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kbtoyssni

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    Minneapolis, MN

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  • Jen1104

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  1. I love going to England - they have the best-tasting gluten free sweets! The Free From brand is amazing. Gluten free is very well labeled there so you shouldn't have as much trouble.

    What airline are you taking? I always fly American Airlines, and I'm a little leary of the gluten-free menu. Twice they have given me four-grain crackers - two of the grains being oats and barley! Luckily it was individually wrapped so I could still eat the rest and I've never had trouble with anything else they've given me. My favorite travel food is those magic peanut butter cookies (made with sunflower seed butter - I'm peanut free, too!) Honestly, I could eat one of those and feel so much better. I also bring two sandwiches and an apple, but you have to be careful to eat them before you land. I never bother with a cooler. I only put cheese and lettuce on my sandwich so I figure it won't go bad.

  2. It will be hard at first. Your body is likely addicted to gluten which means you're going to crave it and want to eat it. That's my best guess as to why you're having trouble giving up gluten. The only way this craving will go away is to go cold turkey for a week or two. You have to trust that the cravings will go away and stick with it.

  3. Hi everyone. I've been having a lot of problems with stiff and painful joints when I work out. One day it will be my knee that hurts, the next my elbows. It's like the pain just rotates from joint to joint. I do have occassions when it stays in one joint for a prolonged period of time, too. I'll admit that I do choose higher-impact sports like gymnastics, skating, snowboarding, racquetball, etc, but I don't think this should be happening. I've also had several injuries, but most of those were years ago and I've done loads of physical therapy since. My question is: how can I minimize this problem? I try to not do the same sport two days in a row and stay off a joint if it's really stiff. I also just started taking glucosamine and condritin (sp?) so we'll see if that helps. I'm just looking for some other suggestions of things I could try.

  4. I would also talk to the cooks before you go into the hospital. You might also want to print up some informational cards for the nurses (kindof like the Triumph) dining cards that emphasize the cc issue so you won't have to explain it all. You might have to recruit your husband to do the talking for you in this case.

  5. Sorry and good luck finding a new doctor. I try to look for someone younger. They may not know a lot about celiac, but they tend to be more willing to learn and try non-traditional things. They would probably still be on the "accepting patients" list just because they're new. I'm not sure if the reason doctors don't believe you is because you don't have an official biopsy, but if I were going to a new doc and they started to doubt me, I'd probably lie and said I had a positive biopsy and blood test. Not that I recommend lying to your doctor... I just get so frustrated with things sometimes it's easier.

  6. I went on an overnight with my girl scout troop last year and I brought all my own food. I was an assistant leader and there was no way I was going to trust a bunch of nine-year-olds not to cross contaminate my salad! We did have access to a kitchen. I tried to bring similar food (like a sandwich for lunch rather than a sub). Didn't want to make the girls jealous that I had "better" food.

  7. You may not even realize some of the effects gluten is having on her until she goes gluten-free (I know I found a tons of health issues that cleared up after going gluten-free that I never expected to go away). And even if she only has a few mild symptoms now, I suspect they will get worse the longer she stays on gluten. I think it would be best to take her off gluten now so she never develops the really bad symptoms.

  8. I also question what is causing the stress. Is it your job? Personal life? Newly gluten-free status? Simply too busy to get everything done? I think you really need to identify what's causing you the anxiety and try to change that part of your life. Adding more "me" time to your life can help, too - like working out, vegging out in front of the TV for an hour, knitting, reading a book.

    Although I've pretty much said that anxiety is somewhat controllable here, that's not always the case. I get very anxious when glutened, and it's not something I have any control over. I can do things to try to lessen it, but the fact is that gluten=anxiety for me. So if trying to change things in your life doesn't work, I'd look for additional food intolerances or CC or talk to a doctor about a possible chemical imbalance.

  9. I do not eat at buffets because of the risk of CC. When my friends go to a buffet, I bring my own food. Sometimes I'll get the waiter to heat it up for me. Since this is a work function, I would try calling the place and explaining your situation and ask if they can make you something separate on a plate.

  10. Is it true that celiacs crave things? (pasta, pretzels, etc?) If so, how do you get over this?? I've visited before telling everyone my dilemma to which the reponses were a good & solid agreement that I would indeed be a celiac, etc. (not that anyone posed as a doctor & that was completely understood) However, I have searched many places & dont see an area of the 'nitty-gritty' of this issue.

    -I used to crave gluten-foods before I went gluten-free. Now that I'm not eating gluten anymore and my body's not addicted, I don't have these cravings.

    How do you get over the meals so many ppl have together? Cooking shows? We're all surrounded by ppl, families, media where it's all geared towards an "eat, be together & happy" attitude. It's not warmth or togetherness unless there's a big slab of gluten on a plate & everyone eats until stuffed & that's that! The celiac always has to be prepared with their little baggie of food so they can enjoy eating with others. Or even though they are 'sitting' with others, their food is exactly the opposite of what everyone else is having, hence the form of seperation anyways? It's always easier to just not go to these things altogether, posing antisocial.

    -I now view social meals as "be together & happy enjoying others' company" rather than "eat, be together & happy". I never used to go to dinner parties for the food. If it was only the food I wanted, I would have stayed home and eaten. I clearly go to dinner parties because there are people there. I always bring my own food. I almost always bring food to share. I don't feel separated because I don't define the event as being about the food, it's about the people and as long as the people are there it doesn't matter what you're eating. [i will note that my friends are fabulous at being inclusive so no one hassles me about having to eat different.]

    If it's not one thing, it's another. I'm so tired of doing what everyone else wants me to do & ending up in a week long pain or my skin boiling with rashes to make them happy. They sure arent wreaking havoc on their bodies from it.

    -It is time to put your foot down and do what you know is best for your body. Other people might not understand, but it's you who has to live your life and in your body so ultimately you have to do the best for yourself.

  11. Some people just won't listen. When I was a kid dairy and sugar made me extremely hyper - like off the walls for three days. My mother would tell people not to give it to me, but they would anyway. And then they'd get scared when I started going wild and call my mum and she'd take me home and deal with me for the next three days. They were never the ones who had to deal with the consequences. I never understood why people won't take your word for it. Do they think you just woke up one day and decided to cut all gluten out of your kid's diet just for the heck of it??? There's got to be a reason why you don't let your child have gluten, and people should respect that no matter what the reason is. I'd tell grandma that you have to deal with the side-effects of her feeding the baby gluten so she will not be looking after the kids on her own again.

  12. There are lots of other good pastas out there, too. I always get DeBoles brand (I think that's how you spell it - it's in a blue box). I think I must be the only person on this board with this opinion, but I don't think Tinkyada is better than other pastas. DeBoles is just as good to me.

    And feel free to post where ever you think the topic fits best!

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