Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

kbtoyssni

Advanced Members
  • Posts

    1,516
  • Joined

  • Last visited

6 Followers

  • lrsmetak
  • jstoy
  • Canuck86
  • rickrackro
  • ashylu929
  • HippyGirl84

Profile Information

  • Gender
    Female
  • Location
    Minneapolis, MN

Recent Profile Visitors

13,600 profile views
  • Jen1104

    Jen1104

kbtoyssni's Achievements

  1. I've made the first one and love it. I could probably eat a whole loaf in one sitting :) I was a little disappointed that it didn't taste too great on day 2, but that could be an issue with my cooking skills since it tastes fine day 2 when my mum makes it. It never lasts past day 2. This recipe is great for fondue.

  2. I love your second post! I don't think it matters if you have celiac or "just" gluten intolerance. Either way gluten makes you sick and you have to avoid it. You are completely right that you don't have to justify anything you do to anyone but yourself. Don't ever let someone guilt you into going to a restaurant to trying "just a little bit" if you aren't 100% comfortable with it's glutenfreeness.

  3. Welcome! Sorry things have been so rough for you, but if you stay gluten-free you will get much better. I get the impression that you may be getting glutened somewhere and that's hurting your ability to heal. Does the rest of your family eat gluten or use shampoo/makeup that contains gluten? You might want to consider making your home mostly gluten-free to reduce the chances of contamination. Many of the things you eat on a normal basis are gluten-free if you just buy the right brands.

  4. So good for me not checking this thread for months after saying I found a good doctor - sorry everyone. I see Dr Ronda Stellar at the Shoreview Medical Clinic (corner of Lexington and 96). She's a regular general doctor but I love having someone who's aware of celiac and not going to be skeptical every time I mention it.

  5. You may be able to find a regular doctor who's willing to diagnose you on dietary response. That's what I did. If a GI had told me to keep eating gluten so he could do a biopsy, I would have told him to stuff it. Plus this one doesn't seem to know what he's talking about. Has he diagnosed anyone with celiac before? He sounds like the type to say "they said it was rare back in med school so there's no way you've got it".

  6. Did you ask them why they've been distant and ignoring you lately? There could be a good reason why that you can work through. Maybe you mother does feel guilty because she "gave" it to you, maybe they think the diet is too hard for them to deal with and you're going to ruin every get-together you have. It doesn't sound like they're being downright hostile and are unable to understand. Maybe a long talk about why they're cutting you out and how hurtful it is plus some education about celiac from your end would help?

  7. Wheat and barely were first domesticated in the Fertile Cresent (Mesopotamia region). People from this area will have a lower chance of getting celiac because their genetics have had longer to adapt to eating gluten. It's only a few thousand years headstart on the rest of the world, though, so the percent of the population affected isn't going to be that much lower for those in the Turkey/Iraq/Saudi Arabia region.

  8. Welcome and congrats! I love The Gluten Free Gourmet cookbook. I've made most of the cakes in there and they've all turned out great. The gluten free diet can be more expensive at first mainly because people try to replace all their old gluten foods with gluten-free ones. With a bit of thinking outside the box, you can reduce these costs. Like using corn tortillas for PB&J wraps rather than sandwich bread. Or eating a baked potato with toppings for lunch instead of a sandwich. I do very little shopping at a gluten free store and buy mostly "mainstream" brand products so I wouldn't say my food costs have increased much at all. For things like rice flour, I go to the Asian food section and buy it in bulk for cheap (4lbs for $2).

  9. What kind of foods is it that he sneaks out to buy? Just trying to figure out if there's something all his friends can eat that he can't and it makes him an outsider. Most gluten food has a gluten-free substitue that you could find.

    How much input does he have into what he eats? Would having him help you set the menu and him telling you what he wants to eat help? Of course it may not be the healthiest things, but you might be willing to let him eat a bit more sugar than he should to keep him gluten-free.

    Gosh, parenting has got to be so tough. It's got to be nearly impossible to get a kid to eat healthy, gluten-free food all the time and be happy about it. Junk food is just too acessable these days! Good luck!

  10. Interesting article - thanks! I don't think I'd want to do it if it were available, though. I think I have a much different outlook on this than most people, but celiac is such a big part of me that taking it away would seem almost like a loss of identity. I don't have too much trouble with the diet and not eating gluten is just what I do. It could also be that I associate wheat with being sick and not having a life and I associate my currently wonderful life with not eating wheat. And I like my life as it is right now. I didn't go though the stages of mourning when I was diagnosed, but I think I would if I had to start eating gluten again. I am an odd person :)

  11. Thank you so much! Because I was actually wondering about this: if you went gluten free would symptoms start to slowly appear.

    Right now I'm in kind of a rural area and trying to find a celiac friendly doctor isn't easy. But I think I will try to bring him to the doctor that was willing to test me. He seemed pretty open about it.

    Thanks.

    I guess I was more refering to him maybe having symptoms that he doesn't realize are symptoms until he goes gluten-free and they disappear. I had no idea my constant itchy, watery eyes and depression were gluten related until I woke up one morning several months after going gluten-free and realized they were gone. Mild symptoms are usually just minor annoyances that you learn to deal with and don't think "hey this isn't normal".

    Sounds like you might be talking about if he goes gluten-free will he start reacting to gluten. Yes, it's very possible he might. It's also possible he might not. Many people talk about their symptoms when glutened being worse than they were prior to going gluten-free, but for me it's the opposite. I don't get nearly as sick now; usually I'm just minorly inconvienenced by a glutening.

    It is hard to find a good doc, especially if there aren't many options where you live. Your doc sounds like the best bet right now. You said he was in college? Maybe he can find a celiac-friendly doctor when he goes back to school. I know this doesn't help for testing now, but if he spends most of his time at school, it's probably more important to have a good doctor there.

  12. I'm the 25-year-old child who's moved out, but I can share some things my mother has said. Around the time when I was recovering from celiac and getting ready to move several hours away for a job, one of her friends had a daughter who wanted to move across the country. The friend complained about this a lot and wanted her daughter to stay close to home, and my mother just told her that she was so thankful that I was healthy enough to move away and live on my own and support myself. The fact that your son can move away on his own to college is a testament to your good parenting. He wouldn't be able to do this if you hadn't done a good job raising him. Which I can imagine is a really hard part of parenting: you do a good job and they leave you.

    One of my favorite ways that my dad keeps in contact with me is by sending my newspaper articles. He used to send me articles about different health issues I having (health-related articles have stopped now that I'm gluten-free!) and now he sends me stuff about my old high school gymnastics team and other local stories or financial advice. He always includes a short letter, and it still makes my day when I get a letter from dad. It's so easy and cheap and doesn't take very much time.

  13. The other tricky thing about being "asympomatic" is that you often don't realize you have symptoms until you go gluten free. A lot of them slowly sneak up on you so you don't even know that's not normal.

    I'd get a new doctor. Even if you do stay with this one and somehow get your son tested and he's got it, this doctor sounds like he's going to be a pain to work with. The kind that will give you the evil eye when you try to explain how you diagnosed by blood test and dietary response and not a biopsy. I'd get a celiac-friendly doctor now! It's also possible he doesn't have celiac yet and will develop it in the future and in that case I'd also want a doc who is willing to do yearly tests for celiac and be on the lookout for potential symptoms.

  14. I love Perkins. It's definitely on my safe list. I always order the omelette with onion, mushroom and swiss cheese, hash browns and substitute fruit for the toast. I have no idea how the meat is. They always seem very willing to accommodate me and used to suggest the fruit substitute as soon as I mentioned a wheat allergy. I bet they'd cook meat for you in a separate pan if you needed them to.

  15. I'd take him to a proper knee doctor, too. For years I had popping behind my knee which could have felt like a knee popping out and it was cause by my kneecap not sitting level. If he hasn't had an injury that would cause this, I'm going to guess it's an alignment issue. PT can often correct the muscle imbalances that cause misalignments. If there are no (or minimal) muscle imbalances and there's still an alignment problem, you could also try taking him to a chiropractor and getting his knees adjusted. I'd also have a chiro or doctor look at the feet and hips because issues there can cause knee pain (although if this happens while kneeling in the garden, it seems like it may be isolated to the knee joint).

  16. I take them in the morning when I'm making my lunch. What is your job? I'm an engineer and we use an the outlook email/calendar so you could do a reoccuring appointment everyday to remind yourself to take them. Or could you set an alarm to go off? Maybe a cell phone alarm? Or if you pack a lunch everyday, put them in there so you take them when you eat.

×
×
  • Create New...