kbtoyssni

I live in Wisconsin. I'm from Mukwonago and just recently diagnosed celiac disease. Thanks for the info on the Milwaukee celiac disease group - I might check them out!

Yes, I get horrible muscle and joint pain. I was diagnosed with fibromyalgia a few months ago because of it. Since going gluten-free, my pain has nearly disappeared.

I know this is an old thread, but I just happened to stumble across it and thought I'd share my story. I was diagnosed with FMS in July and I figured out I had celiac disease by doing an elimination diet. One doctor flat out said there's no way celiac disease and FMS are related, but about 15 minutes after I eat gluten I get so tired and I start to hurt all over. After about a week of being gluten-free, my FMS symptoms have virtually disappeared. gluten-free is a miracle for me!

I've read that many celiacs cannot tolerate alcohols that are made with distilled gluten grains. Even though the gluten should disappear through the distillation, it seems like some companies add some of the gluten back in after distillation to add flavor. Not sure how true this is, I'm pretty new to this whole celiac disease thing...