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kbtoyssni's Achievements
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You menu sounds way better than what I'm planning! I might have to make breakfast for dinner tonight. Mmmm, hash browns... And I also love Pei Wei. Delicious every time.
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foot long with no bun, onions.
roast corn
pickle on a stick (yuck)
French fries - the fresh cut ones that is all they have at that stand so no cc
apple with Carmel
milk shake
ice cream
lemonade
pork chop
those Aussie potato things, I am not exactly sure whats on them but they look delish
pop corn
snow cone
My concerns would be the foot longs are in the same stand as the buns, probably crumbs get on the grill. Were the fries made in a frier that previously fried gluten stuff? I don't know, the state fair makes me nervous. I believe Northland Celiac group has a booth with a list of gluten-free foods. I'm pretty sure I printed one from the internet a year or two ago but can't find it now. But I look at the list, and I don't see how I wouldn't get CCed. The only things I'd get would be milk or the roast corn. I bring my own food
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You have got to figure out what's glutening you every couple of weeks. That's way too often to be sick! Have you started a food journal? Checked personal care and pet products for everyone in the house? Do you share a kitchen? Could it be something other than gluten? Soy or dairy can cause similar symptoms and I get the same symptoms from peanuts.
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I eat very few gluten-free substitutes, mostly because they're expensive and it would require me to make another stop at another grocery store.
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I would say that I have some food allergies and would prefer to bring my own lunch.
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When I was there a few months ago I went to Nickiemoto's, 990 Piedmont Ave NE. It's a sushi place. I got a plate of sushi and a veggie noddle dish to share. Food was great and I have no problems with being gluten-free. It's also got this outdoor patio that's fun.
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Humm..we he doesnt use the same pan, of course. He uses a whole new pan.
I guess have a talk with hubby and explain what and why I can't do these things anymore. Means him being more strick and careful. We have lysol wipes, I suggested he use them after he makes sandwhiches and if he and the kisd have em HE wash those dishes and wash the sick after welll UGH...I am sure he'll love that...
He asked about Gloves? Could I to make the kids sandwhiches?
Why not have the kids make their own sandwiches? If they're old enough, this could be a good chore for them to take over. Although that could result in a lot of scattered crumbs...
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There is no "mild case" of celiac. That's like saying you are a "little bit" pregnant. You either are pregnant or you arent, you are gluten free and doing the best you can to stay that way, or you don't really care about your health. If you are celiac, you can't eat the cheese your friend has been feeding you, it doesn't matter if you feel it or not. The damage is still being done. Is the risk of cancer not scary enough for you???
Speaking of being just a little bit pregnant... I was watching a commerical the other day that said "wouldn't you want to know if you're a little bit pregnant? Take our test because it can detect pregnancy earlier than other tests!" I had to laugh because of the "little bit pregnant" wording! You either are or you aren't! Ok, back to the topic at hand...
It's important to note that internal damage and outward symptoms are not the same thing. Yes, there are lucky ones who don't get very outwardly sick when gluten is ingested, but the lack of symptoms does not mean no damage. I am one of those lucky ones who doesn't get very sick from gluten. Because of my lack of outward symptoms I sometimes don't realize I'm getting glutened. If I accidentally eat a product that contains gluten several days in a row, I eventually start getting very tired, my joints and muscles ache. Damage does occur each time I ingest gluten, but it often takes several glutenings for my symptoms to get bad enough to realize it's gluten.
You are right that this isn't the end of the world, though. Follow a gluten-free diet (including watching for CC), and you will be healthier and live a longer life. For me, I avoid gluten, and I get to do whatever I want with my life. If I continued to eat gluten I would be lying in bed all day getting government disability checks. So for me it's an easy choice. Giving up bread and pasta isn't the end of the world, but giving up my life is.
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I've found my reaction has lessened. I guess it depends on the person. I've always felt it was because my immune system is better able to deal with this toxin now that it's not constantly overloaded.
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To sum up the several pages:
If a product is naturally gluten free it cannot be labelled gluten free unless:
It has a substance usually containing gluten but rendered "gluten free below 20ppm" added.
I fully realise this does not make sense ... please don't blame the messenger. Read the document and decide for yourself.
I think this is how it is in the UK. So something like fruit and veggies would not be labeled gluten-free, but something with wheat starch could be if it's less than 20ppm. I don't mind that fruits and veggies won't be labeled, but what about things like cheese or chicken? I don't usually think of them as gluten containing, but we all know that it's possible to have gluten in them. Will plain chicken breast be labeled? Do I need to read the label, see if there's gluten in it, then check for a gluten-free logo? Am I still going to have to do research on the possibility of CC - i.e. if plain chicken doesn't have any other ingredients but is manufactured right next to wheat flour? (Silly example, but I've got chicken on the brain!)
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When this labeling takes effect, a product must test below 20ppm to have a gluten free label. You will not be able to label a product that's above 20ppm but below 200ppm gluten free. So this change is much better for us!
If you're talking about what amount of gluten a product that's currently labeled gluten-free contains, who knows. It's up to the company to decide what the criteria are.
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During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.
How did they check for lactose intolerance during a scope? I didn't realize this was possible.
I never eliminated dairy and still eat it with no problems. I guess I was one of the lucky ones! My mum, on the other hand, has had to eliminate casein.
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You mean they don't let anyone take liquids on an airplane? What on Earth for? Is that like a security thing? Do they count frozen things like ice cubes and Popsicles too?
There was a guy a few years ago who tried to make a bomb using a liquid that he had with him - hence the no liquids over 3oz rule. You cannot take them through security, but you can buy a water bottle or juice once you're past security and take it on the plane. I usually bring an empty water bottle and fill it on the other side, although it does occasionally get taken away (mostly in the UK where the rule is no liquids or containers that hold more than 3oz).
You can bring fruit onto a plane, but you cannot bring it into a different country. So only bring what you can eat before landing!
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You can not imagine how much people like this upset me, I just have to vent for a moment.
When I was a kid, my mother d*** near killed herself because she didn't go to the hospital until 9 days AFTER her appendix burst......she became a medical miracle. Then, 8 years ago, she was diagnosed with colon cancer, but it was so far along that she only lived 3 months...........classic *head in the sand* mentallity. These people need to wake up! I firmly believe that my mother was a celiac, but she was too proud and stubborn to believe that anything was wrong.................yeah, well look what it got her
People need to realize that if they continue to ignore their issues, the only thing that is going to make it go away is a funeral!
Sorry, but I just passed the anniversary of my mom's death, and this just hit a nerve.
I'm sorry to hear about your mother. I wish all the people who won't get tested or try the diet because they could NEVER live without bread would realize they are not the only ones affected by that decision. They may feel rotten all the time, but the rest of the family also has to indirectly deal with the consequences of their bad health.
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Swollen feet could also be a sign of heart disease. If your heart isn't pumping well you tend to get blood pooling in the feet and legs. Also think you need to push your doctor to figure this out.
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For the common, yearly blood test kind of results, the doctor will usually just call with the results. For bigger things where a followup appointment is made, the doc usually just waits for the patient to come in. If an appointment is cancelled, I think it's the patients responsibility to call and ask for test results. It might be the nice things for the doctor to call, but I don't think they have to.
It's very common for test results to get overlooked, even for routine tests. I always mark on my calendar to call a doctor back if I haven't received results in a week or two just in case.
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Hey everyone. I went water skiing last week and now I have little tiny reddish bumps where my suit was and other places that would stay damp like behind my ears. It doesn't itch, and I now remember that I would get this same thing in past years at other lakes so I don't think it's parasites or anything like that. Any ideas? Anything I can do to get it to go away faster? I mostly don't like the look and feel of it.
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but being realistic, how many teens want to hear "hey you've been feeling bad, maybe you can fix it by giving up pizza and all your other bad eating habits your friends find cool!" theres no point in spreading the word to teens, most of them would rather cut off their own hand than be socially abnormal. my brother is one of them, he wont get tested despite showing symptoms and knowing exactly what celiac is and all of its potential consequences.
spreading the word to their parents and teachers is much more helpful - i had a vague idea of what a gluten allergy was for 3 years now, but never looked into it until my mother saw a TV special and pressured me to.
I don't completely agree. I know teens don't want to feel different, but if celiac and alternate diets are mentioned more in magazines and shown in teen TV shows and movies, it will make eating gluten-free more socially acceptable. The more people hear about the disease, the less weird it becomes. It's also good to start mentioning celiac at a younger age so people are familiar with it so if they get sick later in life they'll know about it. I am so thankful someone had mentioned celiac to me years before I got sick so that when I did get sick I knew to try a gluten-free diet. My doctors certainly weren't going to be able to help me and without that mention, I wouldn't have been able to help myself, either.
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I agree with the things that have already been mentioned: don't make two meals and don't buy specialty gluten-free products. I buy 99.9% of my food at a regular grocery store. I use a lot of rice and potatoes and corn tortillas (Mission now has a giant package of 2-dozen for ~$2!!!) in place of gluten breads and pastas. And I eat a lot of eggs, those are cheap. I buy in bulk. I buy on sale. I buy giant cans of things and freeze the leftovers.
It does take an adjustment in thinking. It may not have occurred to you that you can do tuna salad on a tortilla or use corn chips to scoop the salad. But eventually it will become second nature. Now it doesn't seem at all odd to take a baked potato or rice with cheese and salsa for lunch. Two years ago it would have seemed really innovative to me to eat something like that.
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Gosh I'm sorry. Health insurance scares me for this very reason. I'm so scared I'll lose my job some day and be in this position. Can you get the continuing/COBRA coverage that's usually offered after losing a job? For some reason I thought there was a way to continue coverage without having to apply and deal with all the pre-existing condition stuff. But I might be making that up.
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She may also want to try acupuncture. I've done it for nerve pain that my regular docs couldn't figure out, and just a few sessions, and I can use my arm again! (after 18 months of pain...) Try googling "community acupuncture" in your area - it's often cheaper than the non-community clinics since it's often not covered by insurance.
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Sorry to hear about the fall. Good luck with the rehab - hang in there, these things do take time. My knee took 18 months to be back to normal after surgery.
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You can take whatever food you want on board. They won't search your bag! In fact, the more food you bring, the less they have to feed you Have fun on the cruise!
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My note says "patient has celiac disease and must carry specific foods with her". Of course, I always get the "what does SPECIFIC FOODS mean"? Well, anything without WBRO, it doesn't matter what... Most of the time I don't have to show my note. You start talking about food allergies and the door checker's eyes start glassing over and they just let you through. Heehee.
Do You Over-buy?
in Coping with Celiac Disease
Posted
I live alone so my freezer is my key to not having to throw out food that's gone bad. It takes me six months to go through a loaf of bread (yeah, I don't eat a lot of bread ) so it gets frozen. It probably doesn't taste quite as good, but I toast it so it doesn't matter much. Bread that gets crumbly or bread recipes gone wrong or stuff I don't like the taste of gets frozen and used for bread crumbs in stuffing.
For things like the tins of pasta you could probably open them and freeze in a big container. Or if your daughter doesn't like them anymore, try mixing them with cottage cheese, top with cheese, maybe add some veggies and pop in the oven for a spaghetti pie. And do tinned foods really go bad??? Or are the expiration dates just a suggestion? Cereal and cereal bars could probably be made into coating for chicken nuggets or rice krispie-type treats.