Thanks cavernio, I wonder how common the urine smell is? I've only heard of it anecdotally, but some of the other 'probably msa' people I know also have this symptom. smell is still gone... Saw my gp yesterday, he was floored at my improvement over last visit 6 weeks ago. Said last visit I had the parkinsons mask and a grey colour, and i had so much more...
Hello, so happy to find you all!
I'm Kathy, 55, on Vancouver Island. (also a UBC patient). I've been 'diagnosed' with probable multiple system atrophy, My symptoms however sound like everything ive read on gluten ataxia, plus i have a few that sound more like ga than msa. I went gluten-free March 25th 2013 and in the first two weeks noticed an immediate...