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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Of course I can not diagnose you over the Internet because I am not wearing a white coat. However, I do have celiac disease, autoimmune thyroiditis and more recently, autoimmune Gastritis (which seems to like to hang with Hashimoto’s). Your elevated thyroid antibodies indicate that you have autoimmune disease. Your doctor should see how your thyroid i...
  2. cyclinglady
    Wait a minute. When I was diagnosed, I had lymphocytes and patches of blunted or non-existent villi. My repeat endoscopy revealed a healed small intestine. No lymphocytes were noted. Lots of things can cause lymphocytes in the gut: https://www.verywellhealth.com/marsh-stage-of-celiac-disease-562711 Non-responsive celiac disease is just...
  3. cyclinglady
    Mix it in with the grits (like Mac and Cheese). You can add more cheddar cheese as garnish if you like when you serve it. Yum!
  4. cyclinglady
    Why are you taking iodine? I have had Hashimoto’s Thyroiditis for 20 years and never took iodine. If you are iodine deficient, you can develop a goiter and become hypothyroid. But you said you had autoimmune thyroiditis. No amount of iodine is going to stop your body from attacking your thyroid in my non-medical opinion. Usually, thyroid hormone r...
  5. cyclinglady
    Yikes! Kindra, I think you did not scroll down to the bottom of the Taco Bell page: “Taco Bell® does not claim “gluten-free” for any of its food. Some Taco Bell® items are made without gluten containing ingredients, but are prepared in common kitchen areas, including common fryer oil, risking gluten exposure. Taco Bell® does not recommend products for cust...
  6. cyclinglady
    Glad you are feeling better!
  7. cyclinglady
    As far as gluten is concerned, I have never seen a cleaning product that contained gluten. You can usually google Material Safety Data sheets even on a simple item like kitchen cleanser where manufacturers are not required to list their secret ingredients on the label. However, choosing safer chemicals might be a prudent idea for long-term health. Just...
  8. cyclinglady
    I use a little hard-sided cooler. The bags are just good for a few hours and can be discreetly brought in to a restaurant. My hubby often goes to lunch and just buys a drink. Since he brings in so many people, his favorite restaurant let’s him eat his gluten free lunch at the table. If it is really hot, I pack a small cooler within a larger cooler, ...
  9. cyclinglady
    Oh what about the mushrooms? I can not eat them. This is pretty interesting: https://www.geneticlifehacks.com/too-much-of-a-good-thing-mushrooms-intolerance-and-your-genes/
  10. cyclinglady
    Oh no! Do not throw everything away. That turkey sausage might be the culprit. It was recalled for salmonella, I think back in December. It could be contaminated again or you might have some older products. https://www.webmd.com/food-recipes/food-poisoning/news/20181224/jennie-o-ground-turkey-recall-expands
  11. cyclinglady
    Yikes! I hope parents who purchase this cereal read this article. I have bought this cereal for my own kid!
  12. cyclinglady
    Laura, If you have been on a gluten diet for many months and your doctor just asked you to eat even more gluten, do not stop. I know you are itching. Squirmingitch knows the DH rash all too well. Heed her advice! Read through the DH section of the forum. When you see your doctor next week, ask for the celiac blood tests again. You can develop celiac...
  13. cyclinglady
    Hi! You have been given excellent advice. I just want to chime in and encourage you to keep moving forward. It takes time to heal and to identify other food intolerances that may resolve with healing. Hang in there!
  14. cyclinglady
    Celiac disease, an autoimmune (AI) disorder, can cause a variety of rashes. The most common and directly-related to celiac disease is Dermatitis Herpetiformis. DH is celiac disease as it is triggered by gluten. The only way to know for sure is to get a skin biopsy by a dermatologist who knows how to biopsy in the correct area. https://celiac.org...
  15. cyclinglady
    I think you are right. Your TTG could have been way more elevated at the time of your diagnosis. My own lab only measures anything less than 100. The TTG can take a long time to come down (a year or longer). Why? Most often is is due to gluten exposures or it can be due to other AI issues. The learning curve for the diet can be steep. In my opinion...
  16. cyclinglady
    Please get your son to the doctor and ask for a celiac disease screening. There is no other way to know if he has celiac disease without testing. Celiac Disease causes damage in the small intestine, but can be systemic. It is also like a Chameleon with symptoms changing. When I was first diagnosed, I had no GI symptoms, but I did have allergies which...
  17. cyclinglady
    Gluten did not destroy his pancreas. Both Type 1 Diabetes and celiac disease are autoimmune diseases. The immune system, designed to attack bad bacteria and viral infections, instead attacks the body. Learn more (and share with your doctor): https://www.verywellhealth.com/celiac-disease-and-diabetes-563117 https://celiac.org/about-celiac-disease...
  18. cyclinglady
    I am sorry you were unable to post your photos, but most DH members will tell you that a visual is really not effective in diagnosing DH. Make sure you take information on exactly how to biopsy (next to a lesion) as shown here: https://celiac.org/about-celiac-disease/related-conditions/dermatitis-herpetiformis/ Take the time to browse through the...
  19. cyclinglady
    Just remember that a label reading “gluten free” means it has been tested or complies with less than 20 ppm in the US. Are you more sensitive? If you do try it, please let us know the outcome. You may help others with DH. Consider asking the Gluten Free Watchdog tomtest this product. It might be well below 5 ppm. That said, do you think Ind...
  20. cyclinglady
    Many things can cause villi damage besides celiac disease: https://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ Many celiacs are actually seronegative. Either you were not diet compliant or something else was causing damage. Non-compliance is common per this study. Gluten can be hidden...
  21. cyclinglady
    I would not worry. Results from the blood tests do not always match the intestinal damage. My initial test was considered “mildly positive” ny my GI, yet I had some pretty severe damage. I did not even have a positive (ever, in in follow up testing) on the TTG or EMA — just the DGP. Rest assured there are plenty of people on this forum who have had h...
  22. cyclinglady
    We share hand towels and soap, but our gluten eating teen makes it a habit to wash her hands when she gets home. We all do. I used to change my hand towels more frequently when she was little. Kids tend to be sloppy about cleaning. It is one reason why we made the house gluten free when she started to want to help me in the kitchen. Where did my helper...
  23. cyclinglady
    We never share toothpaste. We each have our own. We keep all our toiletries in bins in a cupboard. Pull our your personal bin and you have everything you should need to get you ready.
  24. cyclinglady
    Well said!
  25. cyclinglady
    Pamela’s. That is because it does not contain Xanthan Gum which does not agree with me.
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