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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    There is no cure for celiac disease which is an autoimmune disorder. The only cure for celiac disease and Dermatitis Herpetiformis (skin form) is a strict gluten free diet. Although not immediately life-threatening, celiac can kill. Children used to die from it due to malnutrition back before WWI. It is possible to live carefully in a shared...
  2. cyclinglady
    Your doctor’s group/provider and or insurance might not allow primary care physicians (General practitioners) to order anything but the TTG for screening. It is a cost reduction measurement. The TTG does catch most celiacs, but not all. In that case, you will have to wait to see the GI who most likely can order the rest of the celiac panel unless you c...
  3. cyclinglady
    Based on what the above poster reported from Wrigley, you have to read the ingredients list on the tin. If you want, you can list it here (or take a photo) and I’ll help you. I previously avoided Altoids, but instead use Wintergreen Vermints which are certified gluten-free and come in a tin as well.
  4. cyclinglady
    Best to contact the cigarette manufacturer directly. Here is an old posting that discusses it:
  5. cyclinglady
    No, the article states that Olmesarton, a blood pressure medication, can cause villi damage. The kind of damage common to celiacs. (As a result patients were not getting better on the gluten-free diet because celiac disease was not the cause). For those patients without a positive on the celiac panel, but a positive on their biopsies, doctor’s might l...
  6. cyclinglady
    You are responding to a really old blog, so the data is doubtful. There is a link between TB and celiac disease. Both can cause villi intestinal damage. So can a milk intolerance or Crohn’s Disease. https://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ This current study indicates t...
  7. cyclinglady
    If KarenG drinks orange juice it is safe. I trust her and Jane Anderson who has Dermatitis Herpetiformis. If Jane makes a mistake, it shows up on her skin. She says 100% juice is safe. Those blends (like 10% juice) could be questionable. Read her comments here. https://www.verywellfit.com/gluten-free-juice-562348
  8. cyclinglady
    Ooooh....orange peel in hot tea. I am going to brew some now!
  9. cyclinglady
    I agree with Karen! If you call, the company is not going to say it is gluten free unless they test it as required by the FDA when they label a product “Gluten Free” and in this case, it is not labeled gluten free. Milk is not labeled gluten free, but it is. If it had gluten in it, it would have to be included in the ingredients list found on the...
  10. cyclinglady
    Well, you might have celiac disease, but you could also have Crohn’s Disease (which is often diagnosed when you are young.....) or Ulcerative Colitis. Honestly, it could be anything. Going gluten free can help many other illnesses often because people tend to eat a bit better. Basing everything on symptoms is hard as so many illnesses have symptoms that o...
  11. cyclinglady
    Yes, but I am not sure it is directly related to celiac disease. I have Hashimoto’s which in the past would swing wildly going from hypo to hyper. So crazy my doctor could not keep up. This all calmed down once my celiac disease was diagnosed. However a gluten exposure for me activates my other autoimmune issues. My eyes can definitely be affected. ...
  12. cyclinglady
    Wow! While I have worried about hospitalization (especially long-term care), I really never seriously considered jail. But you never know! My husband had a hospitalization this year. But without my pestering and my being a celiac disease patient, I am not sure how well they would have addressed the issue if he had been alone without a bedside advocate...
  13. cyclinglady
    Thanks for the additional information. First, avoid all oats for now. Some celiac even react to those. Just a small percentage, but you migh be one of them. I do not consume oats personally. I buy them for my hubby, but I make sure they are purity oats and organic since oats have recently been singled out as having way too many pesticides in them...
  14. cyclinglady
    Welcome! I think you need to seriously do some research about celiac disease. First, it is an autoimmune disorder, like Lupus, except the trigger is known — gluten. When a celiac ingests gluten it triggers an autoimmune reaction that can last for days, weeks or months. The reaction damages the small intestine. Some people have comparable symptoms, ...
  15. cyclinglady
    Unfortunately, about 30% or more of the population has the celiac genes. Gene testing is typically used to rule out celiac disease. Testing for antibodies and intestinal biopsies is required if you want a formal diagnosis. What is concerning is that you said you were strictly gluten free and yet you are still unwell. That makes me think you have...
  16. cyclinglady
    Have you considered the Fasano diet for a few months? https://res.mdpi.com/nutrients/nutrients-09-01129/article_deploy/nutrients-09-01129.pdf?filename=&attachment=1 You might still be getting wheat, barley and rye (gluten in these grains cause a celiac or NCGS to react) into your diet. Do you consume oats? Do you ever eat out? Do you eat...
  17. cyclinglady
    It is possible: https://www.9news.com/article/news/local/features/girl-pens-book-about-her-battle-with-celiac-disease/73-576605565 But it is also possible that you have something else. See your doctor and get a repeat celiac blood panel. That is a good place to start.
  18. cyclinglady
    Well, the customer rep was right about gluten. For example, there is corn gluten. Only celiacs and NCGS patients do not react to it (allergies and intolerances aside), but to only the glutenin and gliadin found in wheat, rye and barley (and sometimes oats due to growing and distribution methods or bad luck....your body might think it is like gliadin!) ...
  19. cyclinglady
    So, you did well on the gluten-free diet, went off the diet and now your symptoms are back? Go see or have your doctor contact Dr. Crowe. I once had a nice discussion with her in an elevator heading to a celiac conference. She is good! Was Inflammatory Bowel Disease ruled out? My niece was finally diagnosed with Crohn’s with a pill camera. ...
  20. cyclinglady
    @kareng Still...it is a little disconcerting. The Gluten Free Watchdog did test them and they were fine.
  21. cyclinglady
    I would not worry but..... Ennis was right about new “green” disposable flatware and dishes. Now they are using wheat. I would be interested to see if anyone actually tests this stuff.
  22. cyclinglady
    I am sorry that you received such poor advice. About 35% of the population has the genes that could develop into celiac disease. Only a few actually go on to develop celiac disease though. The gene test helps rule out celiac disease, but not to diagnose it (as always there are a few exceptions). Celiac disease testing requires you to be on a gluten...
  23. cyclinglady
    Yes! I had a normal biopsy on a repeat biopsy endoscopy, but it was done five years later (never had one done earlier). I had it done because a year earlier, I had a tooth infection, a cold, the flu, and a gluten exposure within a month of each other. I had three courses of antibiotics and have no idea how I was exposed to gluten (maybe that antibiotic...
  24. cyclinglady
    I want to share that my hubby had been gluten free 12 years before my diagnosis. He went gluten free based on the poor advice of my allergist and his GP. He was not tested for celiac disease which was not really in the “radar” of most US physicians 20 years ago. He struggled the first year, but he realized that gluten did made him sick. He has been glu...
  25. cyclinglady
    So glad that you received your diagnosis. Now you can focus on healing! Remember, it takes time. ?
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