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kbtoyssni

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    Minneapolis, MN

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  • Jen1104

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  1. I'm another one who was diagnosed with fibromyalgia whose symptoms have disappeared after going gluten-free. If you do have celiac, gluten is like an addictive drug to your system so going low carb can cause you to crave gluten and feel really awful withdrawal symptoms. They will go away if you stick with the diet for a bit. Autoimmune diseases also come in pairs (or triples, or quads...) so I'd say you're a perfect candidate for celaic. I think you should get tested, but remember there are a lot of false negatives. If you do get a negative from conventional testing, you might want to try the diet just in case.

  2. I think most people are just curious about the diet and surprised by what you can and cannot eat. Yes, there are some that just don't care and are being hurtful, but I don't think this is the case with most. I don't mind questions - I look at it as a way to educate about celiac and how my life is not over and I can eat "normal" food like everyone else.

  3. I am dietary response diagnosed, and I call myself a celiac. It is easier to explain and I'm of the opinion that celiac is the advanced stages of gluten intolerance so it hardly matters when you draw the line. The treatment is the same for both. In fact, I cannot think of one thing in my life that would change by me "only" having gluten intolerance instead of celiac.

    I also call myself a celiac rather than someone with celiac disease. I know the disease doesn't define me, but it is a huge part of my life and I have wonderful friends and family who don't define me by the disease either, so maybe that's why I don't feel the need to stress the difference when interacting with people.

    Say whatever makes you comfortable. Say what makes your life easiest and keeps you safe.

  4. So I just asked my coworkers, one of whom apparently used to live on a farm in the summers. Hay is dried alfalfa and clover. Some hays could also contain prairie grasses. So I think you'd be ok taking your son to the circus. Although I'm not sure what dried horse food pellets are made of. I do remember someone on here being concerned with horses and wearing a mask when riding and brushing the horse. Maybe you could search for that thread.

  5. 5. Not being able to eat a blue box of Kraft Mac and Cheese.

    This is one very long thread that I haven't had to time read all of so forgive me if this is a repeat. I buy the blue boxes of Kraft, take out the cheese powder and use that with my own noodles. You're right, there's something about boxed mac & cheese that you just can't replicate so thank goodness the cheese is gluten-free.

  6. Tesco, Sainburys and Waitrose (three major grocery stores) all have gluten-free food sections. The labeling laws are really good in England so it's almost easier to find gluten-free stuff. And the English have figured out how to do gluten-free cookies! I always bring back a few boxes with me because the store-bought stuff just isn't all that great in the states.

  7. oh.. is boots own and rimmels stuff gluten-free free? i have mailed rimmel but they havnt replied to me yet.

    I do live with other peeps, so im trying to make my world as gluten-free as possible but i figure its best to go as total as i can and put stuff back

    Here's my response from Boots. They were pretty quick with the reply.

    Thank you for your inquiry regarding the No7 lipstick you purchased.

    None of our lipsticks contain pure wheat rye, barley or oats. The No7 Moisture Drench lipsticks contain wheatgerm oil, therefore, if the allergy to gluten is strong, you may want to avoid using this product.

    All of our skincare products are gluten free.

    Thank you again for contacting Boots. Please let us know if we can be of further assistance.

  8. You can ignore it if you're fine with slowing killing yourself. There is gluten-free beer available. Try Redbridge by Budweiser or New Grist by the Lakeshore Brewery in Milwaukee. And try making some of the breads in The Gluten Free Gourmet cookbook. They're all pretty good.

    I also found that I had many celiac symptoms that I didn't even realize until I went gluten-free. My quality of life has improved so dramatically that there is no way all the beer and pizza in the world could make me go back to eating gluten. And I'll admit, I miss beer, too. That and pizza are the two things I miss. So I experiment with different pizza recipes and have become more adventurous when ordering drinks. Yes, it's going to be very hard at first, and it will rock your world. This is a major life change. And you probably need a few weeks to mourn for what you're losing. I did the exact same thing with peanuts. I spent a few weeks contemplating continuing to eat them because they didn't make me that sick. But in the end I thought about all the people who have to deal with me - friends, family, coworkers - when I'm sick, and I couldn't do it to them. But things get easier, and now I'm so thankful that I feel so much healthier.

  9. I always bring my own stuff to games. I usually try to hide it a bit so I don't have to deal with explaining why I will die if I eat any of their food. If you're worried, though, I'd bring a doctor's note. I did call one place and after arguing with them for 15 minutes about why I should be able to bring my own food, they still wouldn't budge so I just snuck it in. Usually the people at the gates are much more reasonable than the people in charge of food service.

  10. My glove box is filled with snack food in case I'm stuck and need something small to keep me going. I've got things like fruit snacks, pretzels, M&Ms, candy bars, etc. I also always make sure I've got something small or an apple in my purse. Everytime I leave the house I check for wallet, keys, phone and food :) It does take some planning ahead, but if you start getting into the habit now, soon it will become second nature.

  11. This bigger issue with makeup is that you're likely to touch your face and then eat your food and get contaminated that way. Some people do react to touching gluten products, but not all. I prefer to have my whole life gluten-free. When I go home, I have absolutely no worries about contamination or getting sick. I need my house to be a gluten-free zone in order to be 100% at ease there. I realize sometimes this is not possible, especially for those who live with other people.

    Some companies are reluctant to give out ingredients because it's a "trade secret". If you do a search on this site, you'll find plenty of lists of gluten-free makeups. I use CoverGirl, Rimmel, Boots, Bonne Bell stuff. I read the package and usually go by that unless they make other products with gluten and I think there might be a contamination issue.

  12. Congrats on the 5"!

    There's no way to reduce fat in one spot. You just have to keep doing cardio. Unfortunately, the butt and stomach is often the last place to lost fat :(

    Have you had your % body fat tested? That might be useful for you. Since you're doing some weights, you are likely building muscle. Muscle does weigh more than fat so the % fat can be more of a confidence booster than overall weight. The other issue is that if you build muscle in your stomach/butt and lose just a little bit of fat, you may not notice because the muscle is bigger so there's no net loss in inches. But I wouldn't stop doing weights. Muscle also burns calories all the time while fat burns nothing so as you increase muscle your metabolism will increase and the weight loss will become easier.

  13. Scar fading cream (like Mederma) or cocoa butter will help fade stretch marks, too.

    It took me a long time to get over having to buy a larger size in clothing. Once I got past the number, I started to feel fabulous because my clothes fit well and I looked so much better. I also felt so much more confident when I wasn't worried about my clothes looking too tight.

  14. I do know that if General Mills does not label the cereal with the "contains wheat" allergen statement and it is made on the same equipment that makes wheat products, the cleaning procedure is about ten times more rigerous than if they are changing between two wheat cereals. Not to say that CC can't happen, but it's is something GM watches out for.

  15. Welcome! Some soy milks are gluten-free, some aren't. You have to check your brand. And yes, you can become intolerant to soy. Or maybe you were all along and the gluten symptoms were so much worse that you didn't notice the soy. And the crumbs could definitely make you sick.

    But remember you've only been gluten-free for a week which is not very long. It's extremely common to have some ups and downs in the first few months due to CC or the natural healing of your body. So I wouldn't get too worried about other intolerances right now. I'd start to worry if you aren't better in a few months. It is probably a good idea to give up dairy while you're healing (it's the tips of the villi that digest lactose so you may have dairy problems until the villi are healed).

  16. The University of Wisconsin - LaCrosse is great at accomodating gluten-free students, too. They've got a fridge in back stocked with gluten-free food and a microwave. I was there visiting my brother and wanted scrambled eggs so they gave my a clean pan and real eggs rather than the egg mix that's sitting out for everyone to use. The staff was wonderful - they wanted to make me about three meals worth of food, and I had to keep saying no, that the eggs and fruit was enough.

  17. I have to disagree with many of the people in this topic. I don't think such "tests" are intentionally cruel or mean or even idiotic. Disrespectful of what you know to be true about your body... absolutely, but clearly our society has a problem with trusting the individual to know how to take care of themselves. We've bought into the idea that health must be bought... and when it can't the person must be malingering, or exagerating or just plain nuts.

    And this diet certainly IS NUTS. You want me to change conditioners because it has gluten in it? You have GOT to be kidding me! You want me to buy another strainer, when this one has been scrubbed and scoured and run through the dishwasher? You have GOT to be kidding me!

    This diet is crazy. It is UNBELIEVABLE. It's only easy for us to accept because we know how bad we were when we were diagnosed. Most of us were desperate for a cure. And we learn the hard way that these seemingly far-over-the-top details really, honest-to-God, do make us feel terrible. Even if it takes a month for the accumulated damage to take it's toll. We KNOW how bad we feel. And often we hide those feelings from others. In our society, women especially, feel the need to make others think they are healthy and fine, and others just don't understand just HOW bad we really feel. Unfortunately, also in our society, we tend to think the opposite about what others are really doing. So people tend to think we are playing up the symptoms, when most likely we are playing them down.

    I think his point was (though done in a bad way) trying to help you.

    I think our loved ones (as misguided as they are) think they can show us that our life doesn't have to be as hard as we're making it. Maybe he saw how desperate you were to find the answer, and thinks that now that you have an answer, you've blown it far out of proportion. After all, those who are sympathetic to how bad we feel, probably would see a drastic, unreasonable response as completely understandable. Really the diet still seems to me as utterly unreasonable, but as demanding as it is, as over the top as it still seems, I know the demands are real because I experience the punishment. Our loved ones (unfortunately sometimes) don't have the "benefit" of personal experience to convince them.

    I have to disagree with you, too. Someone wanting to help me know for sure I have celiac is one thing. But playing with my health without my knowledge is quite another. I don't care what the culture in our society is; someone experimenting with my health is never ever acceptable. I also expect people to be respectful of my decisions no matter what the reason behind them. As a vegetarian I would have been very upset if someone snuck meat into my food even though meat doesn't make me sick. This situation is all about respect - or should I say lack of respect.

  18. Don't feel like you have to buy things that are labeled gluten-free. There are many mainstream foods that are gluten-free, and they are a lot cheaper. I do most of my shopping at the regular grocery store (been the the gluten-free store maybe once or twice this year). It does take some research to find them, but you'll get the hang of it quickly.

  19. If celiac is the worst thing you've passed on to your kids, they're doing pretty well! And celiac is not a death sentence. It can be inconvenient, but they will be able to lead a "normal" life and do whatever they want even with the celiac. I don't have kids, so I can't quite understand the guilt, but it's not like you did something wrong. There's no way you could have known.

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