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Lena378

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  1. My daughter was displaying some random symptoms including:

          Pretty severe eczema (mostly appearing after during her bath)

          Eczema on her bottom. Almost like a diaper rash (really bad at times)

          Eczema around her mouth

          Only has small bowel movements

           Stool occasional turns light tan

           Pain "in her belly button"

     

    So we tested her with her regular doctor doc who found nothing.

     

    Brought her to see a pediatric GI and he examined her and says she looks generally very healthy. Runs another blood panel and it comes back with celiac disease.

    Now I know nothing and here's where im hoping for some help.

     

    He said she tested positive for 4 out of 4 of the markers?? And that her levels were at 76?

    He claims he is 93% positive that she has celiac disease but she does not display classic symptoms.

    So today we took her for the endoscopy, she followed all the pre orders only eating lite little amount of food and clear liquids.

    When the did the scope they couldn't get into her stomach because it was full, so needless to say it was inconclusive.

    So now what does it mean that she is taking forever to digest food? Her last heavy meal was probably breakfast the day before and she is not a "big" eater.

     

    Of course the GI doc says we can talk about a diet tomorrow but that leaves us hanging all night on what to think? Could she really have celiac disease? She is normal height (maybe taller) healthy weight...

     

    I am so confused and would love and feed back anyone way have

     

     

    Thanks

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