cyclinglady
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cyclinglady
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FYI. Gene testing is usually used to rule out celiac disease — not to diagnose it. In some cases, when an endoscopy can not be done, with positive antibodies, genes and testing a gluten-free diet, can help a doctor diagnose celiac disease. But the gold standard, still, is obtaining intestinal biopsies. Researchers have been looking at easier ways to d... -
If you use the search box, you can find other posts from members who do not have the common celiac genes yet have celiac disease. It seems like there are genes that have not been identified. There are always oddities. Like those 23 and me tests. Very inaccurate. Why? They are only using data they have gathered. If I recall most data is from the US and...
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Hi! The only treatment for celiac disease is a strict gluten free diet. That said, not every celiac wants to adhere to the diet. My PCP told me that she has three celiac patients (I do have a GI as well). Two of them refuse to give up gluten. She has over 2,000 patients and she knows these two celiacs well because they are always sick. I...
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Just type in the search box (little magnifying glass) located top right.
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Karen has given you excellent advice. Why are you seeing an endo? Do you have Type 1 Diabetes or Autoimmune Thyroiditis? Those are common with celiac disease. Going gluten free for life is a big game changer. It would be nice to be sure you actually have celiac disease and not Crohn’s which can also cause malabsorption. Exactly which tests w...
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I am sorry you are unwell. It is true that your reaction to gluten can get worse after diagnosis. Here is a list of OTC pain medication: https://www.verywellfit.com/gluten-free-pain-relievers-562382 Any medication has risks and benefits. But acetaminophen seems to be easier on the stomach (not necessarily the liver) when you follow the directions...
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Glad you are better!
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So I do not have to repeat myself, here is an old link about my personal cruise tips: In your case, avoid fish or other foods that have a lot of iodine. While some people think cruises are all about the food, we like to think they are an opportunity to travel without having to pack and unpack your suitcase every single day. They are great for...
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Welcome! You might want to do a search within the forum for EPI. We have had members who have the condition. The gluten free diet and taking digestive enzymes has helped this condition.
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With 80% of celiacs undiagnosed, it was good that you requested celiac testing. ? The other tests were all valid. Have you changed your diet or determined triggers for your EoE?
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You are correct, only about 2% are IgA deficient. However, some celiacs are seronegative (never get a positive on the celiac panel). Your doctor may want to do an endoscopy despite your results or have you trial the gluten-free diet. This is a conversation you need to have with him or her. What made you get tested?
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I have to attend a school play, but I will respond to you later or tomorrow. I can at least help you with the cruise! I have been on a few and have not had a gluten exposure.
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That Reticulin test is pretty darn old and has been long replaced with the TTG, DGP and EMA. Are you outside of the US? Your doctor should probably test you for an IgA deficiency. So, you can not rule out celiac disease yet. Here is a government site discussing that Reticulin is obsolete: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC362341...
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@Fenrir—nice to hear from you again!
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Drop the oats for six months and that includes even certified gluten-free oats. Some celiacs react.
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Good to know. Even though I have osteoporosis as a result of having undiagnosed celiac disease, I do not take calcium supplements. Recent research finds that it can cause heart and kidney issues. My mantra? Get your calcium from food!
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i have celiac right?
cyclinglady replied to joe3530's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think you are doing the right thing. Give it another month or even wait a full six months (since your symptoms improved and then came back) before checking your antibodies again. Why? The gluten-free diet has a steep learning curve. Unless you were diagnosed at a major celiac center, chances are you got the “you have celiac disease. Go gluten free a... -
Celiac and type 1 diabetes
cyclinglady replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Man, your doctor is way out of touch with diabetes! You can develop type 1 diabetes at anytime in your life. It is called LADA (latent autoimmune diabetes in adults). Just like you can develop celiac disease at anytime in your life. Type 1 diabetes, thyroid and celiac disease are commonly linked, but you can develop lupus, rheumatoid arthritis... -
Because you probably have celiac disease, it would be prudent to have your thyroid checked for antibodies. Once you get one Autoimmune, you can develop more. Your TSH is just fine. I would be happy with at result. And it is hard to say if your thyroid is the cause for any of your symptoms because autoimmune disorders have symptoms that overlap. Another...
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Advice please...
cyclinglady replied to Johna1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Changes to anyone’s diet can have an impact. What exactly are you consuming? Often some newly diagnosed celiacs will increase the vegetable intake. Others will find that have developed a few food intolerances to foods they may have eaten before or new foods. For example, you could be reacting to a new grain or additive. It sounds like you had a lot o... -
If your pediatrician recommended it, it should be safe for you as long as it does not contain gluten. If you would like, confirm with your GI. I am sorry. I just gave you my personal opinion and I have more than one autoimmune condition and I am trying to avoid more.
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Increased fasting numbers even in a low carb diet is common for a type 2 diabetic who is insulin resistant. It is called Dawn Phenomenon. If your post parandial numbers are over 200 or lower than 70 than you should consult a doctor to determine what kind of diabetic you might be. You could be prediabetic eventually becoming insulin resistant and possibly...
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Wow! Imhave never used this. I did read the warning specifically about side effects and autoimmune disorders. I would pass just based on that. https://www.webmd.com/vitamins/ai/ingredientmono-434/elderberry
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Remember, the tests for celiac disease (antibodies) were designed to help diagnose celiac disease and not for dietary adherence. Unfortunately, they are the only “tool in the toolbox” that is non-evasive. Doctors typically look for a downward trend. It can take over a year for antibodies to recover. They might even remain elevated even when you...
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Karen is spot on! You can have both celiac disease and an H. Pylori infection in your stomach. H. pylori is very common world-wide. In the old days, doctors though stress caused ulcers, but in the 80’s a doctor discover that H.Pylori was a major contributor to Chronic Gastritis. People with celiac disease can have some inflammation in the stomach a...
