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cristiana

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cristiana last won the day on April 10

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  1. I think it takes different people different amounts of time, but in my own case I had pain, bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went. I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks...
  2. A pleasure. It could just be the oats (even pure ones can cause problems for some coeliacs, as I mentioned) but don't be discouraged if that is the issue, as for most of us that passes. Very odd, really, as before going on a gluten free diet, they had no effect on me at all!
  3. Hi @Farralley and welcome to the form I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp. Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I...
  4. Hi @CarolTN I haven't been diagnosed with seborrheic dermatitis but as @Scott Adams says, like a lot of coeliacs I do suffer from itchy skin, and now adult onset eczema. The latter started during one of the lockdowns. I find my skin is often itchy if the temperature changes from hot to cold or cold to hot, that seems to set it off. This time of...
  5. I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
  6. This is a very good comment. I found all sorts of things difficult to stomach for about 2 years after my diagnosis , that I was able to eat again after a while. Eventually there was one thing that I still couldn't eat and that was pure oats (i.e. those certified uncontaminated with gluten, the only oats we coeliacs should be eating). I think it took...
  7. Funny you should mention this. Three times in the past I've had a similar reaction to glutening when I eat broccoli. People have suggested I try it again to make sure it is the problem but I have three distinct memories of meals containing broccoli which caused chills, feeling sick and diarrhea within an hour or two of eating (and this was before I was diagnosed...
  8. Hi @Michael McDonald and welcome to the forum. Everyone's experience varies, and I think what you are experiencing is normal, having read a lot of different accounts over the years. Of course, there is always just a slight chance that gluten might still be getting in somewhere, or that your symptoms might also be down to a gastric virus or food poisoning...
  9. Hi Violet That's great that he is consuming gluten. When I was tested a few years ago we were told to to include "gluten in more than one meal a day for at least six weeks before testing." @Scott Adams or another Mod might update this, as I believe the thinking is changing on this. Re: Coeliac screening. Yes, the fact that your boyfriend was...
  10. Hello Violet The fact that you are posting from Italy is good - we coeliacs on this forum hear a lot of good stories about Italy being ahead of the game, testing all children at 6 years of age, I seem to recall? Also, Italian doctors should be aware of the work of Dr Alessio Fasano, and his work on gluten and coeliac disease, including neurological...
  11. Hello @VioletM and welcome to the forum. I am sorry to hear of your boyfriend's problems, but I am so glad he has someone helping him look into things. When I was diagnosed and I had a few albeit mild neurological issues (migraines, hallucinations, tingling and buzzing in my extremities and mild facial twitching) and some started long before I had...
  12. Hi Sammy I was going out for a meeting when I wrote my last post, and wanted to add something to your second comment, but didn't want to rush the post in case it came out wrong. The push for a diagnosis tends to be because it is worth finding out for sure if one has coeliac disease or not if one has been experiencing gastric symptoms. Coeliacs...
  13. Hi Sammy Don't worry I understood the English, and I'm from the UK.🙂 Trents is quite right, though, it is possible to feel perfectly well and have coeliac disease. Cristiana
  14. @Sammy Web I think the whole time I've been on this forum I've only come across one British person who has had the coeliac genetic test. Obviously that doesn't mean others haven't, and I may have missed other posts, but it is my understanding that the NHS don't offer the testing routinely. I'm from the UK, too. I know that that when I have had biopsies...
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