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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am sorry, but I did not mean to say that she was getting gluten into her diet via food. I meant that by testing her antibodies, you could confirm if she was having a gluten reaction. Then that would help you determine if the medication might be the culprit if she has not made any dietary changes. One of the side effects reported from this drug...
  2. cyclinglady
    Maybe it is not actually celiac disease related? https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061 I hope you can figure it out.
  3. cyclinglady
    It looks to be gluten free. She could be reacting to any of the ingredients. Notify the prescribing doctor. She may need a different medication. Also, when was the last time she had follow-up celiac disease testing? This would help let you know if gluten was actually in her diet.
  4. cyclinglady
    https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/ Yes....but these are found in the small intestine. A high white blood cell count measured in blood tests can 8ndicate infection, etc.
  5. cyclinglady
    Welcome to the “odd duck” club where you do not fit neatly in a box or on the bell curve. Rare, unusual, and unique are words that best describe some of us. https://www.coeliac.org.uk/coeliac-disease/about-coeliac-disease-and-dermatitis-herpetiformis/genetics/
  6. cyclinglady
    It is great that we have the opportunity to agree or disagree on treatments based on our personal experiences and our own research. Readers can determine (with their doctor’s input) what the best treatment for them. ? Here are a few current articles about vitamin D. Surprisingly, where you live no no longer to impact your ability to make vitamin D...
  7. cyclinglady
    These are the tests. http://www.cureceliacdisease.org/screening/ Insist on the entire panel. Forget about the gene testing because most than 30% of the population carries the celiac genes, but only a few develop it. It is used to rule out celiac disease. https://celiac.org/about-celiac-disease/related-conditions/dermatitis-herpetiformis...
  8. cyclinglady
    Get to another GI who is celiac-savvy. Your numbers are going up. A month is not long enough for any celiac to heal. All leading celiac centers recommend three to six months. Why? Because the learning curve for the diet is steep. It is HARD to make correct dietary changes. You are probably not really gluten free at this point. Get an endoscopy as...
  9. cyclinglady
    Hi! Five weeks into the diet is way to early to heal. The learning curve for the diet is very steep. Dietary mistakes are made in the beginning. Most members take months or a year or two to really feel better, most often due to other co-existing conditions impacted by celiac disease which goes way beyond the GI tract. Depression, anxiety...
  10. cyclinglady
    This is just my opinion and I do NOT consume oats for these reasons: 1) the whole gluten free mechanical vs. dedicated field grown (purity oats) issue that is not resolved. https://www.glutenfreewatchdog.org/news/why-mechanically-and-optically-sorted-gluten-free-oats-continue-to-keep-me-up-at-night/ 2) new evidence of all children being exposed...
  11. cyclinglady
    I am going to add my own two cents. I take no vitamins. None. My last endoscopy revealed healed villi, so I am able to absorb nutrients from foods now. I do eat a very good healthy diet that works for me. I have family members who have sleep apnea and they are overweight and have large necks. They also are sedentary with office jobs which...
  12. cyclinglady
    Some celiacs are seronegative. I think that is almost 10%. Another reason the GI Associations still recommend intestinal biopsies. Did they check his IgA levels (Immunoglobulin A)? If very deficient, it impact the celiac IgA type tests (like the ones he took). Ask for all the rest of tests (even the IgG versions). It is the easiest place...
  13. cyclinglady
    Welcome! I would suggest running the entire celiac panel which includes the DGP (his PEd can do it). Smaller children and some people (like me) never get a positive on the EMA or the TTG, but do on the DGP (that would be me and I had intestinal damage). http://www.cureceliacdisease.org/screening/ http://www.thepatientceliac.com/2014...
  14. cyclinglady
    Well written and so true!
  15. cyclinglady
    Yes, you are reacting like any normal parent. There is nothing that you can do about passing on your genes associated with celiac disease to your children. I was out for both my endoscopies. It is not an issue, but I get the worry. I worried about sedating my dog in order to get her teeth cleaned. I still worry about my kid. I worry less about...
  16. cyclinglady
    As Forrest Gump said, “#&it happens!”. One cheat might not set off a flare. It also might take a few days. Who knows? Glad to hear the you are on the gluten-free wagon again. Do not beat yourself up. We are all human!
  17. cyclinglady
    Yes, we have many gluten-free Vegans who are members of this forum. As with any diet, make sure you are getting adequate nutrition. My kid’s Vegan friend seems to live on Skittles and chips. Not exactly healthy in my opinion.
  18. cyclinglady
    Humm...so many things. Yesterday, I baked pumpkin cranberry bread, cornbread muffins and chocolate chip cookies for last night’s chili for our Halloween party. I just used the traditional Libby’s Pumpkin and Tollhouse cookie recipes. For Thanksgiving, I make pumpkin cream cheese roll cakes and a variety of cheese cakes using gluten-free Graham cra...
  19. cyclinglady
    I am sorry that you are struggling with sleep apnea. My aunt must use a CPAP machine as well. I can at least assure you that she was able to adjust and I am sure you will too. The machine has helped her a lot.
  20. cyclinglady
    The only cheese that has ever been in question has been blue cheese (based on the medium to grow mold). I suppose cheeses that have added ingredients (cranberries or peppers) could be suspect. All the cheeses you mentioned are safe. I eat tons of cheese sticks. So handy to eat. Like peeling a banana and my hands do not have to be washed because...
  21. cyclinglady
    To be honest, I do not drink much anymore because I have more than just celiac disease (AI Gastritis). Distilled alcohol is gluten free. So, go ahead and try the whiskey. Keep in mind that you might react because some celiacs are sensitive and can not even tolerate 20 ppm. I would caution you to experiment once you have healed or whatever symptoms...
  22. cyclinglady
    I rarely eat out. Seriously. It is not worth the risk. There are exceptions though. We like to travel. So what to do? We like using apps like “Find me Gluten Free”. However, we read the reviews. We find the restaurants critiqued by celiacs (those who did not report getting sick). We prefer 100% dedicated restaurants. We actually planned our...
  23. cyclinglady
    I am so sorry that your son is not feeling well. Consulting with his GI is very important. He should be retested (antibodies) to help confirm if he is getting gluten into his diet (active celiac disease). Celiac disease can cause a mutitude of mental health issues. Not much has been studied, but celiac researchers believe that gluten exposures affect...
  24. cyclinglady
    Welcome! The endoscopy is bound to show healthy villi because you have been gluten free for so long. Experts recommend a full two weeks of consuming gluten (1 to 2 slices of bread or equivalent) prior to an endoscopy. It is 8 to 12 weeks for the blood test. ALL celiac disease testing (except gene testing which is used to rule out, not diagnose usually...
  25. cyclinglady
    Oh Ennis, I am so sorry that you are unwell. Do not throw away your blender! Just wash it out. It could have been anyone of those items you described that caused your UC to flare (it does not sound like a gluten exposure). Each one is processed. I know that you like experimenting but sticking to a non-processed diet might be the best option...
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