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cristiana

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Everything posted by cristiana

  1. cristiana
    When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  2. cristiana
    I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it.
  3. cristiana
    @Charlie1946 You are more than welcome. If you are struggling with mental health do consult with a medical professional and follow their advice if they think you need medication, as I did for a while, but I hope you will find these books as helpful as I did on the road to recovery.
  4. cristiana
    I agree with you @GlutenFreeChef that you should still react to European flour, so long as it is regular gluten containing flour. Even if the reaction is not anything you can actually feel, the damage should be going on internally if you do a proper gluten challenge. My gastroenterologist has told me more than once that he has coeliac patients who...
  5. cristiana
    Sorry... I accepted it! I don't want shingles EVER again!
  6. cristiana
    Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk. I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me. Soon after diagnosis I suffered...
  7. cristiana
    That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection. If do see my gastroenterologist I'll mention it again. I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm...
  8. cristiana
    @Scott Adams Strange question but can you actually feel your hernia? I have so many abdominal lumps and bumps of longstanding (my GP said it's fat!) that I sometimes wonder if an inguinal hernia could be missed. I am quite sure some of my pain is from my umbilical hernia but that first came about courtesy of my second pregnancy.
  9. cristiana
    Hi @tiffanygosci Well done for reaching out, fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier. I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be,...
  10. cristiana
    You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy. Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter...
  11. cristiana
    Forgot to add... Quite a lot of 'tapas' are gluten free. Ones to look for: Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish. Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which...
  12. cristiana
    Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems...
  13. cristiana
    Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety. I had awful anxiety at diagnosis, and that feeling of doom that you describe. My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me. I then got a phobia...
  14. cristiana
    @trents - THANK YOU, that is a really helpful and interesting post. I have had fairly extreme symptoms. Being a veteran hypochondriac I've been imagining all sorts and what you say makes me think I've probably been up to my usual catastrophizing! That said, I foresee another colonoscopy appointment if things don't settle down soon., and if I have...
  15. cristiana
    Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc. After a week or so I felt awful bubbling and bloating in the area which I would say is the...
  16. cristiana
    Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
  17. cristiana
    Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  18. cristiana
    Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
  19. cristiana
    It could well be a new intolerance developing. Does your diet incorporate pure oats i.e. those safe for coeliac consumption? I find I can only tolerate a certain amount, same goes for dairy in fact, then I start to get gastric symptoms. Or have you started consuming a new type of gluten-free bread, or more gluten-free bread than normal, that might contain...
  20. cristiana
    I agree with @trents, could be worth having another scope. Oddly enough I'm in the same boat except my current odd sensation is near my appendix, I think I'll request a colonoscopy for peace of mind.
  21. cristiana
    Have you mentioned it to your gastroenterologist?
  22. cristiana
    Hello @pilber309 and welcome to the forum. (Nice to meet an almost-twin, I have nearly reached 14 years post diagnosis, too!) I suffer from burning pain in an area which you might be describing: if you were looking at me, south of my ribs, between the sternum and belly button. Is that the area you are talking about? I get this pain when I am...
  23. cristiana
    I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
  24. cristiana
    More great tips, and a good excuse to shop at M&S and also buy more iced buns! I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops. Thanks so much, @Russ H.
  25. cristiana
    Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...
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