fisharefriendsnotfood

  I'm sorry to hear he's already asking "why me?".  My son is more of a "HA-HA, I have this and you don't" kind of celiac disease'er. 

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I used to be like that when I was little! I was like, hahaha, I'm special and you're not! I eat special food and you eat normal food!

Wow. lol.

I'm not "why-me?" now or anything, just not "I'm so special" type of thing.

-Jackie

This is what I do on Halloween:

My sister, who'se 2 and a half years younger than me, go trick-or-treating normally. Then we come home and we trade each other. She's allergic to peanuts and I'm gluten-free, so for example, I give her Smarties and she gives me a Snickers. It's fun and simple.

That's our solution!

Awww...I'm embarrassed.  Let's let this one slide to the back again.  Make lots of posts in other teen-section topics.

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Don't be embarrassed!

Well, Responding to my own topic, yesterday I went to the Pickle Barrel with friends and they got mozzorella sticks (as in FRIED CHEESE), and they were all sharing them and I couldn't have any.

Oh well! There are many worse things.

I also hate when companies don't respond!!!!!!!!!!!!!

NO WAY!!!  celiac3270 WHEN HE WAS A NEWBIE!!!!

That is sooo cool!!!   

Hugs.

Karen

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I thought so too. I also found one when MySuicidalTurtle was a newbie. Hehehe.

If anyone needs to rant, post here. I don't know why, but I enjoy reading rants. Strange, I know. But post away!

I just thought it was cool to see celiac3270 asking for help - when he's the one giving everyone else amazing advice!

See, everyone starts somewhere!

-Jackie

I have had celiac disease my whole life. I have this friend who has IBS and is lactose intolerant, and has random stomach aches and stuff pretty frequently. I know that IBS is a common misdiagnosis of Celiac, and so is lactose intolerance. Even more convincing is that she says her lactaid pills hardly ever work. Should I tell her to think about getting tested for celiac disease?

Thanks!

Jackie,

I read your story and have to tell you until the end, I thought the friends were my age. (30 something)  I have conversations like that all the time.  You are right when you say you are better educated because of your Celiac diagnoses.

Laura

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Oh, I'm not ten years old! I'm fourteen! Sorry about the confusion.

Does anyone know which lip glosses are gluten free? I feel so strange trying to read the ingredient to makeup hehehe.

Thanks for all your help!

I know that MAC lip gloss in gluten free.

Jackie

I've been thinking, and I realize that being Celiac means we are very aware about what we eat. Like, we know every ingredient of every food item that enters our mouths. Here's a short story:

Me and two of my really, really good friends were at Baskin Robbins for ice cream. I got mint chocolate chip in a cup, obviously (mmmm...), my other friend got the same in a cone, and the other friend got chocolate chip cookie dough in a cone. We get out ice cream, and my friend who I'll call J for the purpose of this story, offers me a lick of her chocolate chip cookie dough ice cream. (By the way, she knows very well that I'm Celiac.)

J: Want some?

Me: Um, no thanks.

Other friend: She can't eat that!

J: Uh, why not?

Other friend: She's allergic to wheat! (lol that's what they think Celiac is... my oh my)

J: So?

Other friend: So, she can't eat chocolate chip COOKIE DOUGH ice cream, you idiot!

J: Why not?

Me: What do you think cookie dough is made of???

J: Cookie dough has wheat in it?

Me & Other friend: Yes!!!

J: Oh. Who knew? Sorry.

Yes, my friend isn't too bright about things like that.

So I was thinking, I was the only ten year old kid who knew what maltodextrin and wheat protein is. No one else knows what they're putting into their bodies. They don't even care or have a clue! I think I'm very lucky to have all this knowledge. Plus, I find food and how the body, especially the digestive system, works now.

Thanks for reading this long story!

Jackie

I do have one question though.  I know that there are alot of places out there that do scholarships for disabilities.  Do any of you know of any?  One thing that I have noticed is the cost of the things that she can eat.  It is hard being apart and not being able to help her (due to that I am in New York and she is in Idaho).  I thought that joining here would give me the chance to help her in another way.

I don't think any universitites would could Celiac Disease as a disability. It really isn't a disability, although I know how expensive gluten-free food can be. Good job for helping her out, though. Celiac is a medical condition, not a physical disability because you can't tell someone is Celiac by looking at them usually, and Celiac usually doesn't impair someone's physical abilities unless they're not following the gluten-free diet. But good luck!

Hi, I'm Jackie and I'm 14 years old. I go to a sleepover camp in the Toronto, Canada area called Wahanowin.

If you're interested, there's me and one other Celiac there:

www.wahanowin.com

Feel free to talk to me anytime!

Jackie

Thanks so much everyone!

My first question...

I've had SOOOOOOOOO many people tell me they know someone who had celiac disease but they grew out of it. I tell them no, it's impossible to grow out of, and they're insistant and say they did. ??????????????

Second...

What do you say to someone when they ask, "Well, what will happen if you eat wheat/gluten?" I am completely stuck and people ask me all the time.

Thanks for your help!

Jackie

Hi guys. I just read over my post again and now I feel really bad about what I wrote. I didn't mean to hurt anyone - I can understand how hard it is for the newly diagnosed. I'm very sorry to anyone I offended!

Many apologies,

Jackie

my mom called the school i go to and they said they would keppsome meet out for me from our sub line and i could eat the other gluten-free foods their it works out pretty well

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Nice thought, but that's very dangerous because of cross contamination. Asia, I know you're new to Celiac Disease, but that meat could have gluten-FILLED spices on it, and since it's in the sub line, has probably come in contact with the bread. You're safer and better of just bringing your own lunch to school. I have for 12 years!

HI welcome, this is a  great place!!! I'm 14 and was diagnosed when I was 20 months old so I have been living with this all my life, I'm in california, my e-mail adress is Open Original Shared Link my IM is missmolly3001 and e-mail me and i can help

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Hi! I'm Jackie and I'm also 14. I've been celiac all my life, since I was two years old. Want to talk sometime? I've only met one other celiac teen in my life before this, so I'd really appreciate it. Thanks!

To the person who said they feel that everything they loved in life is gone now that they're gluten-free, I think that's terrible. How can FOOD be the one thing you love in life? I think that being gluten-free will give you the time to take up something you really love, like a hobby or sport, like photography or writing or something. I know you'll begin to see the light soon, so good luck!