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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Let me get this straight. You have celiac disease based on biopsies (villi damage). You also have issues with milk products. Normally, celiac disease is linked to lactose intolerance due to the destruction of villi tips which releases the enzymes to digest lactose. This can heal if you are not genetically predisposed to lactose intolerance which affects...
  2. cyclinglady
    Celiac disease and gastritis can be related. Often gastritis will resolve on the gluten free diet, but if it does not, it can be another issue. The biopsy results should reveal the source of your gastritis. It can be autoimmune, H.Pylori or the other things you listed. When I had a repeat endoscopy, biopsies revealed a healed small intestine, but...
  3. cyclinglady
    I love this tip!
  4. cyclinglady
    Hi! Invest in some small coolers. In the summer, I often place a small cooler within a larger hard-sided cooler while transporting my lunch in the car. I have some soft-sided coolers for quick trips too. Here is some ideas for meal prep. Youtube has tons of videos. Just make sure everything is gluten free, of course! https://m.youtube...
  5. cyclinglady
    I would think your Primary Care Physician (GP or internist) could order some tests for lupus: https://www.mayoclinic.org/diseases-conditions/lupus/diagnosis-treatment/drc-20365790
  6. cyclinglady
    I am so sorry that you are sick. There is no clear cut answer. Everyone is different. For some it is a few days of misery and for others it can last weeks or trigger other autoimmune issues which can compound the symptoms. Remember, celiac disease is an autoimmune disorder like lupus or rheumatoid arthritis. Gluten just triggers the response...
  7. cyclinglady
    I agree that a second opinion is in order. You should also keep and maintain medical records. It is your right. I would get the records. Children can take time to develop antibodies. Often the screening (usually cheap, but effective) TTG IgA test (commonly given when celiac disease is suspect) is not positive for a small child (and some adults...
  8. cyclinglady
    Welcome! Only you can decide if it is worth pursuing a celiac disease diagnosis. A gluten challenge for 8 to 12 weeks (antibodies testing) can be brutal. The time is much less for an endoscopy (2 to 4 weeks). Benefits? Good to know if you have kids, siblings or parents who have mysterious symptoms or none at all. Knowing that you have one autoimmune...
  9. cyclinglady
    In the meantime, consider a food/environmental journal. Often that is a great approach in helping to identify allergies or food intolerances. Of course, avoiding gluten is critical. I know if I get gluten exposures, it seems to set off my other autoimmune disorders.
  10. cyclinglady
    Patricia, Thanks for posting! Imagine dealing with celiac disease for over 8 decades! Is it easier with all the new gluten free processed foods or harder? I am just curious. So many celiacs struggle. We could use common sense advice from seasoned veteran. Have you had following care specifically for celiac disease (antibodies measured)...
  11. cyclinglady
    I agree that you should get another opinion from a medical doctor. Alternative wellness centers might be helpful, but not always. I just read this article about a study done concerning celiac disease. So many naturopaths and chiropractors are not diagnosing celiac disease correctly. https://www.reuters.com/article/us-health-altmed-celiac/alternative...
  12. cyclinglady
    What a great kitchen! You did a great job putting it all together.
  13. cyclinglady
    I purchase plain brisket at Costco. No issues for me. All added seasonings are done in a separate room at Costco and never where they cut the meat per the butchers (I grill them all the time!) Ennis could be on to something. Was that a enameled Dutch oven or cast iron (which can retain gluten). Take it from me (been there and done that), not...
  14. cyclinglady
    Nuts and peanuts (which are as Ennis pointed out as legumes and not nuts) are common allergens. Celiac disease (autoimmune) and allergies are under the hypersensitivity umbrella (four types). When you have one sensitivity, you can develop more. Overload your immune system and you can trigger any one of these hypersensitivities. These can vary based on...
  15. cyclinglady
    @Ali Rae — Consider seeing a GI. Low stomach acid can be due to naturally aging or an illness. I have Chronic Autoimmune Gastritis that ebbs and flows. It is common with autoimmune thyroiditis. Keeping my celiac disease from flaring does help, but my trigger seems to be stress. I kept blaming celiac disease, but a repeat endoscopy revealed healed v...
  16. cyclinglady
    Hubby takes metoprolol tartrate by Mylan. It is gluten free. Look at this government site to check ingredients: https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=809c6386-0039-42ff-a03e-e42733e229b8 I used this website when checking generics at the hospital when my hubby had surgery. Until you master the list of gluten names, be...
  17. cyclinglady
    The actual brand Lipitor (a statin) is gluten free as of 5/2019. My hubby takes this medication. However, other generic brands may not be gluten free. Read the inactive ingredients, talk to your pharmacist and call the manufacturer for every medication each time you get a medication or refill. http://labeling.pfizer.com/ShowLabeling.aspx?id=587...
  18. cyclinglady
    Good question. Celiac disease is like a chameleon— always changing. Those new symptoms could be attributed to celiac disease or something else. Hard to say.
  19. cyclinglady
    Just wash it well with warm water. That should remove the residue. You should be just fine. What kind of vinegar? I can not imagine using malt vinegar. Most white is distilled and is safe.
  20. cyclinglady
    The answer is sadly no. Lots of theories out there about different wheat or longer rising times for bread though. But the reality is there are plenty of celiacs in Europe. I recall Finland being the country with the most celiacs. Italy might be next. They also seem to have lots of research out of Scandinavia and Italy as a result. The good news...
  21. cyclinglady
    It depends on the equipment. A newer scope can actually see villi destruction, but the older ones can not. However, damage is often microscopic, so you just have to wait for the pathologist’s report. In my case, my diagnosing GI said my small intestine looked fine, but a week later, the pathologist’s report showed a Marsh Stage IIIB (patches of ...
  22. cyclinglady
    It is gluten free. I just had some at Easter. Kraft does not label anything gluten free for legal purposes. Will you get sick? You might react to other ingredients due to food intolerances other than gluten. If you are worried, sick the jello until you feel better. Sometimes piece of mind is priceless!
  23. cyclinglady
    You might try doing a search on you tube for techniques. There are lots of make up artists on there. Plenty for men too. The goal is to look like you have nothing on. In our family, we use Physician’s Formula green concealer to cover redness. Then lightly apply a mineral foundation (Neutrogena) with a sponge or brush over it and blend. The goal i...
  24. cyclinglady
    Depends on what kind of Advil. The gel capsules used to contain gluten from what I recall. What does the label say? Here is a list of gluten free pain relievers: https://www.verywellfit.com/gluten-free-pain-relievers-562382
  25. cyclinglady
    I understand your concern for your son and your grandchild. Your son is an adult. It is his choice whether or not to treat his celiac disease. Some celiacs do not follow treatment. My own PCP has two other celiac patients (out of 2,000+) who refuse to do the diet. It is hard for most of us here to imagine that, but it is true. Like an alcoholic or a...
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