Nantzie
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Nantzie
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My Doctor Doesn't Believe Me
Nantzie replied to Ellie2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds a lot like celiac to me. The only way to really tell, if your doctor won't support you in figuring out what is wrong rather than treat you like he's been treating you, is to just try the gluten-free diet and see if it helps. There are other foods that can cause really bad reactions, so even if it's not gluten, food intolerances of some sort are... -
I always heard that Tums had gluten? I just looked up their website FAQ http://www.tums.com/faqs_contents.asp#4 and this what it says - Does TUMS
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Nancy
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Oh for pete's sake... Them doing this is so stupid it makes me crazy. I mean why on earth??? Gah!!!!! Nancy
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This is weird. I haven't had anything with tapioca in it for two days. Today I woke up with only about a level 3 back pain rather than the 8-9 it had gotten to. It has just been building up slowly for several months up to a level 4 or 5. Not bad, but enough to cause me some issues. But then over the last two months it has gotten so bad that I have...
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https://apnews.com/article/debcb798185b9b5d8562e6ef9d8fe85c At least 27 elementary school children died and another 100 were hospitalized after eating a snack of cassava
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Poked around on Pubmed.gov a bit. Yikes! http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_DocSum "Recent reports suggest that the ingestion of poorly processed cassava roots is associated with the incidence of an ataxic neuropathy (konzo) in African countries. When cassava-based diets are not supplemented with good sources of protein and iodine...
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I don't want to give it up either just because it's in my favorite mixes. But the stomach pains are starting to irritate the heck out of me. The products that are starting to connect together for me are Pamela's Wheat Free Bread Mix, Pamela's Pancake mix and Kinnickinnick chocolate dipped donuts. I hate naming names because they're so good, but maybe...
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There are a few gluten-free products, made by gluten-free companies, that have been bothering me. I finally found the common denominator and it seems to be tapioca. My daughter is actually reacting to a couple of the products (the two she eats) with the same symptoms. Basically whatever it is makes my stomach really hurt. Anyone else? ...
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Dasani is another one that I've seen mentioned here as causing problems for some people, mainly people with chemical sensitivities if I remember right. If you look at the ingredients list where you'd expect to just see "water" there are several "ingredients" listed in the water. I've never liked Dasani because I always thought it had an odd taste. Go figure...
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Mmmm.... Nestle. Thanks for the list. Hey, don't you have some doctor's appt's this week? How are you feeling? Nancy
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It's nice to know it's not just me. It seemed so odd that I wasn't sure I'd get any responses. Good to know it should be gone in a couple days. Nancy
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I got glutened a few days ago by an Amy's frozen dinner. I have heard of a bunch of cross-contamination issues lately. I got D almost immediately, along with brain fog, headaches, skin issues, etc. I also had the feeling that my tongue was too big for my mouth, which was something I was getting right before I went gluten-free. That went away after half...
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Fake Paper Cuts
Nantzie replied to Lister's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I get this too. And I only get it when I'm glutened by wheat-sourced vodka. I tripled checked and challenged this a few times because you're not supposed to be effected by vodka, even if it's wheat sourced, but that's definitely what it was for me. I didn't get any other symptoms of glutening, but just the skin on my knuckles. And it takes a month for... -
I've always had a hard time falling asleep. I even remember as a little kid crying because I was so tired and couldn't fall asleep. I've also had problems with memory and concentration since I was about that age. I was never tested for ADD, but I'd bet if I were I'd have been diagnosed with it. Now that I've been gluten free, I can guarantee if I...
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A-ha! I get that upper right abdominal thing sometimes. Makes sense. Nancy
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Keratosis Pilaris - Link To Celiac?
Nantzie replied to achiera's topic in Related Issues & Disorders
I have that. The first time I noticed that there might be a link to something bigger was when I went on an anti-candida diet about five years ago, which by its nature is gluten-free. The KP went away almost completely on one arm with just a few scattered bumps, but was just as bad as ever on the other. It's stayed that way all these years too. It was... -
Scoliosis, Osteoporosis, Chronic Pain, Etc.
Nantzie replied to Nantzie's topic in Related Issues & Disorders
Oooo.... That's a good one. Thank you for a new way to look at the situation. Nancy -
Scoliosis, Osteoporosis, Chronic Pain, Etc.
Nantzie replied to Nantzie's topic in Related Issues & Disorders
Thanks. I will definitely ask about that when I see my doctor. For some reason I never thought about consulting a rheumatologist either. So that should help too. I feel so awful because sometimes I wish that some of the people in my life could experience what it feels like for a few days. But then I feel SO guilty for wishing that on people that... -
Anyone else dealing with chronic pain because of something like this? I've heard it called an "invisible disability". Which is really accurate. You wouldn't know I had scoliosis to look at me because it's in my lower back. Heck, I didn't even know until a few years ago. I always had a problem with my back going out, but they've got whole stores devoted...
