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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi @CarolTN I haven't been diagnosed with seborrheic dermatitis but as @Scott Adams says, like a lot of coeliacs I do suffer from itchy skin, and now adult onset eczema. The latter started during one of the lockdowns. I find my skin is often itchy if the temperature changes from hot to cold or cold to hot, that seems to set it off. This time of...
  2. cristiana
    Interesting idea @cam6!
  3. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
  4. cristiana
    This is a very good comment. I found all sorts of things difficult to stomach for about 2 years after my diagnosis , that I was able to eat again after a while. Eventually there was one thing that I still couldn't eat and that was pure oats (i.e. those certified uncontaminated with gluten, the only oats we coeliacs should be eating). I think it took...
  5. cristiana
    Funny you should mention this. Three times in the past I've had a similar reaction to glutening when I eat broccoli. People have suggested I try it again to make sure it is the problem but I have three distinct memories of meals containing broccoli which caused chills, feeling sick and diarrhea within an hour or two of eating (and this was before I was diagnosed...
  6. cristiana
    Hi @Michael McDonald and welcome to the forum. Everyone's experience varies, and I think what you are experiencing is normal, having read a lot of different accounts over the years. Of course, there is always just a slight chance that gluten might still be getting in somewhere, or that your symptoms might also be down to a gastric virus or food poisoning...
  7. cristiana
    Hi Violet That's great that he is consuming gluten. When I was tested a few years ago we were told to to include "gluten in more than one meal a day for at least six weeks before testing." @Scott Adams or another Mod might update this, as I believe the thinking is changing on this. Re: Coeliac screening. Yes, the fact that your boyfriend was...
  8. cristiana
    Hello Violet The fact that you are posting from Italy is good - we coeliacs on this forum hear a lot of good stories about Italy being ahead of the game, testing all children at 6 years of age, I seem to recall? Also, Italian doctors should be aware of the work of Dr Alessio Fasano, and his work on gluten and coeliac disease, including neurological...
  9. cristiana
    Hello @VioletM and welcome to the forum. I am sorry to hear of your boyfriend's problems, but I am so glad he has someone helping him look into things. When I was diagnosed and I had a few albeit mild neurological issues (migraines, hallucinations, tingling and buzzing in my extremities and mild facial twitching) and some started long before I had...
  10. cristiana
    Hi Sammy I was going out for a meeting when I wrote my last post, and wanted to add something to your second comment, but didn't want to rush the post in case it came out wrong. The push for a diagnosis tends to be because it is worth finding out for sure if one has coeliac disease or not if one has been experiencing gastric symptoms. Coeliacs...
  11. cristiana
    Hi Sammy Don't worry I understood the English, and I'm from the UK.🙂 Trents is quite right, though, it is possible to feel perfectly well and have coeliac disease. Cristiana
  12. cristiana
    @Sammy Web I think the whole time I've been on this forum I've only come across one British person who has had the coeliac genetic test. Obviously that doesn't mean others haven't, and I may have missed other posts, but it is my understanding that the NHS don't offer the testing routinely. I'm from the UK, too. I know that that when I have had biopsies...
  13. cristiana
    Hi @herminia I am not sure reading your post if you are actually consuming gluten still, or are tempted to do so, but if the former, that's what is most likely causing your worsening pain. If you aren't consuming gluten, you may find that the Omeprazole is actually causing issues by causing low stomach acid as @knitty kitty suggests. You may...
  14. cristiana
    Hello @Sammy Web and welcome to the forum. Just one question - you say you pretty much cut out gluten and caffeine. Were you eating gluten when you had your coeliac blood test? Cristiana
  15. cristiana
    Hello @Paula Andrews I started to get a whole host of new pains around the time of my diagnosis and afterwards, quite apart from the expected gastric pain. Pelvic pain was caused by bloating from dairy products; pain in my chest due to bloating caused by iron supplements; costochondritis in my ribs, which was a dull diffuse pain not emanating from the...
  16. cristiana
    Hi @MTAC Welcome to the forum. I am so sorry to read about your situation. I'm a UK coeliac so I thought I'd add this to Trent's and Scott's excellent posts. Here the UK my TTG test results frequently lag behind my other annual lab results. I think the longest it took was a couple of weeks, but from memory on this forum I've read at least one...
  17. cristiana
    I'd like to second supplementation. Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness. We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and...
  18. cristiana
    Hello @Cathijean90 Firstly, welcome to the forum, you have come to the right place! I know this is much easier to say than to do, but try not to worry. Whilst it is awful on so many levels that you have only just found out that Coeliac Disease is the issue behind all your problems, when you could have known 15 years ago, as Trents has said, it...
  19. cristiana
    Hello @Heather Hill You are most welcome. As a longstanding member and now mod of the forum, I am ashamed to say I find numbers and figures very confusing, so I rarely stray into the realms of explaining markers. (I've self-diagnosed myself with dyscalculia!) So I will leave that to @Scott Adams or another person. However as a British person myself...
  20. cristiana
    Hi @Heather Hill Welcome to the forum. What I do find is that legumes seem to exacerbate both stomach ache, bloating and backache symptoms such as lentils, beans etc, whilst the gluten containing grains do not obviously seem to. I definitely found lentils and other legumes caused me similar symptoms to you in the early days adopting a gluten...
  21. cristiana
    Thank you for the update. So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy. Glad you know where you stand. As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
  22. cristiana
    Hi Dc91 Excellent advice there from Trents. He is right, not eating gluten now could generate a negative result if you do end up having an endoscopy especially as NHS waiting lists can be quite long. I'd definitely double check with the doc. Cristiana
  23. cristiana
    Hello Dc91 and welcome to the forum! Could you first just add the lab ranges for us for your TTG IgA Antibodies as they vary? Cristiana
  24. cristiana
    I missed this article when it was first put up. It is interesting to read, as my old neighbour who sadly passed away a few years ago was a trainee midwife during WWII. Bananas disappeared from the shops in Britain during the war, but she told me that those that did get to the UK were kept back for infants with coeliac disease. I didn't realise that...
  25. cristiana
    Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell. Can you tell us exactly what sort of pain you are experiencing and where the pain is? Is it your lower abdomen, upper abdomen etc? Do you have any other symptoms? Cristiana
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