-
Posts
1,516 -
Joined
-
Last visited
kbtoyssni's Achievements
-
-
The pizza place is
Roulette's Pizza
952-443-4644
1550 Arboretum
Victoria, MN 55386
-
I'm from Green Bay and I have been tested for celiac disease many times all coming back negative. I have tryed a gluten free diet for a month about a year ago and felt great! But then I listened to the Dr. with my negative results and went off the diet because it is fairly expensive. My symptoms got worse and I started migranes again so I went back on the diet a week ago and am already feeling sooo much better even lost a little weight! What I need is some advice on ways to cut some of the costs. Any suggestions?
The best thing to do is not buy gluten-free substitutes of your old gluten foods and start using different things. And don't feel that you have to buy the product that has "gluten free" on the package. There are plenty of mainstream brands that are gluten-free. It will take some time to change your tastebuds, though. I make peanut butter and jelly wraps on corn tortillas. For lunch I have baked potato or rice with cheese and salsa and salad or Thai Kitchen ramen noodles. I use rice as a base for everything. I use tostitos corn chips in place of crackers a lot. I eat a lot of eggs. I now do 99.9% of my shopping at the normal grocery store and rarely buy specialty gluten free products. When I want sweets I make my own. Try The Gluten Free Gourmet cookbook - I haven't found a bad recipe in there! Flour can be expensive so I buy the Asian-style flour. The other day I got 4lbs of rice flour for $2 and 14oz of tapioca flour for $.50 which is much, much cheaper than Bob's Red Mill or other brands. Try Cub Foods - they have an amazing Asian food section.
ETA: Nevermind, I don't think you have Cub Foods in Wisconsin. I thought I was posting in the Minnesota thread for that bit of advice
-
Becky - I was at the Celiac Walk. I was the one cutting all the doughnuts and bagels in quarters all morning. Did you try the gluten free pizza??? Delicious - just like the greasy, fresh out of the oven pizzas you get from any other pizza place.
Take-out pizza is the one thing I miss so I'm very sad that the pizza place is in Victoria and not closer to me in Shoreview.
-
A positive blood test means you have celiac, regardless of biopsy results. A biopsy may or may not confirm you have celiac. Villi damage may be patchy so a doc can miss it if he doesn't take enough samples so I don't see a need for a biopsy unless your doctor suspects something in addition to celiac is going on, too, and wants to check for it but it doesn't sound like that's the case. Your doctor seems to be really educated on the disease. If you get another blood test after two weeks of being gluten free, I'm guessing your gluten antibody levels will have decreased, but not have gone down into normal range yet. You may want to do another follow up blood test in 4-6 months when you body should be mostly healed. At that point the blood test would indicate if some gluten is sneaking into your diet somewhere and you're not having known symptoms from it.
Welcome!
-
I'm a gymnast and love to bounce on the trampoline. Or tumble and flip
-
I'm thinking take the job, too. You don't have kids yet. When you do decide to start a family you can find a more flexible job, but you'd probably feel better bringing a child into a more financially stable family.
-
I'm an electrical engineer at a medical company. Outside of work I'm a huge gymnastics fan - I do gymnastics and will probably start judging high school meets next year.
-
Cocoa Pebbles, Fruity Pebbles, Dora the Explorer Cinnamon Stars are mainstream cereals that are gluten-free.
Cocoa Pebbles are no longer gluten-free. They changed the formula maybe four months ago and now it has gluten.
-
I use Target-brand sunscreen.
-
Gosh, that must have been so scary, but I'm glad you got to the hospital in time and figured out another piece of Alex's health issues. Hopefully this will be the final answer.
-
I am a firm believer in the fact that if you have something going on in your digestive tract, you should look at what you're putting in it first. Blood tests give false negatives fairly often so why not try gluten-free just in case? It's easy to do and can save you a lifetime of suffering if you do have celiac. It's not like you'll harm your body by trying gluten-free. The catch is that you have to do it 100% to really know for sure. You have to be diligent about cross contamination and ingesting small amounts of gluten because that can be enough to make you not feel better if you do have celiac. Good luck and welcome!
-
Aww, that's sweet of your daughter. I love those PB cookies!
-
I know the feeling. I pay a $1 a week for the birthday fund. So far I haven't been able to eat anything they buy with this fund. Maybe when it's my birthday I should tell them I want something from the gluten free bakery!!!! Of course they wouldn't probably want to eat it. But then I could make up for all the things I couldn't have.
Gosh, in this case, I think I would not chip in. I don't mind the "free" gluten food, but I wouldn't want to pay for food I know I'm not eating.
-
Can you get a mini fridge and a cheap microwave to put in your cube? I would want to have to navigate the messy office kitchen. I'm lucky that my coworkers all all very tidy - no small feat in a department of 120 people!
-
I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free being a "fad", but I don't expect one article to contain everything - it would be twenty pages long! They packed a lot of info into this relatively short article.
-
I would also be suspicious that someone ate something with gluten, then reached into the chip bag and contaminated everything. It's pretty risky eating anything at a party if there are gluten foods around.
-
Again, it's a very individual decision, but when I lived at home our house was 99% gluten-free (mom and I were gluten-free, dad and brother not). We bought gluten-free brands of condiments, used corn tortillas instead of wheat, etc. There's lots of little things you can do that don't cost any more to lessen the amount of gluten in the house. But then you have to make the decision on bread and pasta - the things that do cost more to get a gluten-free substitute and do taste differently. We ended up buying gluten crackers and bread - but dad had to keep those on his side of the kitchen and use his special knife. He was also very careful to wipe everything down, etc. And I pretty much refused to touch his stuff so if he wanted bread, he got it himself. Honestly, I think it was harder on him because all of a sudden everyone's watching him with hawk eyes and making sure he didn't do things like double-dip in the mayo when I double-dipped all I wanted.
-
What catches my eye is that you get glutened often. Sounds like you may have to do some investigation into why and what you can do about it.
-
Hey Jerry,
Sounds like you need to print out this post and tape it to your fridge so in a few months when you feel good again you'll have a constant reminder. I also recommend taping a picture of those adorable girls in your picture (your daughters?) next to it to remind you that it's not just you who's affected when you eat gluten.
-
I certainly would. If your bone are not as dense as they should be you can still do something about it now before the problem gets more serious.
-
Did you grill the chicken BBQ-style or in a frying pan? If it was BBQ-style, the grill could easily be contaminated from previous cooking. Some charcoal also has gluten in it so I always cook in foil just in case.
-
I also used to get the most upset stomach from caffienated coffee. I should try it again because I bet I'd be ok now, but haven't gotten around to it yet.
-
I just started eating meat again after five years of being veggie. I find that meat sits well in my stomach. I never feel sick after eating it. Veggies and grains do not always sit well, I think because they're harder for the body to digest. It's frustrating because I want to not eat meat, but I know it won't make me sick and on days when my stomach is already upset, I don't want to eat a bunch of veggies and make it worse. I do buy free range/hormone free.
Oh, the one meat that doesn't sit well is beef. That always seems to upset the stomach so I don't eat it. Chicken, turkey, fish, etc seem to be ok.
-
Exercising is so beneficial that this sounds like a great present. I'd recommend lifting weights. It's something a lot of women tend to shy away from, but it can be very helpful. If you do a 20 minute cardio workout, you will probably burn around 200 calories. Since you're concerned about losing more weight, an extra snack would take care of the calorie deficit.
I Cannot Do This Gluten Challenge Anymore!
in Parents, Friends and Loved Ones of Celiacs
Posted
It sounds to me that you don't need to do a biopsy. Why put him through that much pain just to get a "medical" diagnosis? Based on his symptoms, I'd say you've already got your diagnosis.
I had been gluten-free for too long when I did my blood test so it came back negative. At that point I had the option of eating gluten for another few months just to get an "official" diagnosis on my record or to stop eating gluten, start healing and get my life back. I chose the second option.