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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Celiac disease is like a chameleon. Symptoms can change. It is one reason getting a diagnosis can be difficult. Chances are your gut has healed. But if you continue to consume gluten you will start redamaging your small intestine and possibly develop another autoimmune disorder. Celiac disease may go into remission, but there is no cure. Maybe...
  2. cyclinglady
    Welcome! You can still cook Thanksgiving meals for your family! I do. And my gluten free family members and friends love it. I agree, just prepare your meal as usual for this year. Next year, consider making most of your dishes or all of them for the family. Bread is your toughest challenge, but it can be done well enough to please gluten...
  3. cyclinglady
    Thickening of the colon wall can be an indication of Inflammatory Bowel Disease (IBD). It is most likely the reason your GI ordered an endoscopy and colonoscopy after seeing the CT scan results. But keep in mind, you can have both celiac disease and IBD.
  4. cyclinglady
    Not everyone has to be obese to have Sleep Apnea. Just like not all undiagnosed celiacs are thin. http://www.washingtonpost.com/wp-dyn/content/article/2009/06/12/AR2009061203267.html
  5. cyclinglady
    A big chunk of probiotics were discovered to have gluten contamination. Remember, supplements are largely unregulated in the US. https://www.sciencedaily.com/releases/2015/05/150515083232.htm https://www.thepatientceliac.com/tag/celiac-disease-and-probiotics/ Just something to consider.
  6. cyclinglady
    You had a very elevated TTG (over 100) but a negative biopsy. I think your doctor recommended going gluten free, correct? Please consider the diet. It may provide you with the reassurance that gluten is making you ill and odds are you have celiac disease. The problem is it takes time to learn the diet and heal. Most forum members take a year to get well...
  7. cyclinglady
    You can ask your doctor or you can search online for a lab. However, I do not think you can order medical tests as a patient on your own in the UK.
  8. cyclinglady
    To be clear, I know very little about the genes associated with celiac disease. My diagnosis was based on antibody testing and biopsies, so no reason for me to study it. Good luck on your research and please share!
  9. cyclinglady
    Hi! I am confident that your lab results are accurate. What is not clear is that there might be are some other small gene pools that have yet to be identified that can be linked to celiac disease or maybe Non-Celiac Gluten Sensitivities (which is not well known or studied, but most doctors suspect it is very real). Just 20 years ago celiac...
  10. cyclinglady
    It is good that you are getting a colonoscopy and and endoscopy. You can ask your doctor if you had the complete celiac panel. Often they just order the screening TTG which does not catch all celiacs. If they find villi damage, insist on the entire celiac panel. If celiac disease is firmly ruled out, make sure they also rule out Inflammatory Bowel...
  11. cyclinglady
    In the US, you can ask your doctor and hopefully, insurance will cover it. This article explains US options: https://www.verywellhealth.com/genetic-testing-celiac-disease-562709
  12. cyclinglady
    @austin1 I am sorry that you are struggling with celiac disease while at school. Ennis has made some great suggestions (food diary, digestive enzymes, etc.) However, consider just sticking to the gluten-free and FODMAPS diets for now. Keto is pretty extreme and is often used for weight loss or diabetes management (and as a diabetic, I am low...
  13. cyclinglady
    She has a very elevated TTG that is indicative of celiac disease and should be confirmed by obtaining iintestinal biopsies. Not positive in the EMA? Me too. I did not even have a positive on the TTG. I tested positive on the DGP IgA. My biopsies revealed some moderate to severe patches of damage. Keep her on gluten until the endoscopy. THIS IS...
  14. cyclinglady
    What a great question! I used a gluten free (no gluten ingredients) lipstick/gloss/moisturizer prior to my diagnosis for my gluten-free hubby. I also bought gluten-free hand lotion that we could all use. It just made it easier (weird that I ended up having to be gluten free). Odds of getting glutened by kissing? Probably low, but why take chances...
  15. cyclinglady
    I am in the US and assume that you are not based on your description of items like biscuits which we call cookies. Therefore, I can not say if the items are gluten free or not. Cross contamination in the manufacturing process is a concern. However, most celiacs on this forum will advise you to avoid processed foods, even gluten free ones, and to not...
  16. cyclinglady
    How long have you been gluten free? This product appears to be gluten free (I am in the US). But if you are new to the diet and are celiac, the fiber might be too harsh for your system until you have healed. Consider sticking to non-processed foods like eating a simple bowl of rice, a stew or soup. Yes, you can eat soup for breakfast! Do not eat...
  17. cyclinglady
    Here is reliable information about this subject: https://www.glutenfreedietitian.com/vitamin-e-from-wheat-germ-oil/ It is normally highly refined in the US leaving basically no proteins behind to cause allergic reactions and it is normally derived from soy. It is safe if you are not consuming it. I personally find it in germie gels. Although...
  18. cyclinglady
    Okay, his thyroid is normal. What does that mean? You can have normal labs, but have elevated thyroid antibodies long before they actually do enough damage to the thyroid to reflect on tests. So, keep this in mind. Occasionally (in the future), ask a doctor to actually feel his thyroid or test for antibodies. It is possible that he is still causing...
  19. cyclinglady
    Forgot to add....are you sure those nuts were gluten free (I know dumb question)? What about increasing your iodine in your diet with all those nuts (if salted)? Too much iodine can trigger DH. https://celiac.org/about-the-foundation/featured-news/2015/10/dermatitis-herpetiformis-and-iodine-exposure/
  20. cyclinglady
    Notme! Are you serious? Did you have a heart attack?
  21. cyclinglady
    If you have Dermatitis Herpetaformis (DH/Celiac Rash), know that antibodies can lay dormant in your skin, erupting at odd times. Trying to determine a gluten exposure can drive you crazy. Read the DH section. There are lots of tips. I think you will find that those celiacs who have DH are super sensitive and must take extra precautions. This would include...
  22. cyclinglady
    Moving around slightly within a lab range is probably no cause for concern. Keep in mind that the celiac disease blood tests were developed to help diagnose celiac disease and not really monitor dietary adherence. However, it is the only non-evasive tool in the “toolbox”, so doctors use it. Let me tell you that my DGP IgA was very high after a g...
  23. cyclinglady
    Ugh! I am so sorry! I just cracked a tooth (vertical) on either a macadamia nut or mint chip ice cream. I hope the crown does the trick or the tooth is lost. I did the same years ago with a raw carrot. No hard stuff for me! I hope you can get it fixed or at least protect it for a while.
  24. cyclinglady
    I take no vitamins. None. I do eat a varied diet and according to my last repeat biopsy, I have healed from celiac disease. If you eat a poor junk-filled diet, are getting glutened frequently, or have another GI issue (e.g. Crohn’s or SIBO), vitamins might be a good idea. Your doctor can check you for deficiencies. I did take an iron supplement a...
  25. cyclinglady
    It sounds like you still might be getting gluten into your diet. My suggestion is to stop eating out until you are sure you are well. Every time you eat out, it is like playing Russian Roulette. The exception is a 100% dedicated gluten free restaurant. Even then, you need to take into consideration any food intolerances you may have (like I can...
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