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cristiana

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Everything posted by cristiana

  1. cristiana
    Just to say that I too was hesitant to come off dairy products completely @dsfraley. Milk, yoghurt and soft cheeses definitely caused bloating. This bloating gave me rib and pelvic pain, and I remember the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu. Milk, yoghurt and soft cheeses also...
  2. cristiana
    Hi @trents Two things can happen: 1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus for a couple of days. 2/ For a substantial glutening, and thankfully it's only happened once in recent years, I get bad chills...
  3. cristiana
    Thank you @knitty kitty x
  4. cristiana
    Brilliant news for British Coeliacs! Colin was launched in 1990 so I am fortunate in that I was able to try this amazing chocolate swissroll cake before my diagnosis. But the good news is he has now appeared in the Gluten Free aisle at M&S, and also is available home delivery through Ocado. https://www.marksandspencer.com/food/made-without-wheat...
  5. cristiana
    Re: Michelin star. To give an example, the Ritz Hotel in London has two Michelin stars. Here's another article about Michelin stars - from our own archive.
  6. cristiana
    Very helpful @knitty kitty. Thank you. I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E. I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me. One day when my anxiety was completely through the roof...
  7. cristiana
    @trents Good question. We are strict at home, although I have to admit I've eating the odd thing that turned out to have been made in a shared facility. But that is very unusual for me, Therefore I have concluded that eating out must be the issue, which I do a lot more of now. But I do need to put it to the test, and I hope to do this by not eating...
  8. cristiana
    Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my TTG levels to settle to normal levels in blood tests. I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened...
  9. cristiana
    Totally agree, that is an excellent point. I tend to mention these vitamins and also ferritin, because in England (not sure about the rest of the UK) these are the tests generally offered routinely through our public health system. It is unusual to be offered much more than that. I was low normal/deficient in all three, and found that when I supplemented...
  10. cristiana
    PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood. I think what I am trying to say is you are going through a lot all at once, it is not surprising that...
  11. cristiana
    Hi @EvieJean I was delighted to read @hjayne19's comments about A LIfe at Last as the book definitely helped me to understand how anxiety works. You may be suffering from vitamin and mineral deficiencies which will can contribute to and even cause anxiety. Have you had any tests done? If you have and 'normal' results , do take a second look at...
  12. cristiana
    Hello @Heavenly Flower Welcome to the forum! It will take time to master the diet and find what foods you can eat but I'd suggest what might make it easier is to keep a food diary. You can write down what you ate, and then any symptoms that arise in a day. Patterns do start to emerge. Also, it is worth bearing in mind that sometimes intolerances...
  13. cristiana
    Very helpful advice from @trents I just wanted to chip in to say I had elevated liver function tests prior to and some months after diagnosis. Namely raised immunoglobulins at a level of 41, when the cut off for normal in our local lab was 35. I was quite scared all this time, esp. when my GP didn't know what she was dealing with, and even...
  14. cristiana
    Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  15. cristiana
    Watch this space! 😊
  16. cristiana
    I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10). Since then it has gone up to 10. I am not happy with that. I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I...
  17. cristiana
    Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
  18. cristiana
    When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  19. cristiana
    I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it.
  20. cristiana
    @Charlie1946 You are more than welcome. If you are struggling with mental health do consult with a medical professional and follow their advice if they think you need medication, as I did for a while, but I hope you will find these books as helpful as I did on the road to recovery.
  21. cristiana
    I agree with you @GlutenFreeChef that you should still react to European flour, so long as it is regular gluten containing flour. Even if the reaction is not anything you can actually feel, the damage should be going on internally if you do a proper gluten challenge. My gastroenterologist has told me more than once that he has coeliac patients who...
  22. cristiana
    Sorry... I accepted it! I don't want shingles EVER again!
  23. cristiana
    Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk. I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me. Soon after diagnosis I suffered...
  24. cristiana
    That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection. If do see my gastroenterologist I'll mention it again. I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm...
  25. cristiana
    @Scott Adams Strange question but can you actually feel your hernia? I have so many abdominal lumps and bumps of longstanding (my GP said it's fat!) that I sometimes wonder if an inguinal hernia could be missed. I am quite sure some of my pain is from my umbilical hernia but that first came about courtesy of my second pregnancy.
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