kbtoyssni

Night before last I ate some tortilla chips(Archer Farms from Target) and some salsa from Cosco. Yesterday I could tell one of them caused D. Last night I took 3 capsules of Glucomannan Fiber with water before bed and this morning 2 came out. I just ordered these capsules and they are gluten-free from bionutrients. Has anyone experienced this. Is it because I was glutened?

Slightly OT, but I never buy Target brand anymore. I've had trouble with their vitamins and I thought their mouthwash for a while (although I now believe it is ok). Their customer service is awful - you have to call Target who will give you the number of their suppliers who aren't set up to do customer service calls for consumers. I'd much rather give my business to a company who can tell me right away if their products are gluten-free.

this frustrates me to no end... my daughter gets attatched to a favorite cereal then they turn around and start adding wheat starch to it...

I've been laughing (out of frustration) at Mission tortilla's new ad campaign about their new multi grain tortillas with whole wheat... and they honestly think this is healthier???!!!! I'm tempted to write them a letter and tell them that wheat is toxic to not only Celiacs but the vast majority of people, possibly everyone... they just don't realize it yet.

What??? Mission is starting to put wheat in their tortillas??? Thanks for warning me. Is it just in their wheat tortillas or the corn ones, too?

I'd invite him over for dinner a lot so you can feed him gluten-free - maybe he'll run home and tell his parents how much better he feels when he eats at your place. Maybe you can explain to your SIL that the diet isn't that hard, you'll help her figure it out, let her check out what you keep in your kitchen to show it's not all that different than anyone else's kitchen. And assure her that her husband does not have to give up pasta and bread if he doesn't want to.

If she doesn't want to listen, though, there's probably nothing you can do.

The brand that I take is Florajen. The brand that I think is NOT gluten-free is BC Lactinex.

It is recommended that all immediate family members of a celiac get tested, and I've heard that now they recommend extended family should also get tested. They could be asymptomatic right now but still damaging their body. My brother just got tested even though he showed no symptoms because if he did have it, I don't want him damaging his body for years and then getting really sick later in life. (Turns out he doesn't have it). It can't hurt to get tested, especially if you know celiac is in your gene pool.

I think it could take a month or two to get three weeks' worth of gluten out of her system.

I also suffered from depression. Since going gluten-free I am happier than I've been in years. So if the symptoms of bi-polar have showed up recently - since she started eating gluten again - that could have a lot to do with it. It's possible the drugs might help right now, but I'd wait a month or two and then see how she feels. I was able to go off all the drugs I was taking a few months after being gluten-free. Hope this helps and good luck!

Muscle weighs more than fat so the weight gain could be from you gaining muscle. I'd go more on overall body composition and how your clothes fit rather than weight to determin your fitness progress.

I have no idea why your hair would start falling out again. Maybe there's some hidden gluten at your gym somewhere?

I think the brand of acidopholis I take is Pro Flora. I'll have to check when I get home, though. The label does say gluten-free. I get mine at the health food store, but my old pharmacy also carried it. I got a different brand of acidopholis from my new pharmacy, and I don't think it's gluten-free. I kept getting sick and that was the only thing I changed in my diet. The company couldn't tell me if it contained gluten - they only had information on the active ingredients so I stopped taking it. I'll post the brand later.

I take them and it's the one thing that really helped me. (NOTE, at the time I was diagnosed with fibromyalgia and was taking so many different things to see if anything would help). I went to england for two weeks and didn't take my probiotics with and my guts hated me. Now I think my intestines are healed so I'm not sure if I need them any more, but when I was first healing they helped a lot.

And most people think of going on a gluten-free diet in terms of what they'd miss out on. For someone who doesn't have celiac, it's a lot of negatives and no positives. Which is probably why it's so hard to understand. They sit there and watch me talk to the manager, get out a card of what I can and cannot eat, send my meal back when it gets screwed up and try to explain to confused waiters why they have to make me a new meal. I'm sure it looks like it's the hardest thing to deal with. But it's just what I do. I have no other option so I don't think of it as a negative. They do have another option so for them it would be a hardship.

I don't think she meant anything bad by it. She could have meant that your mother's friends were looking out for her and trying to help out by getting food at a known "safe" place. It probably just came out wrong.

I have a friend who refers to my celiac disease as my "little problem". All the time, in front of other people. It drives me nuts because I most certainly don't have a problem, and I'm not ashamed to talk about my celiac disease, but I let it go because I know she's trying to be nice and politically correct about it. It's more of her problem in not knowing how to handle it rather than her trying to be mean or being unsupportive. A lot of non-celiacs don't know how to bring it up without offending. Another example is that I have many friends who spend hours apologizing that I can't eat their food. And I just don't care. I have fully accepted that I have to bring my own food and don't mind when others eat gluten in front of me. But to them it's a very new concept and they can't imagine having to cut out so much stuff that they just feel badly for me. There's no way they can know just how happy I am to have gotten diagnosed and to be living life again that I don't care that I can't eat gluten. It's one of those things that it's very hard to understand until you've been in that situation.

So, my point it, I don't think your friend meant to offend you.

No more depression!!!

And I have so much more energy. For years I would come home from work and just crash, never realizing that wasn't normal. Now that I've started work again I'm surprised and thankful everyday that I can go home, workout and then get together with friends and not need to nap. Basically, I have a normal, healthy life again. I'd been gradually getting worse for so long, I never noticed it happening.

I cut up a bunch of veggies the other day - onions, peppers, mushrooms, tomatoes - and wrapped them in foil to grill. (Grilling got cancelled so I can't tell you how it turned out.) I also heard that some charcoal is made from cheaper particle-type wood that contains glue, which may contain gluten, so I'm not sure if this is an issue or not. The foil takes care of the problem, but has anyone else heard of charcoal containing gluten before?

-How to avoid your celiac disease becoming the center of attention everytime you go anywhere. I've gone out a few times with friends in the last week and I feel like it's this huge deal because I always have to talk to the waitress, send my meal back when they screw up, ask about ingredients, etc. I don't mind, but I worry people are getting sick of hearing about me all the time. Is there an easy way to deal with this without it always becoming the topic of conversation? I don't mind it sometimes because I like people to know and it's a way to educate them, but everytime I go anywhere???

-How to eat healthily on this diet. I was really good before about knowing nutitional content of things and now I just eat whatever. I have no idea how healthy gluten-free bread and pasta is and how it compares to wheat-based products. It's hard enough making sure you're gluten-free, I don't have any extra energy left to look up nutritional values as well.

I think this is great advice. She will probably be relieved. It's a big responsibility to take on cooking for us! I would definately want to be supervising in the kitchen.

Thanks! I can't even remember all the times I accidently glutened myself in the first few months because I didn't know any better so I'd hate to put myself at risk again like that. Now that I finally have the diet figured out, I'm not willing to risk letting other people cook for me. The other day my friend was asking me if she could make me gluten-free cheesecake. It's so nice of her to want to include me and I want to let her make it, but I'm so nervous about it. She asked a lot of "is this ingredient ok?" questions and I hate saying "yes, usually it's ok, but can you still call the company to make sure they don't make wheat flour on the next line..."

I'm half english, and mostly german for the other half.

Richard, I'm so sorry to hear of your loss. I can't imagine how hard that must be.

It does take time to find the right therapist, but it's worth it when you do. And don't feel badly about needing medication. I've taken anti-depressants before just to get me back on my feet while I learned to deal with my life again. It was nice to have a temporary solution to help me out while I worked with a therapist.

Gosh, I have no idea. I know my mum has trouble digesting certain fruits like pears, apples and grapes, but that sounds like a completely different problem.

You could maybe explain to her how it took you months to figure out the diet and what you can and cannot eat and there's no way you expect her to know everything in just a day or two. Tell her you'd feel awful if she accidently glutened you and that you appreciate her offering to cook, but you'd prefer to cook your own or help her do the cooking and teach her at the same time.

Applesauce! That's all I eat when my stomach hurts.

It might also help if you don't think of it in the same way people traditionally think of a "diet". When you say "diet" people think of self-imposed restriction, that they really shouldn't eat something but if they do the worst that happens is they don't lose any weight this week. This is not the same type of diet. This is a medical issue. Do you want to keep eating things if they literally are killing you? If you were diabetic would you eat sugar all the time and forget to take your insulin? My mindset has always been that "cheating" doesn't exist. I go gluten-free, I get my life back. I eat gluten, I go back to being too sick to get out of bed and eventually die. For me it doesn't ever seem like a choice. It's just something I do.

I'm not sure if this helps at all. It seems like you are in a very different place in terms of relating to the diesase than I am, so what worked for me may not work for you.

I also have the dentist use the plain pumice with no flavoring to clean my teeth. I've never had anything other than a cleaning so I can't help you there.

Anyhow, I hope they can figure out why my niece is not gaining any weight (she is actually tall for her age) but she's 5 1/2 and only weighs 34 pounds. I'm really, really suspicious that somehow, somewhere, she is getting glutened (maybe at restaurants, even though she gets the "gluten-free" stuff?-maybe preschool, though she's great about not eating anything without asking first). Maybe she has other intolerances? (They checked for lactose intolerance I know which was negative). She had a severe case too though, the pathologist said it was one of the worst cases he's seen in a 4 year old (they described her intestines as "smooth")...maybe she has longer to go to catch up because of this? If anyone else has any ideas let me know, since my SIL wants to go in there armed with information. My SIL and I have decided that we have to be our own advocates for this stuff, because they only found out about the celiac after putting heavy pressure on the docs that "we know something is wrong, and don't know what, but you're gonna find out, because this is NOT normal" and they ran a huge bunch of tests and that's when her labs came up borderline positive for it (her main and almost only symptoms were vomiting and failure to thrive). I'm also forwarding her the other information and ideas I find on this board, like what I've read in this thread. Thanks and best wishes to all of you!

Do they use playdough at preschool? That contains gluten. You might also want to look at what brand of crayons and paint she uses - some contain gluten although I don't know what brands. Is she sharing cups with other kids? If the other kid has eaten gluten and then touches her food or cup or the table near her, maybe she's picking it up that way.

There's probably no way to prove that you got glutened there, but you could call and let them know and try to figure out what when wrong. But the next time a celiac comes in, they'd probably get a different waiter so I'm not sure how much good it would do. I always carry around a little card with what I can and cannot eat on it. A lot of times the waiter will take it back to the cook to make sure my meal is ok. I've been lucky - I haven't been glutened at a restaurant yet, so maybe the card works!

BTW, what are nightshades? I'm still new to this....

Nightshades are a family of plants including peppers, tomatoes, potatoes and eggplant. It seems like it's another pretty common allergen on this board.