greenbeanie
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HoneyD reacted to a post in a topic:
Internal Tremors
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HoneyD reacted to a post in a topic:
Internal Tremors
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Hello, Clairet3. Looks like you have lots of useful advice already, but I just wanted to add that my daughter was diagnosed at age 4 with a tTG about 16x the upper limit of normal (and high positives on all other tests too), and she also had sensory processing disorder prior to her celiac diagnosis. The therapy for sensory processing disorder did not help... -
Does anyone have an infant/toddler with biopsy-confirmed celiac who had very low iron saturation as an early symptom? I posted in the “Testing” forum a few weeks about about my 15-month-old who has been on a very low-gluten diet due to first-degree relatives with celiac. He started showing obvious symptoms after a short time of eating a small amount of ...
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Please help, is this Celiac?
greenbeanie replied to iceicebritney's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I’m so sorry you are going through this, and especially that your doctors keep dismissing it as anxiety. I had doctors telling me for almost three decades that that having diarrhea 8-12 times a day was just anxiety (without doing a single test other than a stool sample for parasites, and without ever referring me to a GI). The longer it went on, the more t... -
Son is Suffering
greenbeanie replied to KayO1969's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I’m so sorry your son is going through this. It’s good that you have a GI appointment for next week, but that’s still a difficult wait given his current pain. Have you been able to speak to a nurse (not just the scheduler) at the GI’s office about what to do in the meantime? Now that you have the appointment scheduled, he might be considered a patient there a... -
Unfortunately we live in a rural area (of the U.S.) with a severe shortage of primary care doctors, especially pediatricians. Most are not taking new patients or have a months-long wait. I may wait out the waiting lists and switch in the future, but for now we’re unable to see another doctor in the short term.
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Hello! I used to post a lot but haven't for the past several years. I have a daughter with biopsy-confirmed celiac who tested high positives on every test on the panel at age 4, and who had symptoms since infancy. She's now 12. I have been diagnosed with celiac myself by a GI but my situation was less clear-cut (long story). My daughter and I have an entirely...
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Margarita reacted to a post in a topic:
Brain Fog Recovery.
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Margarita reacted to a post in a topic:
Look like DH? Bilateral Itchy Bumpy Elbows
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Margarita reacted to a post in a topic:
Internal Tremors
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Pauline12 reacted to a post in a topic:
Internal Tremors
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cyclinglady reacted to a post in a topic:
Cow's Milk Protein Intolerance In Infants Of Mothers With Celiac?
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Hi Claire, I haven't been on these boards much lately, but I just happened to see your message and wanted to follow up on my original post above (from 2013). My daughter was indeed diagnosed with celiac a couple weeks after that post, right around her fourth birthday. She had high positives for every test on the panel, and the diagnosis was confirmed...
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Jane87 reacted to a post in a topic:
Look like DH? Bilateral Itchy Bumpy Elbows
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Look like DH? Bilateral Itchy Bumpy Elbows
greenbeanie replied to Jane87's topic in Dermatitis Herpetiformis
Welcome, Jane! Those photos look different from the rash I get from gluten - but mine hasn’t been confirmed as DH by a skin biopsy, and I don’t want to hazard a guess about someone else’s rash based on photos, and risk misleading you. Hopefully your doctor’s appointment will be helpful! However, on a totally different note, have you ever been tested ... -
I don't have a solution to the lip problem (sorry), but I do have a suggestion for the dermatologist appointment issue: Take photos! If you can show the doctor a photo of how it looked at its worst, that may help them take it seriously, even if it's improved by the time you get in for your appointment. I found this very useful both for my daughter's rashes...
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Thanks!
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Is it necessary to avoid sharing a toothpaste tube with a gluten-eater? My daughter and I have kept a separate toothpaste tube since her diagnosis. My partner eats gluten outside of the house and uses a different tube. This is easy enough to do, but sometimes if we run out or go on vacation or something, it would be easier for us all to share one tube. ...
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The one I have now is a cal-mag-zinc vitamin with 500mg of magnesium oxide chelate. I don't know much about the ins and outs of different kinds, but I've tried several different magnesium supplements and they've all seemed to help.
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Has your magnesium level been checked? I had this kind of internal shaky feeling, and also hand cramps, for years. Another forum member recommended magnesium, and it made all the difference in the world. Come to find out, a blood test from when I was in the hospital years ago had showed magnesium deficiency, and the doctor hadn't even told me about it. I...
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My daughter was conceived in a non-traditional way (with medical intervention), so we do not have full info about the other half of her genes. She didn't have the gene test herself because her celiac diagnosis was so clear. I am still extremely skeptical about my own test results, but at this point it doesn't make much practical difference. I'd certainly...
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Hi there. I've been following this thread but didn't post earlier because I'm not sure how helpful this will be, but I have a somewhat similar situation (and a partial solution that's helped me): I'm also negative for DQ2 and DQ8, though I have the alpha allele of DQ2.5 (and beta alleles of DQ5 and DQ7). Ignore that detail if it doesn't make sense - the genes...