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Does anyone know of some celiac friendly restraunts in Destin ?? I will be down there for several days and would prefer to not have to cook every night.

Does anyone here have any positive (or negative) experiences at any restraunts in that area??? Any help would be appreciated!!

(Notice I said Celiac friendly- I have learned that just because a restraunt has a "gluten free menu" does not mean that it is safe!)

  On 9/16/2013 at 4:04 PM, GF Lover said:

1:40 is positive, albeit lowest positive.  I also am at 1:40.  You really need more tests to find out what is going on.  It just indicates that "something is going on.

 

Colleen 

Thank you for the help!

  On 9/16/2013 at 12:33 PM, Alwayssomething said:

I am not a dr and I am speaking from my personal experience:   Do you know what your ANA number was?   I have have a slightly positive ANA (Anti Nucular Antibodies) for years, approximately 10.   I see a rheumatologist annually that tests me for the items (maybe not all) that gluten-free Lover mentions above.   She also tests my vitamin levels.   My ANA has never raised above that slightly raised, and my Rheumy told me  this is not totally uncommon and that I would most likely develop an autoimmunen disese.    Well fast forward 7 years and I now have 3, Raynauds, Celiac, Hoshimotos.     

 

Ask to see your lab work and make sure she/he has tested your vitamins, thyroid (TPO as well as TSH, T3 and T4) and for Sjorgens and Lups.  

Just got my numbers sent to me. The number is 1:40. I am not sure what that means...?

  On 9/16/2013 at 3:20 PM, GF Lover said:

Since your Doctor correctly suggested you be tested for Lupus I would follow her recommendation. With your clinical indications she must suspect another autoimmune disease.  It is common to have more than one.

 

Colleen 

Thanks! I have an appointment tomorrow to have some blood work done. Hopefully I will get some answers

Ok, So I just got an actual lab report sent to me. ANA Reflex says POSITIVE A. ANA Titer says 1:40. ANA pattern says SPECKLED. From the research I have done, (which may or may not be accurate) a titer of 1:40 does not seem extremely positive. But I am not sure why it says POSITIVE A in big bold letters beside ANA Reflex? Everything else says negative, so there must be some reason they determined it as positive.

Does anyone know what any of this means? I do have some lupus like symptoms ( chronic body aches, fatigue, headaches) but at this point it is hard to determine whether that is from Celiac healing or whether it is something totally different....?

  On 9/16/2013 at 12:33 PM, Alwayssomething said:

I am not a dr and I am speaking from my personal experience:   Do you know what your ANA number was?   I have have a slightly positive ANA (Anti Nucular Antibodies) for years, approximately 10.   I see a rheumatologist annually that tests me for the items (maybe not all) that gluten-free Lover mentions above.   She also tests my vitamin levels.   My ANA has never raised above that slightly raised, and my Rheumy told me  this is not totally uncommon and that I would most likely develop an autoimmunen disese.    Well fast forward 7 years and I now have 3, Raynauds, Celiac, Hoshimotos.     

 

Ask to see your lab work and make sure she/he has tested your vitamins, thyroid (TPO as well as TSH, T3 and T4) and for Sjorgens and Lups.  

No I do not know what my ANA number was. It just said positive. Not sure what that means. It says that my ANA pattern is speckled. Not sure what that means either

I found out a few months ago that I have celiac. All of my blood tests were extremely positive. I also had a positive Anti Nuclear Antibody (ANA) test. Could anyone possibly know what this means? Could that test be positive because of Celiac? Or would it mean that I could possibly have a totally different autoimmune disease? 

My doctor isn't much help. She mentioned that I should annually get tested for lupus (she mentioned it twice) so I am wondering if the positive ANA test is why she said that...? When I called back to have a nurse further explain the test results to me I did not get any help

Any idea on what a positive ANA might mean? Could it just be elevated just because of Celiac? Or does that test have nothing to do with Celiac?  Could I possibly have a totally different autoimmune disease?

I was dx with celiac 6 weeks ago, and I have my first family fathering since diagnoses tonite and am super scared...So far, no one has really taken my dx seriously. (this is not the same side of the fam that I inherited the celiac gene from, so I am the only one on this side who has it)

I am worried that they are just going to think that I am paranoid when I don't eat. "No, sorry, I cant eat that becasue you just picked up a bun and then touched everything" ..uggh...I can just see their faces now

I am so nervous, and I really dont know what to do. They are just going to think I am crazy. My uncle donest deny my celiac disease, but he thinks the whole cc thing is ridiculous. He thinks I just do it for attention. I cant wait to see his face tonite when I am the only one who doesnt have a plate of food. uggh

Do yall have any suggestions for coping with this?

And should I steer clear of everything for fear of cc. I worry about eating what other ppl have made, bc if they made it at their house there is a very good chance for cc. They will probably get offended..but oh well. What would yall do?

And also, one more question: They are ordering bbq from a local mom and pop type restraunt. I know to deffinately steer clear of the bbq sauce, but what about the meat? Do you think it would be safe if I brought my own gluten free bbq sauce and just ate the dry pulled pork with MY sauce? Or should I stay away from that too???

Help Pleaseeeeee!!!

It does sound like you have symptoms of celiac. I would get tested. A blood test can change your life.

But it is really up to you. Many people on here are unofficially diagnosed and do extremely well with a gluten free diet. However, just KNOWING is kind of nice, and would probably make it much easier to stick to the strict diet in the long run. If you do get tested though, be sure that you are eating plenty of gluten until the test, otherwise you get get a false negative. I hope you get to feeling better soon!

  On 6/25/2013 at 9:10 PM, a1956chill said:

Since your appointment with your new Doctor is not until September I would suggest getting a glucose monitor and testing/ watching  your blood sugar until your appointment . .

thanks, that is a good idea

My brother has a milk allergy. He can use the same cookware as others, as long as it has been washed. And he is pretty darn sensitive. He has had severe emergency reactions before. He cant touch milk or smell anything with milk in it. But the cookware thing is no issue for him. However, I am no expert-Im just saying what I know from his experience. I would deffinately ask a dr to be sure

I didn't get the endo and biopsy. My blood test results were enough for me. Sometime I wonder exactly how much damage there is in there..but I do not wonder enough to get the endo done lol

It is up to you. Chances are, if their blood test results were positive, they have celiac. ESPECIALLY since you have a family history

Im a righty

Oh, and one mroe thing I forgot to mention....Whenever I start feeling faint and lightheaded, I start shaking all over....

This isnt an everyday thing. It probably happens 50 percent of the time. Yesterday, for example, I was fine. The day before...not so much

But there is a pattern...the days where I am extremely thirsty and going to the bathroom all the time are only the days where I have the light headed, shaking episodes

Some days I have nothing

That is horrible! I am so sorry about your bad experience! Rest well and get better

Hey everyone.

Last month I was diagnosed with celiac. Eventhough this disease is no picnic I am thankful for a diagnoses because I was feeling so terrible before the dr. could find out what was wrong with me. I am concerned about my blood sugar levels. I have also read that celiac disease and type 1 diabetes go hand in hand, which makes me more nervous.

Here is why:

Last November I started to have a few of symptoms of diabetes ( I didnt know they were diabetes symptoms at the time)- I was constantly thirsty (like had to have a bottle of water at all times, cant finish a sentence without taking a drink thirsty), urinating all the time, and had 3 strange episodes where suddenly my vision would go blurry, and then return to normal within a minute or two. Those symptoms have continued, and have gotten worse. I havent had anymore vision problems, but have some days where I am constantly drinking water and going to the bathroom.  It just feels like I can never get enough to drink. But its not everyday, just probably about 50 percent of the time. Also, I got up 8 times to go to the bathroom the other night.

 I have also within the past month or two started having these spells where I am extremely light headed and feel like I am going to faint. I thought it was gluten withdrawl, but it will not go away. It got so bad at church last sunday that I was afraid to stand up...I literally thought I was going to pass out.

I am worried because now I know that these are all symptoms of diabetes, and that celiac and type 1 diabetes go hand in hand sometimes. I am really worried. I am young, in my early 20's, and have never been overweight. I dont know what to do. I just moved to the area so I dont have a primary care dr yet. I have an appointment to see one in September to get established as her patient, but I am kind of worried about letting this drag on until then.

Anyone here have an opinion on what I should do? Or does anyone have any experience with something similar? Please help. I am really worried about this

_{Interesting! I am newly diagnosed but several times a month for the past few years I have woke up with a very a sore mouth ( I mean the roof of my mouth would feel extremely tender)  I never thought about it being related to celiac. hmmmmmm}

_{Be careful about not bring strict on your diet! Eventhough you may not have a lot of symptoms, it is still damaging your body on the inside!}

This is so hard. I really do not have any suggestions for you. Just know that you are not alone. (It makes it easier on me knowing there are others who face this in the world). Many in my family are very rude and inconsiderate about my celiac too. I am trying to learn that it really doesn't matter what they think...I want to take care of my health.  Stay strong and continue to take care of your body. It will be worth it! Sending a hug your way!

I, now wondering if it could have been the red dye...? I have never noticed problems with it but who knows

I just dont understand. Its been 3 days since I drank the icee and I am still sick. My stomach is so bloated that I look 6 months pregnant, and I have had horrible gas and D. Last night I also experienced really bad anxiety, brain fog, and body aches (kind of felt like the flu) i know the website says gluten free but I am just so confused as to why I could be so sick from them. It feels like a gluten reaction. And theres no way that anything I had eaten earlier that day could have had gluten. Its not food poisoning either, because hubs had one and he did not get sick at all...Oh well...I guess I will never know...I just hope i get better soon 

  On 6/22/2013 at 12:09 AM, kareng said:

According to the company, all Icees are gluten-free.

Open Original Shared Link

Yeah I read that last night. Maybe its just a problem at my local gas station. I dont know. But I am still sick from it. And I know that is what made me sick because I was feeling great all day before I drank it. And then about 20 minutes after I started drinking it, all the symptoms started.

I am still sick. I havent noticed any intolerances to any other types of food so far, so other than gluten I don't know what else it could have been. And it felt like a gluten reaction. Who knows....I just hope I start feeling better soon

Looks like I am not the only one who has had a problem with this

https://www.celiac.com/forums/topic/47862-coke-and-cherry-icees/

It has been 24 hours since I ate the icee and I am SO sick. My belly is in so much pain that it is sensitive to the touch. Stay away from convience store icees!!

  On 6/17/2013 at 5:58 PM, designerstubble said:

Hi there

Just a quickie...

Before dx 8 mths ago I had light periods every 21ish days... But i'm pretty sure I'd stopped ovulating.

Now, gluten-free 8 mths, periods are 'normal'... every 27-28 days, boobs grew back (they'd disappeared!)...and I'm sure I am ovulating again... BUT (there's always a but!!) I have been suffering the last 3 periods with really achy legs???

 

I have never had achy legs before with a period? I get the achy back and mild cramping, but nothing dreadful, the last 3 periods have wiped me out too... It feels a bit like a mild flu, hips thighs and knees.

Anyone had anything similar?

Many thanks

I always have aches in my legs when its that time of the month. They are horrible! I have horrible cramps and extremely heavy periods. My legs hurt to the touch. Im hoping that it will get better in a few months from going gluten free (I was only diagnosed last month)..I always figured it was fluid retention

Hey everyone,

Newbie here. I am having a hard time figuring out some gluten free foods to take with me when I know I am going to be gone all day. I am on the go a lot, and I need your help brainstorming some food ideas

that I can throw in my purse or backpack for those days where I will be gone for several hours. Obviously it can't be perishable. The only thing I have come up with is nuts, gluten free crackers, and potato

chips...but I would really like to think of some other options. I plan on buying a small backpack that I can take with me when hubs and I go out for the day, that way I am not tempted to try eating out ( I dont trust

eating at restraunts anymore)...Any ideas? I really need your help! Thanks in advance!

Last night I stopped by a local our local kangaroo gas station and got a cherry slushie. I thought that surely a slushie would be safe. Well, I thought wrong. Within about 20 minutes after drinking it I started having all of my "I got glutened" symptoms. Stomach cramps, gas, bloating, lower back pain- all of which I get when I eat gluten.  I have only been diagnosed for a little over a month, and I have been extremely careful and havent eaten out much at all since then. In fact, I decided not to eat out for the rest of the summer to give my gut time to heal. But good grief, I didnt think a slushie of all things would hurt me! I was wrong

Have yall had any bad luck with slushies? I just dont understand what could have been in there that made me sick, unless its the artificial coloring. I read somewhere that coloring can have gluten...?

Im still sick this morning