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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Ulcerative Colitis is is recognized as an autoimmune disorder under the umbrella of Inflammatory Bowel Disease which also includes Crohn’s Disease. UC affects the large intestine (Bowel) and Crohn’s affects the entire intestinal tract from mouth to anus. You were correct in that you can have more than one autoimmune disorder at the same time. ...
  2. cyclinglady
    Is your celiac disease active? When was the last time your antibodies were measured? Maybe it is time for another endoscopy. It might not be celiac related at all. My celiac disease is not active. A recent endoscopy revealed healed villi, but biopsies revealed autoimmune gastritis (AG). That was the cause of my acid reflux. It was a relief...
  3. cyclinglady
    You should talk to your doctor about your high ferritin level which can be due to many things: https://www.mayoclinic.org/tests-procedures/ferritin-test/about/pac-20384928
  4. cyclinglady
    Welcome, Scott. Did your doctor run the complete celiac panel or just the TTG? Not all celiacs test positive to it (like me). Some celiacs are even seronegative. Did he run a gene test? Do not get the endoscopy repeated in two weeks. In theory the GI tract can heal in two weeks. In theory. The reality is that people are managing their treatment...
  5. cyclinglady
    I am sorry about your mother. She is an adult and there is not much you can do but offer encouragement. But you can take care of yourself and any children or siblings you might have. Get tested for celiac disease and keep getting tested throughout your life (it can develop at anytime). It is just a simple blood test. Have your doctor check for...
  6. cyclinglady
    Get a new celiac-savvy GI! You have celiac disease based on biopsies (showing healing on a repeat) and the gene test results. Your blood work might have been positive too (although some celiacs are seronegative). Did he run the entire panel? I never test positive to the TTG. EVER! Yet I am biopsies confirmed. Get and maintain all your medical...
  7. cyclinglady
    What if the damage was beyond the reach of the scope? When you had the repeat endoscopy in September, did they repeat the blood tests? If not, have them repeated provided you remain on gluten for 8 to 12 weeks. I was positive only on the DGP IgA when I was diagnosed and ever since then too in repeat blood work. My niece went to four GIs. ...
  8. cyclinglady
    The testing to validate a brewed/fermented process is what is in question. The ELISA test was not designed to test this process. So it could have gluten in it or it might not. However, many celiacs have reported issues with the beer. I miss a good barley-based beer, but I would rather feel good and not trigger my celiac disease. My health is way...
  9. cyclinglady
    @Brigi — are you saying you are diagnosed with celiac disease and can drink this beer just fine? I prefer certified gluten-free beer. Safer. There is too much controversy over the gluten removed beers. When studies show that an estimated 30% of celiacs are getting hidden amounts of gluten into their diets (and they can be symptom free), I would p...
  10. cyclinglady
    “Everything looks good.” That is what my diagnosing GI said. My biopsies revealed moderate to severe damage. My new GI’s scope has a much stronger magnification. Keep us posted, but seriously trial the diet regardless of the outcome. The small intestine is vast (larger than a tennis court) and damage can be spotty.
  11. cyclinglady
    Well, it might be worth experimenting with an iron supplement if you have restless leg syndrome. Keep in mind that too much iron is just as bad as too little. You might have recalled my history from last year (glutening, tooth infection, flu, and very elevated antibodies). I developed chronic hives daily and some GERD along the way. My antibodies...
  12. cyclinglady
    Congratulations! Those results are terrific. Most members take up to a year to get results in the “normal” range, so give yourself more time. Keep up the good work! ?
  13. cyclinglady
    A ferritin levels of 37 is still within range (see link). Mine is around 55 (post menopausal) but was at a 2 when I was diagnosed affecting my hemoglobin levels so that I was severely anemic. At a ferritin level 55, my hemoglobin level is normal for me. https://www.mayoclinic.org/tests-procedures/ferritin-test/about/pac-20384928 When you went...
  14. cyclinglady
    You asked the same question back in June. Have you been gluten free since June? If not, consider getting tested for celiac disease. It starts with a simple blood test. http://www.cureceliacdisease.org/screening/ You may have more than a gluten intolerance because going gluten free should make you feel better. But if you have celiac disease...
  15. cyclinglady
    There are times some celiacs are diagnosed via colonoscopy. The GI is able to reach into the small intestine. But many things can damage intestinal villi. Therefore a celiac blood panel checking for antibodies helps to firm up the diagnosis. I would recommend obtaining all your medical records. If you have celiac disease, antibodies would...
  16. cyclinglady
    I had a nutritional panel run after my diagnosis (Marsh Stage IIIb — moderate to severe damage). Oddly, besides an iron deficiency, I was not deficient in anything else. My iron levels went into the normal range within just a few months. However, I had already been living with a gluten free person for a decade, so I really knew the gluten-free diet. ...
  17. cyclinglady
    My guess is that the chicken was okay unless you recently developed an intolerance to poultry (unlikely). Was it packaged in the store or at the factory? What do you eat with it? What did you consume during the day or prior day? Often it can take a while for antibodies to build up. Not everyone reacts instantly. You said you thought you were...
  18. cyclinglady
    I think more time is needed to heal. Were those antibiotics gluten free? I had bad reflux last year. A repeat endoscopy revealed chronic autoimmune gastritis unrelated to celiac disease that may have been triggered by the flu, glutening, and tooth infection I dealt with months earlier. But it resolved on its own. I am trying to stick to a clean...
  19. cyclinglady
    No, but I might suspect the herbs used to season it. I have a garlic intolerance that has never resolved. I once became very ill after consuming copious amounts of delicious gluten-free fried chicken that was garlic free and I made it! I think sheer gluttony got me. How was the chicken prepared? Did you purchase wrapped in the store or was it in a meat...
  20. cyclinglady
    Welcome! I am sorry that you are not recovering as fast as you like. Celiac disease can affect so much more than just your small intestine. I think your doctor is right about pancreatic insufficiency and gastritis could be very possible. It takes time to heal. A long time. Why? Because really learning the gluten-free diet takes time. Mistakes...
  21. cyclinglady
    Do you ever eat the pasta plain? I know that I am intolerant to garlic which is added to many sauces. What is “A camera”? Did you have a pill camera checking you from stomach all the way through the large intestine? Exactly which celiac tests were done? The complete panel includes the TTG, EMA and DGP (both IgA and IgG versions). In my ...
  22. cyclinglady
    About 10% of celiacs are seronegative, if I recall correctly. You already had a set of Immunoglobulin tests and your IgM was a bit elevated and your IgA was normal. So, all celiac testing should work, unless you fall into the seronegative category. So, the lab you referenced should be fine. Your GI May know that an endoscopy is expensive...
  23. cyclinglady
    I am sorry that you are unwell. Your specialist might very well have given you good advice. Trialing the gluten free diet can be very revealing. Here are over 200 symptoms related to celiac disease which can be systemic. Unfortunately, these very symptoms can overlap with so many illnesses. Testing for antibodies is the first step. Since...
  24. cyclinglady
    I am sorry that you are unwell. Consider asking for the entire celiac panel: TTG, EMA and DGP (IgA and IgG versions) and an Immunoglobulin A (in the case of celiac disease testing this is used as a control test to validate any IgA tests). http://www.cureceliacdisease.org/screening/ Gather and maintain all your health records for the...
  25. cyclinglady
    It could have gluten (which is wheat, barley and rye). Who knows? The manufacturer is not going to disclose it. Notice there is not a nutrition label on a can of beer? Stick with plain alcohol that has been distilled or wine or certified gluten free beer. You get into trouble if you experiment with flavored items. In fact, I will not drink mixed...
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