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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    This is the time to talk to your butcher. Yes, even in the big grocery stores, you can actually talk to the store butchers. For example, I shop for my meat at Costco or at an old-fashioned butcher shop. My butchers there do not use meat glue. They also do not “stuff” porkchops with gluten either. However, they can not vouch for meat that is processed in ...
  2. cyclinglady
    I am going to provide an update. I got glutened two years ago While dealing with a tooth infection (antibiotics), a cold and then the flu. My DGP IgA was very elevated (off the charts). Six months later, my DGP IgA was still elevated. My GI wanted to do a repeat endoscopy, but I refused. Instead I did the Fasano diet, but I was still having symptoms...
  3. cyclinglady
    I had anemia when my celiac disease was caught. I went for a cancer screening colonoscopy (yep, I am over 50) when the GI mentioned celiac disease as the source to my anemia woes. I did not believe him. I had no gut issues at the time and I had been diagnosed with a genetic anemia. But he was right. I had one positive on the complete celiac blood panel...
  4. cyclinglady
    I test positive only to the DGP IgA (had the celiac antibodies tests many times). Never had a positive on any of the other screening tests, yet my biopsies revealed moderate to severe patches of villi damage. https://celiacdiseasecenter.columbia.edu/sites/default/files/Diagnostic-Yield-of-Isolated-Deamidated-Gliadin-Peptide-Antibody-Elevation-for...
  5. cyclinglady
    With all your allergies, I would be hard pressed to recommend anything. There are plenty of certified gluten free foods in most supermarkets, but it must fit your specific allergy requirements. Did you get any help (treatment or advice) from your allergist? Can you get a referral to a dietitian? I carry a cooler just about everywhere I go. I just...
  6. cyclinglady
    I think you should push to see an allergist. Who diagnosed you with a latex allergy? This does not sound like just a celiac issue though that could be compounding the problem. Starving? Eat more of your safe foods. Portable foods? Get a small cooler.
  7. cyclinglady
    That is okay! ?. I still get stomach pain and GERD even though my celiac disease is in remission. My last biopsy of gastritic tissue revealed autoimmune Gastritis which flares for no obvious reason. Symptoms come and go. Thought that might have been overlooked with Deezer. A HIDA scan for gallbladder issues could be useful. I had a non-functioning GB...
  8. cyclinglady
    Did they take biopsies of the stomach besides the duodenum even though your stomach looked fine?
  9. cyclinglady
    Sounds like a good approach. Eating to your meter is what I do too. It helps identify foods that can spike your blood sugar which can vary from person to person (there is no one perfect diet). Keep up the good work. Lowering your carb intake is much safer than surgery in my non- medical opinion.
  10. cyclinglady
    Posterboy, What exactly do you eat? I am surprised that anyone would recommend gastric bypass surgery for a Pre-diabetic.
  11. cyclinglady
    Yes, but...the Baked Bean cans used to actually say gluten free. I have a case in my pantry set to expire in 2020. The cans no longer say gluten free on the label (I did not even notice). The ingredients list does not reveal gluten. I bet they decided against testing for gluten (to save money and hassle). This is not because of the FDA requirement...
  12. cyclinglady
    Yes. The anti-gliadin test was an older test that has been discontinued in the US. The newer deamidated gliadin peptide (DGP) is now being used. However, some labs just call it anti-gliadin. It is confusing! I suppose they did not want to type more words! Chances are the newer test was given. Even if the older test was given, it is still a valid...
  13. cyclinglady
    Lab ranges do vary, but if your DGP IgA was in fact positive, you should see a Gastroenterologist to obtain biopsies via endoscopy to confirm a celiac disease diagnosis. I can tell you that I personally only had a positive DG IgA and the rest of the celiac blood tests were negative, yet my biopsies revealed severe intestinal damage.
  14. cyclinglady
    This a pretty old posting and labeling laws have changed. Bush’s beans used to be labeled gluten free, but not anymore. Although the beans might not contain gluten ingredients, the company probably does not test to insure it is under 20 ppm. I have yet to find canned beans that are labeled gluten free. I have see chili labeled gluten-free but that falls u...
  15. cyclinglady
    Normally, celiac disease is diagnosed by a Gastroenterologist. That is because while the tests that measure antibodies used to help determine celiac disease could be false or may be elevated in other diseases like Crohn’s. So, a Gastroenterologist will actually take a look inside your small intestine and take tissue samples for a pathologist to review. ...
  16. cyclinglady
    Posterboy. Be leary of the Gum. It can cause intestinal upset in some. Probiotics and the gut biome are still being researched and are not well understood. Even Dr. Fasano, a leading celiac expert admits this every time he lectures. Xylitol which sweetens the Gum works because our gut bacteria can not digest this stuff. We can not digest this...
  17. cyclinglady
    If you can tough it out, go longer than two weeks as celiac centers differ between 2 and 4 weeks for a challenge. Select all your favorite gluten-containing old foods. No sense eating junk! Eat at least 1 to 2 slices of bread a day (or equivalent). You can stop eating gluten once you get the test results (in case a mistake is made). You should be able...
  18. cyclinglady
    I think that getting lymphoma is what is attributed to celiac disease. The risk is higher than the general population for untreated celiac disease. https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--12545/ We all know that celiac disease can impact many organ systems, so there is always a risk of other cancers. https...
  19. cyclinglady
    What about a spray bottle of diluted white vinegar and paper towels? Cost effective, has some antibacterial properties, and is safe! The teacher or the assigned room monitor can spray each desk. https://www.bhg.com.au/does-vinegar-really-kill-germs I can not use those antibacterial commercial wipes as they eat up my hands. So, I must wash my...
  20. cyclinglady
    For some reason I could not edit my post. I wanted to include a link about follow up testing: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ I also wanted to let you know my bone pain was not severe. Your doctor might want to screen you for rheumatoid arthritis. I am not sure what you mean by being able to see...
  21. cyclinglady
    No, you are not too young to get osteoporosis. It is common in those with celiac disease. However, most young people can recover that bone loss on a gluten free diet. If you have been gluten free for at least 3 months, it might be time to get your antibodies re-checked to help determine if you are dietary compliant. Your doctor can determine if you should...
  22. cyclinglady
    Congratulations on your pregnancy! I sure hope you get your bread soon! ? I recall consuming Ritz crackers while pregnant. Afterwards, I could never eat one again because I associated it with nausea. Now, I can not eat a Ritz cracker because of the gluten. ? I think “lucky” has a different perspective from Ennis who has both celiac disease and Ulc...
  23. cyclinglady
    Wow! A new state. I will offer you some non-celiac advice. Join a group. Join Girl Scouts, the band, colorguard, ROTC, theatre, a sport, or anything that will help you find new friends. My daughter who is 17 is active in water polo and Band. Like you, she had to make new friends. She and her new friends formed a “Lunch Bunch” group as Freshman. ...
  24. cyclinglady
    Oats. Be safe. Go back to the old celiac disease advice of not including oats for six months. Once you see improvement, you can test them. Some celiacs do not tolerate oats, even certified gluten-free/purity grown oats.
  25. cyclinglady
    @rbar70— have you ever taken a fluoroquinolone (e.g. CIPRO) antibiotic? This drug now has a black box warning that warns about snapping tendons, neuropathies, aneurysms, blood sugar drops etc. https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm612995.htm I had them after gallbladder surgery a decade ago. I got a buzzing in my foot (...
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