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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Rachelle, this is a pretty old thread, so this member may not respond. Your child should see a doctor. You could ask for celiac disease testing or have him elvaluted for something like EoE. https://www.aaaai.org/conditions-and-treatments/related-conditions/eosinophilic-esophagitis https://www.beyondceliac.org/celiac-disease/symptoms/children...
  2. cyclinglady
    Yes, the photo link worked. Again, DH is not diagnosed visually because it resembles so many other rashes. Is it possible to get an appointment at the celiac center at Texas Children in Houston? I do not know your insurance, but it might be possible to pay for a visit (cash) but get tests, etc. via your in-network insurance. It would be worth a...
  3. cyclinglady
    Welcome! Your baby might have DH, but it can not officially be diagnosed without a skin punch biopsy. Has he had the blood tests? With a very strong family history, he should be tested. While it takes a while for antibodies to develop in small children, he might already have enough to be tested. What about using your relative’s celiac s...
  4. cyclinglady
    Welcome, the only way to know for sure is to get tested: http://www.cureceliacdisease.org/screening/ Keep eating gluten until all testing is complete!
  5. cyclinglady
    There are very few if any specific studies regarding the restrictive gluten-free diet (aka “Fasano) for DH that I have found (anyone see any?). We all know that DH is often considered the stepchild to celiac disease. Very little research has been done in comparison to celiac disease. Other forum members who have DH have reported that this diet or o...
  6. cyclinglady
    I suppose the juices you described would be fine, but remember, you are trying to heal from inflammation. Sugar, even in the form of juices, is inflammatory (start researching that topic). I personally only consume coffee, water and black tea. Boring? Yes. It is safe for not only my gluten-free diet, but in managing my diabetes (TD2). The diet does...
  7. cyclinglady
    You just need to be patient and avoid gluten at all costs. Chances are you are still dealing with the consequences of your recent gluten exposure. Please keep researching celiac disease and how to avoid gluten. Knowledge is your best defense. No, never dizziness or facial numbness for me, but everyone is different.
  8. cyclinglady
    Vomiting, passing out, abdominal pain that occurs as soon as my stomach empties into the small intestine (I consume mushy, well-cooked foods then), hives, allergic reactions are way more severe, indigestion, anxiety, irrtability, fatigue, achy body, tingling, become lactose intolerant, constipation, diarrhea. Yep, many things. Symptoms can change too. ...
  9. cyclinglady
    Every celiac is different. Reactions to gluten are different and so are healing times. I am one of those who remains ill for months too. Give it time. I hope you feel better soon.
  10. cyclinglady
    What tests did you take? IgA and IgG refer to Immunoglobulin. I assume you were testing for celiac disease. If just the TTG tests were given, you might ask for the entire panel and be sure to check your Immunoglobulin A (IgA) a control test when just checking for celiac disease. But the ultimate test are the biopsies. http://www.cureceliacdisease...
  11. cyclinglady
    Most members who are no longer active on the forum and leading normal, healthy lives. The few active old timers are here to help new members. Not everyone remains ill. Think about that.
  12. cyclinglady
    I have time to just give you a brief answer as I am making a birthday cake. Do not think that you will have to be on the Fasano diet forever. Unfortunately, no one ever studies food and it’s impact on health. There is no money to be made. Not big money anyway. There was a study done at Scripps in San Diego. A tiny tiny study. They used Inflammatory B...
  13. cyclinglady
    @Ennis_TX You are a great source of foods that I would have never considered in the past. I have been buying some things on the internet, but like ready a physical book, I still enjoy shopping in a store. Like you, I have to work around intolerances. Avoiding corn or even soy is very difficult, but you manage well. I think in the future, we will...
  14. cyclinglady
    Awesome! I am so happy for you! Once I went Gluten Free I noticed that lots of little things went away that I did not even know were attributed to celiac disease. This disease is crazy, but I thankful that there is treatment.
  15. cyclinglady
    You should let your doctor know that you are experiencing headaches while on this drug. He or She can report this to the FDA. Every drug has risks and benefits and should be carefully weighed. You should ask your pharmacist or search onl8ne for other side effects that may crop up. This drug will most likely not be very effective if you continue...
  16. cyclinglady
    You can get old-fashioned Bakers brand coconut with all those ingredients at any local grocery or big box store in the US. This is a product that older folks like me have seen most often for more than 50 years. Not everyone orders food online (like me) or has access to health food stores which offers organic (no preservatives) coconut. Nice tip about...
  17. cyclinglady
    I miss my ❤️dog....she was a lab. The best lab in my entire extended family. She too was a rescue. When the kid goes off to college, we’ll get another. ?
  18. cyclinglady
    I will add my two cents, but will warn you that I do not have DH. Lentils and beans have worked for me. However, I carefully sort and wash them several times. Any raw agricultural product is allowed a few errant twigs, rocks and other grains. I soak them before cooking, so they get another wash. I like using my instant pot to make quick batches...
  19. cyclinglady
    Please get your thyroid rechecked! Ask to test for thyroid antibodies as well. Make sure your thyroid hormone replacement is gluten free. If your doctor is not willing to work with you, fire him or her. You do not need to fast for a thyroid test but you do if you are checking your fasting blood sugar or cholesterol.
  20. cyclinglady
    I would bet that your low weight may have impacted your menstrual cycle on top of possible elevated celiac antibodies. Celiac disease is systemic! Why would giving up wheat, barley and rye impact your menstrual cycle? Lots of cultures never eat gluten (think Native Americans in Alaska) and they reproduce. Some people do lose weight fast on the gluten...
  21. cyclinglady
    Thanks, Posterboy! It is a shame that it can be safer to eat a processed food product than to take a medication. But....pharmaceutical companies lobby hard in Washington DC. It is all about the money. Funny how the pharmaceutical drug companies were excluded from the Food labeling rules for gluten free that were developed and were issued by the FOOD...
  22. cyclinglady
    I get feeling sorry for yourself. I think we all go through this periodically. Worse is adding on intolerances and in my case, eliminating carbs in an attempt to manage my type 2 diabetes without drugs (the most common drug used is Metformin and can cause GI issues ?!). It works, but my diet is really restrictive. I started doing things like walking...
  23. cyclinglady
    I am sorry that you are still not well. The good news is that you have healed on the gluten-free diet. It sounds like you may have had a gluten exposure or you could be developing another autoimmune disorder. The most common thing would be a gluten exposure. I can tell you that just having one positive on the celiac panel means something....
  24. cyclinglady
    Ah......I do not consume any oats. I guess I am too sensitive. My hubby does (he has been gluten-free 12 years before me) and I buy him only purity protocol oats. In fact, except for holidays/events, I do not consume any grains. It just works for me. I do know that DH sufferers tend to be super sensitive. It is still recommended that newly diagnosed...
  25. cyclinglady
    I am sorry that you are still struggling despite your best efforts! I do not have DH, but I from what I read from forum members, it can be maddening. Hopefully, a few DH members will drop by soon to comment and encourage you. I can share that two years ago I had a gluten exposure (unknown), a tooth infection, the flu and a cold all within a month...
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