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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Your symptoms could be attributed to celiac disease or any number of illnesses. The only way to find out if it is indeed celiac disease is to get tested. It starts with a simple blood test. Make no changes to your diet. All celiac disease testing requires you to be on a gluten diet. http://www.cureceliacdisease.org/screening/ You can develop...
  2. cyclinglady
    Tate’s are gluten free (gluten-free). All their gluten free cookies are made in a dedicated gluten-free facility and are tested to under 5ppm. https://www.tatesbakeshop.com/faq/ Your reaction? It was most likely an intolerance to Xanthan Gum or another ingredient in the cookie and not one that activates celiac disease. I have celiac disease a...
  3. cyclinglady
    Two weeks is enough time for a gluten challenge to obtain intestinal biopsies via endoscopy. https://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Perhaps, your GP is basing a six week challenge on blood tests requirements which range from 6 to 12 weeks depending on the celiac disease research center. Maybe they want to repeat those...
  4. cyclinglady
    You have been given some good advice, but remember we are all unique and what works for one celiac, may not work well for others. You just need to experiment and find your own way. For example, Ennis uses nut flours or butters, but I have nut allergies. I also have some intolerances that have not resolved (e.g. garlic, Xanthan Gum, onions) even after healing...
  5. cyclinglady
    This does not apply to all celiacs. The only thing that can trigger a celiac flare-up (or gluten you) is gluten from wheat, rye and barley. In some cases, some celiacs react to oat protein, but normally oats can just be cross contaminated in the field, transport, or storage/processing. So, it is advised to not consume oats for the first six months and...
  6. cyclinglady
    My diagnosing GI called my result a “weak” positive. A few weeks later, my biopsies confirmed a Marsh Stage IIIB which is moderate to severe patches of villi destruction. I did not have any GI symptoms at the time either. I guess my body adapted. Five years later, I had a repeat biopsy and my villi were healthy! The DGP is really specific to cel...
  7. cyclinglady
    Wow! Excellent response! It is great to have a perspective from a rancher.
  8. cyclinglady
    Consult with a GI. She might not have celiac or she might not. Not everyone tests positive to the TTG (like me and other forum members). But know that she is at risk of developing it at anytime in her life. For example, my own daughter is tested every couple of years even if asymptomatic. http://www.cureceliacdisease.org/faq/are-raised-dgp-igg...
  9. cyclinglady
    Those lab results are weird. I have never seen anything like it. Ranges for the antibodies? Call the lab or ask the doctor. But it only takes one positive on the celiac panel to move forward. I personally test positive to only the DGP IgA and I had severe intestinal damage and had long been diagnosed with Hashimoto’s. Hashimoto’s is common to ...
  10. cyclinglady
    I have researched this a bit, but I can not determine which US companies might be using this stuff. It sounds like it is a cost reduction measure (gluing scraps of meat or improving inferior/low gluten cheap wheat). I hope the Gluten Free Watchdog or celiac groups are researching this! Here is company who sells this stuff: https://www.bdfingredients...
  11. cyclinglady
    I am confused. Both her TTG IgA and TTG IgG were both over 100 at diagnosis? And she is actually IgA deficient? If she is not making IgA antibodies, I think her TTG IgA test would be invalid. To be really IgA deficient, her test result would be close to zero and not just below the lab range. Can you clarify? Has she ever had the DGP IgA or the...
  12. cyclinglady
    My hubby worked at a medical device company. Medical devices and pharmaceutical manufacturing processes are super strict. Everything must be clean and sterile. Odds of cross contamination for gluten would be practically zero. I would take the medication because I would be very confident that it was gluten free. It is good you confirmed that all...
  13. cyclinglady
    Celiac disease can develop at anytime in your life. https://www.webmd.com/digestive-disorders/celiac-disease/news/20100927/celiac-disease-can-develop-at-any-age#1 https://celiac.org/about-the-foundation/featured-news/2018/03/importance-detecting-celiac-disease-later-life-2/
  14. cyclinglady
    I think this drug is safe. I would feel comfortable taking it. The reason why the customer service rep did not guarantee it was gluten free was probably due to legal issues. It is a “cover your &#@%” statement we commonly hear. There are a lot of restrictions on drugs and safe manufacturing processes.
  15. cyclinglady
    Maybe a drug reaction? Ever take a fluoroquinolone (a type of antibiotic) in the last year? https://www.fda.gov/downloads/Drugs/DrugSafety/UCM365078.pdf
  16. cyclinglady
    Most kids on this forum who have had very high TTG results have seen those come down within a year or so. (You can browse the kid’s section). If your daughter’s TTG is not coming down, most of us on the forum would assume that she has had repeated gluten exposures. Another reason could be another autoimmune issue (AI) brewing, but this is not very com...
  17. cyclinglady
    Did you know that some celiacs react to oats, even oats grown and harvested and shipped from dedicated fields? Did you know that there is a lot of controversy over mechanically sorted oats? Oats might be the one thing that is keeping her TTG elevated. https://www.glutenfreewatchdog.org/news/gluten-free-watchdog-updated-position-statement-on-oats...
  18. cyclinglady
    There is a new stool test that can help determine if gluten is getting into her diet. It might be worth pursuing. https://glutendetective.com/shop/ A review from a very reliable source: https://www.glutenfreewatchdog.org/news/gluten-detective-consumer-test-kits-for-detecting-gluten-in-stool-and-urine/ I did not ask, but does she consume...
  19. cyclinglady
    Does she have symptoms? Is she thriving? Because it is known that the tests to determine celiac disease were designed for diagnostic purposes and not dietary compliance. They are the only non-evasive “tools in the toolbox”. My DGP IgA has never been normal (never had a positive on the TTG or EMA yet I was biopsy confirmed. In fact, I had a repeat end...
  20. cyclinglady
    It means you have one of the genes associated with celiac disease. It does not confirm celiac disease because some 30% of the population carries these genes but only a few go on to develop celiac disease. But more importantly......THEY LOST YOUR PATHOLOGY REPORT? How awful! Did the GI note anything on the endoscopy? Did that report get lost too...
  21. cyclinglady
    Hi! It can be hard to find a doctor who is knowledgeable about Mast Cell Activation Syndrome. Consider starting with an allergist. https://tmsforacure.org/symptoms/symptoms-and-triggers-of-mast-cell-activation/ https://www.aaaai.org/conditions-and-treatments/related-conditions/mcas Have other issues like Crohn’s, SIBO, etc. been r...
  22. cyclinglady
    @Posterboy— take care! ?
  23. cyclinglady
    Unfortunately, my gluten reaction varies. Two years ago, I had a gluten exposure (source unknown), had the flu, a tooth infection, and a cold all within a few weeks. I was a mess. My DGP antibodies were off the charts, so we (my GI and I) assumed I was having a celiac flare-up. Then came the hives every afternoon which lasted for six months. My allergist...
  24. cyclinglady
    Great advice. Just remember that you are the customer. Know that each pharmacy with Walgreens is slightly different — meaning the staff. Some may be more helpful than others. If you can not get help to your satisfaction, find another pharmacy or choose a different Walgreens. Also, try to go in during slower times. For example, I have gone into our h...
  25. cyclinglady
    I bet you are doing a great job. It might be that your GI tract is inflamed. Just stick to simple foods that have less than five ingredients. Better with just one ingredient. Eat easy things like plain chicken, veggies and fruit. Avoid processed foods until you see some progress. It is just as easy to bake chicken as it is to bake chicken nuggets....
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