kbtoyssni

There are I think five types of anti-inflammatories. One is the advil/ibuprofen/motrin category - the stuff you get over the counter. If one doesn't work for you, it's likely that the others won't either. Mobic is another type. It's a prescription drug, once a day. Relafen is another prescription drug. So if ibuprofen isn't helping, you might ask your doctor if you can try a different one.

What about the undigested food in the crop and stomach? Or even partially digested food in the intestine?

I did think about this. If you're buying chicken breasts or whole chickens with the guts taken out, there *should* be no CC. But I'm not so sure that the intestines and stomach never get cut into so there's definitely a risk there. I'm not sure if there's a final washing step at the end of the process that would reduce this risk. Maybe the solution is to wash chicken ourselves? In the general scheme of things, this is a fairly low-risk area. Industrial chickens in the USA are feed mostly corn, so you'd have to have several things go wrong for there to be CC issues.

I wouldn't be concerned about the mushroom containing gluten, but I would make sure I washed them to avoid CC. Same with chicken. If a chicken eats oats, it metabolizes the oats and turns it into energy which in turn builds the muscle we eat. It's no longer in gluten-form.

You could also feed your son only gluten-free foods. It's not going to be harmful for him, and it will certainly be safer for you.

If you were diagnosed via blood work, then there was really no reason to do a scope. I'm going to agree with your doctor here. I'd guess your lingering problems are from occasional CC or other intolerances.

I don't think it sounds abnormal to have five days of stomach pain from gluten.

Is the sauce made fresh in the store? If so, it could be CC. Or the mozerella might be CCed. And while it's unlikely that the sauce contained gluten, you still have to check just to be sure. If you don't know, don't eat it!

It could also be not gluten-related. Tomato is very acidic, and cheese can be difficult to digest so maybe it's the combo of the two?

I always call the reception place myself. It's easier for me to talk to the chef than it is for my friends to try to relay the message. You should know where the reception is being held so getting in touch with the caterer shouldn't be too much of a problem. Most wedding dinners are held at nicer places and can easily accommodate. But after talking to the catering staff, you can make the decision on whether you trust them yourself. I do bring a snack for between the ceremony and dinner - I'm not going to eat the appetizers! On the reply card, I write in "gluten-free". I've only gone to weddings of good friends so far and they know about my celiac and have usually already asked the caterer if they can accommodate.

You might want to look into the Zone diet for before races. It's about making sure you have 30% fat, 30% protein, and 40% low-GI carbs in each meal. It seems a bit more sensible to have a good mix than just carbs before a race. My brother was a solid JV cross country runner in high school. His senior year he started doing the Zone diet and PRed at every race. His average mile time improved in the range of 1:30-2 minutes in just one season! My dad, who has been a 9-minute miler for as long as I can remember did the Zone diet before our town's yearly fun run, and ran the best time of his life. I tried it because I was always tired and it did help, but in hindsight I can see it's probably because the Zone diet is naturally low in gluten!

If your blood work was positive, then you have celiac. Your biopsy could have been negative for a few reasons: you didn't have much villi damage (yet!) or the doc didn't biopsy the damaged spots - it's easy to miss the damaged spots if you think about the few small biopsies they take versus the surface area of the intestine. Intestinal damage will increase over time so I bet if you have a biopsy every year eventually you'd get a positive. You should go gluten-free immediately, and shame on your doctor for saying you didn't have celiac!

I agree with everyone who said this sounds like dysfunctional behavior. And in that case, all the nice, tactful ways of dealing with the situation won't work because your mother will never change. It's a waste of your time to try to convince her not to do this because it's just what she does. As hard as it is, you need to distance yourself from her. Tell her why, and then don't eat lunch with her again unless she apologizes and stops this behavior.

It might also be that it takes you some time to feel the affects. If I get a tiny amount of gluten, I often don't feel anything. But a while back I was accidentally eating a CCed product and after a few weeks started to feel really yucky. Also, if it's a lactose problem, you may be able to handle a small amount but can't digest the larger amounts.

Gluten intolerance or celiac would not show up in a skin prick test because it's not an allergy. It's an autoimmune disease so you'd have to diagnose based on intestinal damage, blood test, stool test, or dietary response.

I usually bring my own food and still socialize. People ask questions, but it more of a genuine interest rather than a "why aren't you eating, try this" accusatory thing. I sometimes bring food to share, but I always serve myself a large portion before putting it out for everyone.

I've had mostly good luck with American Airlines. I always confirm my meal will be on the plane when I check in and also when I get to the gate, and I've never had a problem with my meal not being there. They do, however, have a habit of including a four grain cracker with the meal - and three of the grains are gluten grains! Of course, it's individually packaged so it hasn't contaminated the rest of the meal, but it does make me nervous about how gluten-free their meals really are. I wish they had ingredients with them. I've never gotten sick from them. Coming back from England to the USA, the meals are gluten-free under English law, so there's often <200ppm wheat starch in the food. If you're very sensitive, you may not want to eat it.

That's a great article! It's what I wish all celiac articles could be - the mention of the negative tests but positive dietary response, the non-traditional symptoms, and the positive outlook at the end!

I say I have an allergy when talking to people I don't know well. It's not necessary to get into the technical difference between how my body reacts to gluten versus an allergic reaction, either way it makes me sick. And everyone knows what an allergy is. If people start asking questions I'll mention it's auto-immune and that my body starts attacking itself. Again, I don't think most people understand the technical difference between allergy and autoimmune so most probably think my allergic reaction is that my body starts attacking itself.

I don't consider them the same. Brain fog is more the inability to concentrate, to understand written and spoken words, to remember anything. It's a feeling of your mind not working properly. Lightheadedness is different, but certainly still a symptom of celiac. I'd had a lot of trouble walking in a straight line pre-gluten-free. I'd walk down hallways with one hand on the wall to help myself stay straight.

If your daughter is sharing her food with other kids, that could mean other children's gluten fingers touching her food. Even if you do find out the potatoes are gluten-free, I wouldn't let her trade for them because of the risk of the other gluten food on the tray getting crumbs in the potatoes, too. Maybe you could occasionally send food with her to share, but not allow her to trade and eat other kids' food.

I occasionally wonder what if. What if those two or three doctors I went to for non-traditional celiac symptoms had caught this earlier, before I got really sick. Luckily I was only a bit sick for eight years and really sick for one year so I did miss out on some things, but not as much as some people here. But I always come to the conclusion that I'm a much stronger, more compassionate, inquisitive person with a new appreciation for every day I'm able to get out of bed and better able to make the right decisions for me rather than the ones other people expect me to make. I got really sick at what was probably the best possible time in my life that I could have gotten sick (if there is such a thing as a good time to be sick for a year!), and celiac forced me to make some changes in my life that I should have done much sooner. I don't think I'd be as happy and getting as much out of life right now if I didn't have celiac.

You might want to mention the addictive properties of gluten to them. I used to eat a ton of gluten foods, but I realize now it was mostly because I was addicted. Now I could care less about eating gluten-free breads, donuts, pizza, etc.

You going back and forth certainly isn't going to help you case. But if your friends aren't being supportive when you do try to stay gluten-free and are embarrassed about you asking waiters questions, they're not worth having around. My friends are wonderfully supportive and always looking out for me, and life would be much more stressful if they weren't supportive.

As a general rule in the US you can take any food on board that is solid. So a sealed jar a salsa is a no no but a jar of processed peanut butter should be OK (I would no take the natural kind that sperates because it's not worth the hassle).

My peanut butter got taken away from me last weekend. Made me very mad. At my local airport, there are signs stating that some liquids are allowed on the plane if you have a doctor's prescription about a medical condition. I called TSA to ask about this policy, and the guy assured me I could take soup and my liquid-based pre-packaged Indian food on the plane with me. He encouraged me to carry all my food with me in case my luggage got lost. I brought peanut butter, celery and raisins with me plus a few apples and some string cheese (flying domestically). No problems on the way there, but they wanted to take away the PB on the way back. I argued for a while about having a prescription, but the guy there insisted that PB was on the not-allowed list so I couldn't take it. Basically disregarding everything the guy on the phone said about medical exemptions. I have to give the TSA a call to complain this coming week. I don't care what the policy is, but they need to be consistent. Luckily I was heading home because I would have starved if it got taken on the way there!

There's a list of prohibited foods towards the bottom of this page:

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My daughter had no problem eating gluten free when she was with the family in support of her little brother with celiac disease, but this week we learned she, too, has gluten & casein sensitivity through enterolab, and that is a whole different ball game with her. She was angry, and said, it is one thing to choose not to eat it, but now that I find out I can't eat it, I crave it all the time. I had a copy of Gluten Free for Dummies around, and put it on her nightstand. It is really easy to pick up and read a bit at a time, and it is helping. She has quoted it to me a couple of times already.

Maybe you can tell her that she still does have a choice. It's just the consequences are different now.

Could you take your son to a support group? Maybe being around other teenage celiacs would be helpful. Or let him join this board and post in the teenage forum.

almost all of my recipe thread is Gluten-free Casein-free and there are a bunch of veggie recipes as well.

Great thread! I tried doing a search on gluten-free, gluten-free meals, but that thread never came up.

My parents are coming to visit next weekend for my graduation. My mum and I are both gluten-free, plus I'm peanut free and mostly meat-free. I usually cook fancier meals when they come, think main meal plus salad and a vegetable or two. But my mum has recently gone casein free, and I'm having trouble thinking of nicer gluten-free, CF, meat free recipes. I probably rely on dairy a little too much for my protein Seriously, all my nicer recipes contain cheese! Any suggestions? I'm not completely opposed to meat, but I'd certainly prefer not to have it. We're also English so we do tea time every day, and I don't know what kind of sweet thing I can do. I used to bake gluten-free cakes, but they've all got dairy in them... Plus we're going to a state park one day and will probably take a picnic lunch which is also baffling me. I used to take gluten-free cold pizza, but that's out now, too. Now I know that gluten-free, CF, MF can't be too hard, especially for just a few days, but I need some help with the CF food creativity!