kbtoyssni

Beer always made me sick. Since the amount of gluten in beer is relatively low, you're probably not doing a lot of damage, but I'm sure there will be some. That level of damage is not something I am willing to risk.

Cool! Sounds like a fun job! I'd rather get together to drink (gluten-free) beers, though!

I thought you might have had some formal education in this area...I could tell. You are very good at explaining concepts.

Heehee, beers would be great! I'm an electrical engineer working in test engineering so I design the test systems for our devices. But I'm really interested in the physiological side of things, too. I like to know the theory behind it. That's why I work here - because you can meet a person with a certain heart condition and know you're making a device to make their lives better.

It is possible that modified food starch is made from gluten, but 99.9% is not, at least in the USA. If it's made from wheat, companies are now required to list it since it's a top 8 allergen. Of course, that doesn't help if it's made from barley. In general, I don't worry too much about it. I tend to buy safe brands and most companies are owned by one of the big food companies so unless I have reason to doubt the brand, I don't call on it. And if I doubt the brand, I'm probably not going to be buying them anyway. I used to be the biggest bargain shopper - whatever was cheapest. Now I'm a loyal brand follower. If I know a brand is safe, I buy it to support them and to keep me healthy.

Sort of ! A "skipped" beat is really an EXTRA beat (PVC). The heart contracts sooner than it should, and very little blood is pumped. After this, the heart has more filling time after this short little contraction, so there is a greater amount of blood volume that is pushed out. Thus, you get that scary (but harmless!) "thump" in your chest. Ahhh...the human body...so many things that can go wrong.

Sounds like you know quite a bit about the heart! I work at a heart resynchronization device company so we should get together and read EKGs sometime We've got a great sequence of training classes (about 15 days total) about all different types of heart diseases and the causes and treatment of them so I'm working my way through those right now.

Good luck. I hope everything goes well.

Are you taking any probiotics to counter the effects of antibiotics?

I also had the weird heart beat....almost felt as if skipped a beat then beat harder the next time around.

If your heart skips a beat (which isn't all that uncommon), it will feel like it beats harder next time. Your heart will has more time to fill up with blood so the beat after the missed one is pushing out more blood at a much higher pressure than normal so it will feel like a stronger beat.

Hmmm, maybe I'll go to a vet next time I need to be tested for Lyme!

Sounds like a virus to me. It's hard because every time I'm sick I blame celiac. In February I woke up one morning withe the worst vertigo, blamed gluten and went to work. Turned out to be the flu. I should have stayed home and would have had I known it was a virus.

It sounds like there may be other health issues to address here. I can imagine being different in high school would make a kid miserable, but some of it she may not be able to control. I am very grumpy and depressed when gluten and have to try very, very hard to be pleasant.

I'm not sure what kinds of activities she does with her friends, but maybe it's time to start altering them slightly. If they're going out to dinner, suggest a place that she can get a gluten-free meal at. Have her call the chef before she goes so when she gets there she can order a meal just like everyone else without asking a ton of questions. She can even slip away when the get there to talk to the chef (most people think you're going to the bathroom). If they get together to watch movies and snack, send her along with a yummy gluten-free snack. I always bring cake or chips or veggies or dip that's gluten-free with me to share so I'm eating the same stuff as everyone else. I doubt anyone would notice if she's missing the gluten items from her plate if she's still snacking on other things. You might also want to have her help you make dinners and plan menus. Pizza's a very common kid food - have her help you make some. Then she can bring some of her own pizza along when everyone else goes to the pizza place. Or send her along with something she likes more than pizza. There's nothing worse than eating boring food when your friends chow down on yummy stuff you can't have. She might also like having input on what you are feeding her.

I had no idea bubbles could contain gluten! All it is is soap and water! Yikes. We used to always make our own. It's way cheaper. But I'm concerned that Palmolive may not be gluten-free. That's the brand of soap we have at work. I might have to go one a campaign to switch brands.

I loved the book Dangerous Grains - it details all the issues you can have due to celiac. It's not a "how do I deal with this" book. I love "The Gluten Free Gourmet" cookbook. Try the bread and cake recipes in there - they are delicious! Oh, and pizza crust!

I like Food for Life brand red and black rice bread. It's pretty common so hopefully you can find it.

I always carry some M&Ms or fruit snacks in my purse just in case. They're not the healthiest, but they'll do in a pinch.

Tacos are quick. Or tortillas (corn tortillas with melted cheese topped with lettuce, tomato, salsa, etc)

Chili is quick and you can freeze it and grab some when you need it.

What kinds of meals did you make before? We can probably help you modify them to be gluten-free. It might be easier if you're sticking to the old favorites rather than inventing all new meals.

I don't use one. I know my safe brands and do a search of this board if I need to buy a different brand. But I have a very good memory for this kind of information so I've never been in the grocery store and not been able to remember my safe brands. If you have trouble remembering, I could see it being helpful. If it were me, I'd probably just bring a printout of the information and not spend the money, though.

You might have casein intolerance, or you might have a slight lactose intolerance. I feel sick if I eat a ton of dairy (like more than three servings a day) so I try not to eat too much. Sounds like you ate a lot so maybe you'll be able to handle it if you ate less.

Hell Ya!!

Some of these people on this forum don't even have Celiac!! they want Celiac soooo badly...( which I don't understand ) they have every other symptom....and then you read their profile...and it says..negative bloodwork/biopsy **** well...you know what that means? it means you don't have Celiac!!!! I understand that you feel better when you don't eat gluten...but, don't proclaim yourself Celiac...if you don't have it!!!

I would also disagree. I do not have positive bloodwork or biopsy. I figured it out through an elimination diet. By that point I'd been gluten-free for too long to get positive bloodwork, and I was not willing to keep making myself sick just to get an "official" diagnosis. I may have been "just" gluten intolerant, but I feel that celiac is the last stage in gluten intolerance, the one where your body is so badly damaged. And I still never cheat. I get too sick when I eat gluten to want to cheat. If I did cheat, I'd probably end up developing celiac so people who are "only" gluten intolerant should still not cheat.

I'm just speculating here, but if your villi are worn, I would think you'd have trouble digesting anything. It's like having half of a healthy intestine if all the villi surface area isn't there.

I did a bit of googling and it looks like you do need fat in your diet to absorb fat soluble vitamins. So if you're not absorbing as much fat because of villi damage, that could cause an issue. This site: Open Original Shared Link says that fat soluble vitamins can be make pseudo-water soluble by adding some ingredients during manufacturing (anyone know how safe this is?) like riceplex is. So, my guess is you might absorb slightly more vitamin due to the water-solubility, but I wouldn't think it's enough to make buying special vitamins worth it.

Anyone else have information on this topic?

I agree that you need to find the source of gluten. I don't think you'll ever feel better if you don't deal with that. You just moved so I'm assuming you've changed brands of many of your foods. It's probably time to look at the brands you are now eating and starting making some calls. Or post the new brands here and I'm sure someone's made the call already and can tell you if it's gluten-free or a company that has CC issues.

Gluten is what damaged your gut to start with so if your gut heals and you start eating gluten again, you'll be right back where you are now. I think of gluten intolerance as the first stage on the road to getting celiaa. Think of yourself as lucky - at this point you're "only" gluten intolerant and you haven't damaged your gut enough to have full-blown celiac. If you continued to eat gluten for a few more years, you likely would be diagnosed with celiac and have a lot more damage.

Could you talk to someone above your boss about the issues you've been having? Or an HR rep? Or transfer to a different area of the company if it's a large enough company?

Can unexplained seizures be a symptom of celiac disease? I hadn't read that anywhere yet. I have a good friend who's daughter (32 yrs)just started having seizures. She has been tested for everything, (except celiac) and every thing comes out negative. Can you explain this more? Thanks for sharing your story. We pray every week for this young woman at Church...maybe this is the answer to our prayers for her.

Gosh, practically everything can be a symptom of celiac! I also had joint/muscle pain (with a diagnosis of fibromyalgia). The pain was gone in probably a month, but I'd lost a lot of strength and stamina from lying in bed for six months and it took a long time to get that back. Congrats on your diagnosis and welcome to the board!

Well, if the company said the foundation is gluten-free, I'd be inclined to believe that. What brand is it? Maybe someone else has used it and can testify if we can trust this company.

I don't think it's out of the ordinary to feel sick for two weeks, especially after a vacation which may have contained multiple glutenings. I find deviating from my normal routine can make me sick, too, even without gluten. I'd stick to your known safe foods and give it another week.

It looks like you might be recently diagnosed. In that case, you can also emphasize that your body is still healing and that you shouldn't need to miss much work once you're fully healed. Short-term disability would probably only be necessary while you're healing. Good luck!

I don't think gluten in the coffee is the problem. If anything, I'd say it could be the caffeine. I get really bad stomach pain and foggy head from caffeine - maybe you have a similar reaction?

Hi, I'm new to the forum. My Chinese herbalist recently suggested that this could be my problem (dh). I was really interested in how you signed off about "chocolate". I am just discovering "hidden gluten". Does chocolate have hidden gluten?

Most chocolate is ok. Again, just read the labels, but there's plenty out there that you can have: Snickers, M&Ms, Mounds, Almond Joy, Dove, Andes Mints, Milky Way DARK (note: Milky Ways made with milk chocolate is NOT gluten-free).

The diet will seem more expensive at first because you're trying to buy gluten-free alternatives to your old gluten foods. You have to start thinking differently if you want to save money. Use potatoes or rice as a base instead of pasta. Use rice cakes or corn tortillas (you can get 3 dozen of these for $1-2) for sandwiches. Hit up a grocery store that's got a lot of Asian or Mexican food - that's where you can find the cheap tortillas and huge bags of rice flour. I can get 4lbs of rice flour for $2. If I buy Bob's Red Mill it's $3 for 20oz.

it really amuses me that people spend the time to come up with such crazy ways of doing nothing.

(this boils down to multiplying the first three digits of your phone number by 10,000 (because it's in the 100's, and phone numbers are in the 1,000,000's), and adding the last four digits, with some obfuscation of adding and subtracting the same amount in between.)

some of the really long ones are fun to undo algebraically, though.

Ok, so this is immediately what I did - got out the scratch paper and worked it out by hand. Yup, I am a nerdy engineer My dad was a math teacher and used to make these types of number games up on the spot for me. I was always amazed until he showed me how to do them myself. Then I'd make them up for him.