (hyper) before the rest of your thyroid lab ranges go out of wack. Make sure more than just TSH is measured. What about Raynaud’s disease? Do you ever get blue fingers or toes? Just being exposed to air conditioning can trigger this. Is your celiac dis...
  3. cyclinglady
    Let’s hope that future insurance companies do not hold those 23 and Me results (shoddy at best) against you. Do you already have life insurance? Let’s hope Obama Care is not rescinded! Watch this video about identical twins (one was a reporter for the Canadian News) who received different results from several companies about this very subject: ...
  4. cyclinglady
    You are in a tough spot. Can the PED order the rest of the panel? Sometimes you can order the celiac panel from an online lab but I think it depends on your state. She might not have celiac disease. Have you researched Non-Celiac Gluten Sensitivity? Unfortunately, that diagnosis is often made after firmly ruling out celiac disease. Learn more...
  5. cyclinglady
    Ghostfish. Been there too. We love the Pacific Northwest. ? Lots of gluten-free options! My local liquor store actually carries Groundbreaker. Not cheap, but it is fun to drink a cold gluten-free beer ? on a hot ☀️summer day. ?‍♀️
  6. cyclinglady
    Ah, there is hope. Someday travel to Portland, Oregon. Eat and drink at Ground Breaker gluten-free brewery. So nice to be able to sample all their products! https://www.groundbreakerbrewing.com/ There is even a dedicated gluten-free bakery just a few blocks away. Nice to dine at both.
  7. cyclinglady
    Lactaid milk is NOT damaging to a celiac unless you are lactose intolerant. Even then there is no intestinal damage. Just bloating, gas, indigestion, etc which resolves when the milk leaves the body. Now, you could have a milk protein allergy (IgE). That can damage intestinal villi. Have you had a follow-up endoscopy or re-checked your antibodies...
  8. cyclinglady
    Make sure that bar glass is clean (run through a dishwasher and not just dunked into water to remove bacteria (but not gluten which is sticky). When in doubt I ask for a plastic cup especially when the bar is busy. Distilled vodka should be gluten free. Some celiacs are sensitive and prefer vodka made from potatoes. Your choice!
  9. cyclinglady
    Welcome! I am so sorry that your daughter is unwell. Your daughter had the screening celiac test (TTG IgA), but was not given the entire panel. Even though she is not Immunoglobulin A (IGA) deficient, some celiacs (like me) do not test positive to the TTG. The DGP (IgG and IgA) versions should be given, in my opinion. They are consider better...
  10. cyclinglady
    1. Your symptoms could be attributed to celiac disease or not. Five days on a gluten free diet is probably not going to cause healing that fast in a celiac. Normally, you would need to be gluten free for at least six months. You might just be feeling better, by simply cutting out some processed foods and not just gluten, for example. Neuropathy can...
  11. cyclinglady
    In addition to GFinDC’s advice, consider Mast Cell Activation Syndrome: https://www.aaaai.org/conditions-and-treatments/related-conditions/mcas
  12. cyclinglady
    Well, the gluten free diet should not impact your cycle in theory. However, your body is still damaged from celiac disease which is known to be systemic. Even though you went gluten free, your body was still attacking your body. It can take time to heal. Time to reduce antibodies. Time to stop the autoimmune attack. Time to really master the gluten...
  13. cyclinglady
    This will sound weird, but I am so happy for you! At least you know where you stand. You are not crazy!
  14. cyclinglady
    I am so sorry that went through a huge struggle in obtaining a diagnosis. Unfortunately that has happened to so many of us. With so many deficiencies, please consider not eating out, make your kitchen safe and avoid processed foods. It can take time to heal, but it is possible. Get your kids tested for celiac disease if if they have NO symptoms...
  15. cyclinglady
    Probably not if it is autoimmune. You can have more than one autoimmune disorder going on at the same time. A Gluten Free diet might help calm the immune response (inflammation) but it is strongly recommended to get tested for celiac disease prior to eliminating gluten from your diet. Ask your doctor for a celiac blood panel. Here is more advice...
  16. cyclinglady
    Good strategy especially if you have DH! Avoid processed foods as much as possible and if you do purchase, look for certified gluten-free. This is an approach used by many of our DH sufferers and they have had good results (you can browse through the DH to verify).
  17. cyclinglady
    Actually, we have a group called the Gluten Free Watchdog 8; the US. It is kind of like a Consumer Reports that advocates for celiacs and checks products. The group takes no financial support from any advertisers (just subscribers). The GFW has found that over 95% of products they have tested meet gluten-free standards. So, American manufacturers are...
  18. cyclinglady
    Welcome! You could have been gluten light prior to the two blood tests. You could retest in 8 to 12 weeks after consuming gluten daily (1 to 2 slices of bread or equivalent). Ask for the complete celiac panel too. Also, note that about 10% of celiacs are seronegative. In that case, the doctor would have to go directly to an endoscopy. And here...
  19. cyclinglady
    Maybe. DH can look like many rashes. You can either get a skin biopsy or have your doctor order a celiac blood panel. The skin biopsy is very tricky so be sure your dermatologist is very very celiac/DH savvy. It must be adjacent and NOT on the rash. That is location of the antibodies.
  20. cyclinglady
    No gluten in this drug by this manufacturer. Look at page 15 of this PDF from Abbie: https://www.rxabbvie.com/pdf/synthroid.pdf You could be reacting to lactose or corn. Those are in the pill as inactive ingredients. Can you consume dairy or corn?
  21. cyclinglady
    Welcome Kim! This is a very old post, so I am going to try to answer answer your question. Celiac disease is genetic. It is an autoimmune disease that has a known trigger. Once triggered, the body attacks and damages the small intestine causing all kinds of issues resulting from malnutrition (like being able to absorb iron and becoming anemic, etc.) ...
  22. cyclinglady
    What Karen said is true! Here are the facts based on medical research and not FAKE news: https://www.mayoclinic.org/diseases-conditions/celiac-disease/expert-answers/celiac-disease/faq-20057879 By the way, the Mayo clinic is one of the leading celiac research centers. Here is more: https://www.beyondceliac.org/celiac-disease/myths...
  23. cyclinglady
    Consider a Low Carb, High Fat, Keto or fasting diet (gluten free of course. I have been able to keep my HA1c in the 5% range for four years following a LCHF diet. This means not consuming grains on a regular basis (vacations exempt!), less fruit and veggies grown above the ground. I am fasting now. Just making sure I do not eat for 12 hours...
  24. cyclinglady
    Either her celiac disease is flaring due to hidden gluten exposures or she may have another autoimmune disorder. My last endoscopy revealed a healed small intestine, but that I had developed autoimmune gastritis (on top of Hashimoto’s Thyroiditis). Not saying your daughter has AIG, but that another autoimmune disorder is possible. Exactly what t...
  25. cyclinglady
    Please get tested for celiac disease before going gluten free.
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