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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    My packet shows it is gluten free. You just add sour cream. I can not eat it (garlic intolerance) but hubby loves it. He has been gluten-free for 18 years!
  2. cyclinglady
    I am glad you are feeling better. It seems like you made a wise decision to ease back slowly into taking the folic acid.
  3. cyclinglady
    Granted, I rarely post links to websites that sell you anything. I was just trying to convey that food may have the ability to heal some autoimmune issues. This site worked with Scripps on this study. I am not supporting anything else this website offers. https://autoimmunewellness.com/aip-medical-study-results/ Obviously more studies are...
  4. cyclinglady
    Consider the Autoimmune Paleo diet for a few weeks (it is gluten free). This diet has been around, but researchers wanted to see if it really worked. So, Scripps affiliated with the University of San Diego (highly respected), conducted a small study with IBD patients. In just weeks, they achieved about a 78% remission. That is amazing. This is just...
  5. cyclinglady
    Maybe there is not a member who was recently diagnosed or is struggling with Sjogrens,but I used the search box and found over 300 past responses to Sjogrens. You might find it useful. Good luck!
  6. cyclinglady
    Hopefully, he does not develop celiac disease. Testing for antibodies in children under the age of three is tricky. They are still developing their immune system. https://www.beyondceliac.org/living-with-celiac-disease/info-for-parents/testing/ https://www.cureceliacdisease.org/faq/at-what-age-should-children-get-tested-for-celiac-disease/ Eczema...
  7. cyclinglady
    Great! An improved ferritin level was my first biomarker that indicated I was healing.
  8. cyclinglady
    Welcome! Unfortunately, we are not doctors, just people who have celiac disease or gluten issues. If you suspect celiac disease or need a diagnosis, you should consult with your doctor. Know that celiac disease testing requires you to be consuming gluten daily for 8 to 12 weeks prior to a blood draw. Should you pursue this? Only you can make that...
  9. cyclinglady
    Read this article. In it, Dr. Fasano, one of the world’s leading Pediatric Gastroenterologists who (his team) discovered Zonulin and is a leading celiac disease expert, does NOT recommend probiotics. The science is not there to support it. While it could be beneficial for those with colon issues, it probably is not for those with small intestinal issues (...
  10. cyclinglady
    Were you consuming gluten daily 2 to 4 weeks prior to your endoscopy? Did you get copies of the biopsy results? Your GI should have taken 4 to 8 samples from various locations. Even then, it can be easy to miss patches of damage as the small intestine wall surface is larger than a tennis court. The TTG can be elevated due to other autoimmune...
  11. cyclinglady
    I am sorry that you are in pain. Tylenol can cause GI upset, but then so can NSAIDs like ibuprofen. See if you can tolerate not taking Tylenol for a few days or weeks. You can ask your doctor for a safer substitute. Probiotics? Did your doctor recommend them? Think about it. Probiotics are bacteria. Bacteria does not belong in the small intestine...
  12. cyclinglady
    Hopefully someone will respond to your question. Maybe your Glass was dirty. When bars are busy, glasses are not run through the dishwasher. They are dunked in a anti-bacterial solution. Possibly wiped with a contaminated bar towel. Maybe your glass was compromised? Just a thought. When the bar is busy, I ask for a paper or plastic cup because...
  13. cyclinglady
    But the AIP diet might help. It was designed to help decrease inflammation and identify foods that may be triggering autoimmune symptoms. It is restrictive at first, but then can be broadened. That small study at Scripps is encouraging. A larger study is needed, but it takes money. No one wants to fund a study that is not going to make them millions...
  14. cyclinglady
    If you want to get tested for celiac disease, you must be consuming gluten or ALL celiac testing will be invalid. You need to be on gluten for about 6 to 12 weeks prior to a blood draw. It is only 2 to 4 weeks prior to an endoscopy, but you still need to have the blood tests as villi damage can be attributed to many things like Crohn’s. http://...
  15. cyclinglady
    Excellent advice, but the Vvicin02 stated in another post that his granola is oat free.
  16. cyclinglady
    @Jpate Thank you for sharing. There is so much that is not known about refractory celiac disease. Your posts can help many. I sincerely wish you well!
  17. cyclinglady
    Bethany I do not have refractory celiac disease, but researched it heavily when I experienced symptoms that would not resolve after a suspected gluten exposure. I resisted a repeat endoscopy and chose to follow the Fasano diet first which did not work for me. Repeat biopsies revealed Chronic Autoimmune Gastritis and a healed small intestine. During...
  18. cyclinglady
    Retesting for antibodies can be helpful. My GI uses the antibodies test to help determine is my celiac disease is active, but they are not perfect. If you really want to know, the best way is to repeat the endoscopy to obtain small intestinal biopsies. Looks like you are doing that in February. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC52950...
  19. cyclinglady
    I am sorry you are still ill. That last endoscopy. Did it reveal a healed small intestine? If yes, then Celiac disease is probably not the culprit for your lingering issues. I suffered with gastric issues, hives and all kinds of issues from a gluten exposure two years ago. I even went on the Fasano gluten-free diet (strict) for a few months without...
  20. cyclinglady
    I wanted to add that the antibodies tests for celiac disease were designed to help diagnose and NOT monitor celiac disease. Why do doctors reorder them to check for dietary compliance and possible healing? Because they are the only non-evasive tool in the tool box. You know....better than nothing. The TTG can remain elevated slightly for other autoimmune...
  21. cyclinglady
    It could be gas. All that fruit. If it is really bothering you, consider a FODMAP diet for a few weeks. Keep a food journal to help identify foods that trigger gas. https://www.verywellhealth.com/foods-on-the-low-fodmap-diet-1944679
  22. cyclinglady
    It is hard to say. Many reports indicate that TTG can take well over a year to come down, so you might need more time. The fact it has come down a lot tells you that you are doing a good job avoiding gluten. My antibodies (DGP IgA) were very elevated two years ago due to a gluten exposure (got hives, small intestinal issues, etc.). Almost a year later...
  23. cyclinglady
    Oooh, I like Icelandgirl’s response. Consider a methylated form of folic acid and increase natural food sources (e.g. leafy greens). When I was diagnosed with celiac disease, my folic acid and B-12 levels were very elevated. I did not take supplements (my new doctor thought I was taking copious amounts of supplements), but I was consuming products l...
  24. cyclinglady
    It could be. It could also be eczema. Celiacs can have many kinds of rashes besides DH. The only way to know for sure is a skin biopsy. It has to be done correctly. https://www.verywellhealth.com/dermatitis-herpetiformis-diagnosis-skin-biopsy-used-562624 Were you able to get an intestinal biopsy? I recall you being in a gluten challenge...
  25. cyclinglady
    Unfortunately, nothing. I am considering following the AIP diet. Just hate to give up dairy, when it does not seemingly bother me. I am already grain free and low carb to keep my blood sugar in check (diabetes). But I can vouch for food healing. Once I healed from celiac disease initially, my thyroid diagnosed 20 years ago) was no longer enlarged and...
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