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LauraZ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LauraZ

  1. My daughters and I were all tested by a naturopath using the ELISA blood test. It showed sensitivities to gluten/gliaden and all dairy. (It also showed high sensitivity to beef, which the naturopath said he saw a lot of because of the bovine connection.) We all went gluten-free/DF last August and just this month decided to see what our tolerance for dairy...
  2. We live in Bellevue. My two daughters and I are all gluten-free. You're in Woodinville? Have you been to Made by Mona's yet? I just heard about this place -- it's just off of 522 and 202. Here is her website: Open Original Shared Link Laura
  3. I came across this article through the DH website and was wondering if anyone here had some input on it: Open Original Shared Link It talks about how peptidase supplementation could be the next approach to helping those with celiac sprue. I then googled "peptidase supplementation" and found that these supplements are available over the counter. Has...
  4. That really makes sense. Our nutritionist told us that B vitamins are depleted when your body is under stress. And when I went to buy some, the brand I bought are called "Stress Tabs."
  5. I had the hair-falling-out symptom, too. It's the most frightening thing!! Every morning in the shower, handfuls would come out as I shampooed. Mine was a very slow process of discovery -- at first I was told it was just wheat, so I still ate oats, barley, kamut, etc. And the hair kept coming out, although some of my other symptoms abated. Once I got the...
  6. LauraZ

    ARCHIVED Support/help

    Have you had any success going gluten-free? I had no luck with conventional doctors either -- told me it was just a garden-variety dermatitis and to put betamethasone on my scalp (red and oozy), and topical steroids around my eyes (which were crusty and swelling) and on my neck (which was beet red). I had no idea it was diet-related until a friend of mine...
  7. Both of my daughters and I tested high on the ELISA blood panels for wheat gluten/gliaden (they were at the highest end of high). The Transglut IGA blood tests for celiac were negative for all of us. We all went gluten-free in September and all of our physical ailments cleared up. In the process, my oldest daughter (11 yo) became extremely sensitive to...
  8. Oh my gosh. I had no idea it actually had a name. And I googled it and saw pictures. After one MD, one dermatologist and a naturopath, I still didn't get this diagnosis, which is what I'm pretty sure it was, because my hair also did the oozing bit around the follicles. I had originally thought it was DH, but it didn't quite fit the pictures I was seeing....
  9. The one thing that had gluten that I didn't even think about eliminating until my scalp/neck still got sores was my shampoos. Almost everything I had either had wheat or oats in it. You have probably already checked this, but just in case... Laura
  10. This is EXACTLY one of the things I experienced! At the time, I had no idea it was food related. The dermatologist just told me to put cortaid on it, but the problem was, unless I was putting cortaid on, it just kept coming back. For me, it was mainly my left eye and it was red, puffy, and crevassed. People in the stores looked at me like I was diseased....
  11. So far, so good on the eggs. It has been 4 days. It would be so great to get eggs back. So many great gluten-free bread recipes use eggs... My hair loss was pretty much spread throughout my head. At one point, it was so much that I could run my hand over my scalp and feel the little bristles all over of the new growth. I guess I was just happy there *was...
  12. Thanks so much! I'm going to go get some right now.
  13. Over this past summer, both of my daughters and I have discovered we are gluten-intolerant, even though we all test negative for celiac disease. We all express our intolerance a little differently -- I through my skin, my youngest daughter through her energy level, and my oldest daughter through her gut. Skin and energy level are fairly easy to continue...
  14. School has started for me and when gluten slips into my diet I get reactions so strong I have to stay home from school.I was sick today and I hated it! I had eated at a mexian resturaunt the night before and had had a taco. The shell looked to be corn but it must of had gluten in it because I was sick the next day!. I reccomend eating at Japanese resturaunts...
  15. Carrie, My heart goes out to you. You just want your kids to have the same options as other kids, but we know that they simply can't. My kids are getting used to packing their own gluten-free cupcake or brownie when they go to someone's bd party; they know they have to turn down classroom treats. They are also dairy intolerant, so Halloween, with all that...
  16. LauraZ

    ARCHIVED Dry Hair

    Are you taking any oil supplements (fish oil, borage oil?). My naturopath put me on those as I was starting my gluten-free diet and it did seem to help. Once my other scalp/skin problems started to recede on the gluten-free diet, I cut back the oils and my hair seems to be back to normal now.
  17. Hi Sarah, My only thought is that since you are now totally gluten-free, if any gluten sneaks by at all, it might create more symptoms than you originally had. I say this because, before her diagnosis, my daughter used to have gas pains every few days. They lasted only about 15 minutes and could be helped with Gas-X. After the gluten-intolerance diagnosis...
  18. I am currently off all gluten and all dairy. I have been off sugar and eggs, too, because I tested moderate for them and initially I was reacting to even those lower-reaction foods. I have been able to have a little sugar with some success and today I tried eggs, after 6 months without them. Just last week, I had a nutritionist give me a fantastic explanation...
  19. I have to say I am thrilled I am not alone in these bizarre symptoms. I am happy to report that after 7 weeks of being gluten-free, the hair loss stopped. It has been a couple of weeks now, and every day in the shower, I still worry that it might not last. But when I take my hand away from my hair after shampooing, and there is nothing there, or just one...
  20. The chewable multi-vitamin that our naturopath recommended (and my kids love) is Pioneer's Chewable Vitamins and Minerals. It's vegetarian and allergen-free. You can usually get it at health food stores. Laura
  21. I do have to take another look at corn. I had been adding it in more heavily than usual (not many grains to choose from). Interesting you mention nightshades... I had been having some finger joint pain and read an article in Living Without (great magazine for celiacs and people with other allergies) that said removing nightshades from your diet can reduce...
  22. Thank you so much for your reply, Bobcatgirl. It is an embarrassing situation. I'm mortified at the hair that comes out. Last week I did a fruit and vegetable fast for four days. It really isn't too bad because you can eat all you want -- as long as it's fruit and vegies. After the fast was over, my hair loss was really reduced. Every day is a little different...
  23. Hi Clarise, My daughters and I had been struggling with a wide range of symptoms and it wasn't until recently that we related them all to food. The most helpful test to us was the ELISA blood panel, which will test your blood for reactions to about 100 different foods. In addition to picking up gluten and dairy problems, it also picked up eggs, peanuts,...
  24. Oakpoint, do you have any other symptoms besides your scalp? And have you tested for celiac disease? I"m also curious if your scalp problems came on all of a sudden, or if you've had them most of your life. I just got my results back and they were negative for celiac disease, but I live gluten-free just because those skin problems are set off so easily...
  25. Thanks so much for all of the responses. Yes, we were on gluten when the tests were done -- I did take my daughters off after the blood was drawn, assuming that gluten was going to be a problem and I didn't want to wait for the results to come back. In addition to the ELISA test, we had the tTG, which was negative. My intuition is that this is going...
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