cristiana
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Wheatwacked reacted to a post in a topic:
Options - 7 year old boy - Helicobacter pylori and serology
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As a parent myself, I find we feel these things very keenly, it is completely understandable that you feel the way you do. It won't always be easy for your son, of course, but honestly most of the coeliacs I know are very healthy individuals who enjoy life to the full and have adapted very well. Family support is a massive factor in this, and your son... -
Thank you for the update. At least now you know what you are dealing with. Is the system similar to that in the UK in that you will have a follow-up with the gastroenterologist where you can ask any questions you have, and also a referral to a nutritionist?
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One thing I ought to add is that although any new medical condition diagnosis can come as a huge shock/blow, navigating the gluten free diet will one day become second nature to you all Yes, mistakes occur on the way, but it will get easier. A few things that have helped me on my journey: 1/ My husband has said to me a few times, and I think it...
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@Kathleen JJ I am based in the UK. The following link is to a website for UK based consumers but even post-Brexit, we are still importing from and exporting to mainland Europe, so chances are some of the products mentioned in the link are from the same factory. Therefore, what your son eats would likely be the same product that I eat when it comes to eating...
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If your son eventually becomes very symptomatic, that in itself will help keep him on the diet. I had a friend who was diagnosed roughly the same time as me and she used to tell me a lot that she could get away with eating certain gluten containing foods. (Not a good thing to do, but she did all the same). In time she was unable to tolerate them anymore...
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cristiana reacted to a post in a topic:
Options - 7 year old boy - Helicobacter pylori and serology
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Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear. I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter...
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Scott Adams reacted to a post in a topic:
Louise
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Louise
cristiana replied to Louise Broughton's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You are very welcome.😊 Do keep posting if we can help any further, and also if you aren't a member already I would recommend joining Coeliac UK if only for one year - they produce a very good gluten-free food and drink guide, a printed copy and also an app you can use on a smartphone which I am told is very helpful when one shops. I think the one th... -
Scott Adams reacted to a post in a topic:
2 months in... struggling with symptoms
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Hi @aperlo34 Welcome to the forum. I am so sorry to read that you have been going through all of this. Firstly, I should say that your experience of anxiety is very common, and also, the worsening of symptoms is also something we see reported quite a lot on this forum. Achy joints, twitching as you describe and other symptoms were things...
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You are more than welcome. I think there are quite a lot of different types out there, my own nutritionist was a v. highly qualified scientist as well, but at least you can see what qualifications they are which seem to be quite well stated. I wish you all well on your son's coeliac journey. Cristiana
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Scott Adams reacted to a post in a topic:
How to choose a Naturopath for 6yr old
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knitty kitty reacted to a post in a topic:
How to choose a Naturopath for 6yr old
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Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link). For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a...
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cristiana reacted to a post in a topic:
Gluten Free ADHD medications
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@Gluten is bad Hi! I just caught this post, and am writing on the off-chance that you might be based in the UK. If so, I was told some years ago by a pharmacist that in the UK that if a medicine has a Product Licence printed on the packaging, which will appear as the letters PL plus a long number.... for example.... PL 4525908 (making that number...
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Scott Adams reacted to a post in a topic:
Nighttime Soiling (5 year old)
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Nighttime Soiling (5 year old)
cristiana replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi @sh00148 I am so glad that your son is going to have a blood test next week. If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest. However, one thing you may wish to change... -
cristiana reacted to a post in a topic:
Nighttime Soiling (5 year old)
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cristiana reacted to a post in a topic:
Can Celiac disease be related to Interstitial Cystitis.
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cristiana reacted to a post in a topic:
Can Celiac disease be related to Interstitial Cystitis.
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Thanks, @knitty kitty. I've been tested and don't have it, but there is certainly something odd going on. If I get indigestion that can set off palpitations, my sister has that too.
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cristiana reacted to a post in a topic:
Passing out
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Well, @mswhis I too have IBS, and I think bloating has a similar effect to constipation. Any changes that can lessen that internal pressure should help. Do you have pain in your sacroiliac region, or along the pudendal nerve? I have that. But it does seem to be a lot better now than it was several years ago when I first started the gluten-free diet.
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That's a shame, but on another tack - if you are coeliac with digestive issues, such as constipation, you may find that as they settle that might help somewhat. I've just had a quick read online and I see, for example, that constipation can exacerbate IC pain. https://www.healthline.com/health/constipation/interstitial-cystitis-and-constipation ...