marciab
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marciab's Achievements
About Me
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
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Sudden Spells Of Extreme Sleepiness When Glutened
marciab replied to raisin's topic in Related Issues & Disorders
I could've written this .. Narc episodes are very different from hypoglycemic. I used to try to sleep standing up. I think the only think keeping me awake was my nocturnal myoclonus (jerking when I'd go into REM). I'm working on my OI (orthostatic intolerance) now too. Sorry to get off topic, but have you tried salt loading ? It helps quite a... -
I've been wondering about this too. I have nocturnal myoclonus (jerking when going into REM sleep) and insomnia if I eat any gluten whatsoever. I got glutenned Sunday and was feeling the effects Sunday nite when trying to fall asleep. So, I took 1 Benadryl capsule and within an hour I was sound asleep and slept 8 hours. Normally, I would've been doomed...
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New - Is It Worth It?
marciab replied to DownWithGluten's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you tried taking any of the common food allergens (wheat, dairy, soy, corn and eggs) out of your diet to see if one of these is upsetting your stomach ? marcia -
In researching nutrients, I found several sites that said fats / omegas were necessary for our brains / nuerotransmitters to function. Also, the mind science.org site mentioned other foods that contained nutrients that our brains need to function . Blueberries, leafy greens, etc. Maybe each of us just need to find the right combination of nutrients before...
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I went gluten free in September 2005 and as of September 2006, I have been walking normally for the first time in 16 years. I could walk short distances most of the time, but my legs felt weak and I was having to use a motorized cart to go grocery shopping. My myoclonus (seizures) started getting better back in April 2006 and now it only happens occasionally...
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New Here! celiac disease & Epilepsy?
marciab replied to Snap's topic in Parents, Friends and Loved Ones of Celiacs
I was never diagnosed with epilepsy, but I do have a history of nocturnal myoclonus (uncontrollable movements) and the myoclonus that affects your hands. I was unable to write legibly. Both have gone away within the last month and I am medicine free. I also cleaned up my diet though and avoid dairy, eggs, soy, corn and the "crap" found in processed... -
I get this too. Always the bottom lip and always in the same spot. Weird, huh ? At first I thought I was allergic / sensitive to salt because it was happening every time I ate salt. Then I am thought it is only when I OD on salt. I love salt on my watermelon. But, that's not the case either. On a lighter note, now everytime I see someone with...
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Ok, Now I feel like I have a home. I was feeling embarrassed because I don't have any facts to back up my celiac diagnosis other than my positive diet results. But now that I have been here awhile, it appears that very few actually have the luxury of meeting the gold standard requirement set by the medical community. It's re-assuring to know that I am...