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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    People can react to any ingredient found in topical products, however for you to have a celiac reaction, wheat, barley, rye or sometimes oats, must be ingested. If you are healing from celiac disease and your immune system is still out of wack or you are dealing with another illness (like autoimmune hives, which may or may not be linked to celiac disease...
  2. cyclinglady
    Thought I would add this. I still wear (and make my kid wear) old-fashioned zinc oxide on my nose, cheeks, ears, and top of forehead in addition to other sunscreens when we are surfing. There is a lot of reflective sun exposure! It gets rubbed off, so I can visually see that we need to apply more. You can even buy it now in colors which can have a warrior...
  3. cyclinglady
    As a celiac and some who is managing type 2 diabetes (insulin resistant), I have come to realize that there is no “one-size-fits-all” diet for either. We all have different intolerances, additional illnesses and our bodies respond to so many different environmental issues and in different ways. What works for me, may not work the same for you. I wish the...
  4. cyclinglady
    Congratulations! It is so nice to know that you have been adhering to the gluten-free diet and your methods are working for you. What is more amazing is how you have managed your UC without heavy duty prescription drugs. That is incredible. I wish you continued success. You are an inspiration to me, members, and especially the newbies!
  5. cyclinglady
    I do not have DH, but my advice would be to get a second opinion from a different dermatologist. I hope you find answers! ?
  6. cyclinglady
    I hope it goes well for you and you get answers! ?
  7. cyclinglady
    Hi! I am sorry that you are still struggling. You can not rule out celiac disease for a variety of reasons. First, you did not show an Immunoglobulin A (IgA) test result which NVSMOM pointed out years ago that is used as a control test when trying to diagnose celiac disease. If you are IgA deficient, your IgA-type celiac tests would be invalid...
  8. cyclinglady
    I am glad the gluten-free diet worked for your daughter. Researchers are now checking out the Autoimmune Paleo Diet that many on the internet have claimed to help various autoimmune disorders. It is grain free (and that includes gluten free). Scripps in San Diego did a tiny study on IBD patients who achieved a 78% remission rate based on biomarkers ...
  9. cyclinglady
    Fire your doctor! You should not have been advised to go gluten free yet. In as little as two weeks, healing can occur. Rare, but possible. Plus, you tested positive to only the DGP IgA and that TTG IgA test might never be positive. How do I know? I tested positive to only the DGP IgA about six years ago. I never had a positive on any of...
  10. cyclinglady
    Welcome! I think you just need to be patient and discuss this with your doctor. We can not diagnose you on the internet.
  11. cyclinglady
    I recently had my kid retested for celiac disease this year. Because she lives in a gluten free house, I made sure that for three months solid, that she had gluten either in her school lunch or she was eating it at restaurants, friends, or wherever. Every single day! Twelve weeks was very conservative, but we needed to know for sure. The cost of the...
  12. cyclinglady
    Thanks for the updated links. I bookmarked them. It is nice to be able to see the EU guidelines for celiac disease.
  13. cyclinglady
    Wait a minute! Is this challenge for an endoscopy? If not, you need to be on gluten for six to 12 weeks prior to a blood panel. Two weeks seems to be sufficient for them to see damage to the small intestine, but it can take weeks to build up antibodies in the bloodstream. https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ https...
  14. cyclinglady
    Thanks so much for sharing! ?
  15. cyclinglady
    I think it is safer to read labels and to contact the company. I am not sure if your box for the Cookie Crisp matches the boxes sold at Target. Those at Target state that they may contain wheat. The ones sold in the UK by Nestle do have wheat. https://www.target.com/p/cookie-crisp-breakfast-cereal-11-25oz-general-mills/-/A-12935813 The Pebbles...
  16. cyclinglady
    Your doctor is wrong. You just need 1 to 2 slices of gluten-containing bread a day (or equivalent) during a gluten challenge. But maybe he wants to be extra sure. If you can tolerate it, go for it! Celiac disease is like a chameleon. Symptoms are always changing. You could be hungry because your small intestine could be under attack and is starting...
  17. cyclinglady
    All gluten-free breads can taste differently because the flour mixtures vary so much e.g. rice, tapioca, potato, etc.) A bread machine can be handy but it might be better suited for gluten-containing bread that requires mixing, rising, kneading, rising again, and baking. I use to own one before my diagnosis. Gluten-free bread just requires mixing, rising...
  18. cyclinglady
    @Vicki R— These members might not respond, so I will. You can make bread at home cheaper, but you would have to flour in bulk. A bread machine is nice I suppose, but unlike gluten-containing bread, no kneading is necessary and just one rise time is all that is needed. A bread machine can mix, rise, knead, rise and bake while you are asleep. I...
  19. cyclinglady
    My GI told me everything looked normal. I had to wait for the biopsies. My new GI has the latest and greatest scope. He could see and photograph my villi! Wow! I got a set of pictures on a repeat endoscopy five years after my diagnostic endoscopy. Of course the pathologist’s report also collaborated my GI’s findings.
  20. cyclinglady
    Keep eating gluten until that GI consult. In fact, you must be consuming gluten for even the intestinal biopsies. I can share that I test positive to ONLY the DGP IgA tests, even on follow-up testing using different labs, yet I had intestinal damage and no GI issues. As time went on, my celiac disease changed. I did get GI symptoms after gluten...
  21. cyclinglady
    Welcome! What was the lab range for the TTG IgA test (your result was 12)? Your Immunoglobulin A (IgA) test is within range that means any other IgA related test should be valid. The EMA is pretty specific to celiac disease. Consider getting that endoscopy. They put me out and I had no issues at all! Why get it? Because it confirms celiac...
  22. cyclinglady
    If you did not get the complete celiac panel, you might ask for it. In my case, I only test positive to the DGP IgA, even in repeated follow-up testing. Some celiacs are seronegative. That means they never have positive blood tests. This affects about 10% of celiacs. No small number! Some celiacs are Immunoglobulin A (IgA) deficient. If your doctor...
  23. cyclinglady
    Because these are processed foods, you could be reacting to any ingredient. For example, I am a celiac who despite having healed, still has intolerances to garlic and Xanthan Gum. You have that right! Simply going gluten free may not be enough to feel well. So many people have intolerances to other foods that may or may not resolve with healing...
  24. cyclinglady
    Your doctor may not have an answer because each patient is different. I heard a lecture by Dr. Alessio Fasano once who said that intestinal healing can occur in as little as two weeks. Some patients might take a year or longer. It all depends on the damage which does not necessarily correlate with symptoms. For example, I had no GI symptoms yet my intestinal...
  25. cyclinglady
    Hi Andrea! This blog is ancient. It was posted in 2009. I do not even know if the blogger even has celiac disease and she is no longer an active member. So, the information should not be used as it is most likely not current. I personally avoid eating out. When I do, I eat at 100% gluten-free restaurants. This works for me. My last endoscopy...
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