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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Ennis has this... but yes, my crockpot comes out when I am glutened. My instant pot can crank out a tasty chicken soup in a flash while my crockpot is roasting beef. Boring foods, but safe. I dread having to eat after a gluten exposure!
  2. cyclinglady
    The link below is one example of an IgA deficiency as it pertains to celiac disease testing your result was 0.60 : http://clinchem.aaccjnls.org/content/54/7/1203 “Selective IgA deficiency was defined as a serum IgA concentration of <0.06 g/L in patients 2 years of age and older (5). Partial IgA deficiency was defined as a concentration ≥0.0...
  3. cyclinglady
    Soups and stews. Anything mushy and well-cooked (even fruit) makes it easier for me to digest after a Glutening. Honestly, eating anything can hurt, but eventually it does get better. I eat that stew or soup for breakfast, lunch and dinner. Boring, but it does the job. Keep it simple using just a few ingredients. Keep it bland. I hope...
  4. cyclinglady
    Your IgA result should not impact your celiac tests. It would need to be closer to zero, but talk to your doctor. You could always ask for the TTG IgG. Lab ranges vary. Go by this lab. Do you have any other risk factors like anemia, other diagnosed autoimmune disorders?
  5. cyclinglady
    If you do not have celiac disease or a gluten sensitivity, perhaps the cereal was bad. The USDA sends out recalls all the time. Could be food poisoning. The only thing Cherrios (General Mills) did with their cereal was to use a mechanical sorter for their oats to scan for wheat pieces making it “gluten free”. Kind of like hand sorting dried bea...
  6. cyclinglady
    Welcome! There are a couple of things. First, about 10% of celiacs are seronegative. This may apply to you. Second, not everyone tests positive to the tests you took. For example, I only test positive to the DGP IgA even on follow-up tests. If my doctor had not ordered the entire celiac panel, my diagnosis would have been missed. Your IgA was...
  7. cyclinglady
    Was your Immunoglobulin A (IgA) test within range (this means you can make this type of antibodies)? If not, the TTG IgA test would not work. Your doctor would view the TTG IgG tests as a positive and move forward with an endoscopy. But know that the antibodies test are not perfect. I never test positive on the TTG IgA and TTG IgG, but to the DGP IgA...
  8. cyclinglady
    Hi! Bad news. If you want to get tested for celiac disease, you MUST be consuming gluten daily. How long have you been off gluten? A gluten challenge requires 6 to 12 weeks for the blood tests. If you have just been off for a week or so, start eating gluten and go forward with testing. Check the Kaiser GI’s in those two towns. Usually their b...
  9. cyclinglady
    My hubby had been gluten free for 12 years before I got my diagnosis, so it is much easier for me in terms of spousal support. However, my friends and extended family have become used to me not eating when we go to restaurants. It was awkward at first, but they got used to it. They know how sick I can get. We do go out occasionally. Luckily we have...
  10. cyclinglady
    I know! Just having a place to vent is so nice. Most of us have been brushed off by medical staff throughout the years and labeled as hypochondriacs. It is nice to have a diagnosis, but often that is not possible. For example, I am diagnosed celiac, but my hubby is not. He went gluten free 20 years ago before most American doctors were aware of celiac...
  11. cyclinglady
    If you remain on a gluten free diet, it may help with SIBO, but it may not. You might want to do a forum search on SIBO and see advice from members who have had SIBO. Whatever happens, it sounds like remaining gluten free/SIBO diet might be best for you. Consider getting your child tested. I know my house is gluten free and my daughter who does...
  12. cyclinglady
    Celiac disease is an autoimmune disorder that is systemic and inflammatory. It can impact literally any body system, including skin. By being able to better absorb nutrients and probably making healthier food choices, your face is looking better! Not unusual at all!
  13. cyclinglady
    Hi! I know the waiting list for an endoscopy (NHS) can be very long (months), but are you saying that it takes that long for a celiac blood panel? Your local GP should be able to test you once you have completed a gluten challenge 6 to 12 weeks. Going gluten free if you have celiac disease will heal the small intestine. Lactose intolerance...
  14. cyclinglady
    Yes, my biopsies (pathologist’s report) revealed Chronic Autoimmune Gastritis with a polyp that my GI removed since it was easy for him to do so. Usually people who have AIG do not know it until they are deficient in B-12 or iron enough to become anemic. At this time, I am not deficient or anemic at all, so no treatment is necessary. I went for a...
  15. cyclinglady
    @Posterboy The original poster is waiting for biopsy results. By telling her my story, I wanted her to know that all her problems may not just be due to celiac disease. It was just advice to think about in the future. As far as my own issues, I am interested in putting my Gastritis into remission since it is due to a diagnosed autoimmune disease...
  16. cyclinglady
    This got off topic. Just try the gluten free diet. It may solve all your problems. Let us know the outcome of your biopsies.
  17. cyclinglady
    It is gluten free. The company can not say the juice is gluten free because they did not test it to see if it is under 20 ppm. Gluten has never been added to orange juice in my experience. Enjoy your vacation!
  18. cyclinglady
    I do not think I can help. Our administrator should be able t9 help. Please allow some time for a response.
  19. cyclinglady
    @WestCoastBC— Welcome! This thread is pretty old and I am not sure members will reply. I have heard of HS and I found this video months ago on YouTube about Adam who has HS and is on the Autoimmune Paleo Diet (which is also gluten free). It helped him identify his triggers and to put HS in remission. It might be worth watching: https://m.y...
  20. cyclinglady
    I am depressed now! Let’s figure out how to stop the autoimmune process before deficiencies, infections, or cancer.
  21. cyclinglady
    I understand. The items I am severely allergic to are usually drugs. Consider Kitty’s advice about the histamine and AIP diet.
  22. cyclinglady
    I am glad too!
  23. cyclinglady
    We seem to have similar stories. I was having lingering issues after a hidden gluten exposure, the flu, a cold and a tooth infection. I developed chronic hives that finally ended after six months. I had new GERD-like symptoms that did not resolve. My GI kept suggesting a repeat endoscopy, but I resisted. I even went on the Fasano diet. I was going crazy...
  24. cyclinglady
  25. cyclinglady
    If you doubt your celiac disease diagnosis, gather up all the records and get a second opinion from a GI who is celiac savvy. Did they even run the celiac blood panel? It sounds like you went back on gluten for a full three months prior to your endoscopy. It also sounds like your GI ruled out other things that could cause villi damage. Was Crohn’s ruled o...
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