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cristiana

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Everything posted by cristiana

  1. cristiana
    Interesting, when I suffered for a few months with ectopics I noticed that carbohydrates would cause indigestion and bloating in my stomach, then that would lead to my heart skipping beats, and I could feel it in my throat, it was very unsettling. My last serious bout of this was after eating a Muller Rice Pudding for breakfast. I happened to be wearing...
  2. cristiana
    Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
  3. cristiana
    Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  4. cristiana
    @Colleen H I am just curious, when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium. Might be worth looking into having some more tests. Pins and needles can be neuropathy, again caused...
  5. cristiana
    Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
  6. cristiana
    I seem to recall that my digestive issues actually started when I was taking NSAIDs c. February 2013 for some unrelated condition. My stomach got so sore during that time I went to see my GP and she thought it might be an ulcer or gastritis so prescribed me Omeprazole. That appeared to trigger diarrhea which, once I came off the Omeprazole, did not...
  7. cristiana
    I cannot tolerate it at all - triggers burning and nausea, ditto aspirin. Here in the UK I take Paracetamol.
  8. cristiana
    @Gigi2025 Thank you for your interesting post. Some of what you say chimes with something my gastroenterologist tells me - that he has clients who travel to France and find the same as you - they will eat normal wheat baguette there without issue, for example. His theory was he thought it might be to do with the locally sourced wheat being different...
  9. cristiana
    Broccoli of all things. Chills, extreme nausea, diarrhea - lasts until it's passed through my system. Very similar to glutening. This started to happen to me some years prior to my coeliac diagnosis. Very odd.
  10. cristiana
    That's great news, you can do this. Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
  11. cristiana
    Not a scientific reply, but I thought I'd just chime in to reply the first part of your question: how long? Before I started to have gastric symptoms, I weighed about 66 kilos, and in the course of the following months, I seem to recall I lost about 6 kilos. From memory the last 2 or 3 kilos dropped off even when I was beginning to eat gluten free, from...
  12. cristiana
    Update - my Active B12 is 36. Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal. I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great,...
  13. cristiana
    Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test? I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests. My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals...
  14. cristiana
    Hello @lehum Greetings from the UK. Another struggler here - and I'm a Moderator on this forum, and have been extremely strict about my diet! My antibodies took years to come down to normal levels. Very annoying particularly when had friends who seemed to be the miracle turnaround celiacs that one reads about (although, of course, I am happy for them...
  15. cristiana
    @knitty kitty I saw my consultant yesterday. He is not worried about my high MCHC levels, he said he was more interested in my MCV levels and they are fine.. The Holocolobim test apparently is going to take time to come back - the report says 17th October which I think isn't actually the true date, I think it's just a random date thrown out by...
  16. cristiana
    Hi @knitty kitty Thank you, Kitty, and lovely to hear from you as well as trents on this one, I do appreciate your knowledgeable replies. Haemoglobin A1C and HBA1c have both come back as normal, so I think I am OK there - although I'll freely admit that I love sweet things and if they ever design a test which shows consumption of carbs over time...
  17. cristiana
    Hi Trents Good to hear from you and thanks for your prompt response. As far as I know I don't have any other autoimmune diseases but this elevated MCHC which has been in the background for some years now makes me wonder if I have something that has hitherto gone under the radar. I do wonder about B12 anemia. When I was diagnosed with coeliac...
  18. cristiana
    Hello All I've just received some puzzling blood results. My blood results have always been a bit odd since my coeliac diagnosis - a few things out of range, but the only thing my consultant has ever wondered about is whether I am developing a condition called Polycythemia, as my hemaglobin can be a little high at times. He did mention last time I...
  19. cristiana
    Thank you for the update @Rejoicephd it is good to know that you may have some answers. Keep up the good work with your diet, and do let us know if you do get a firm diagnosis. I took so long to feel better and for my TTG levels to normalise, but got there in the end, so also bear in mind it does take longer for some of us.
  20. cristiana
    Hi there @MCAyr I have a small umbilical hernia which came about during my second pregnancy. I can just about see it, and feel it, when I stand or sit, but it is far less noticeable when I lie down. I always know when I am putting on weight because I can get pain and burning near the site, funnily enough not on the hernia itself but either side! ...
  21. cristiana
    I was thinking similar thoughts. Names/brands would be very helpful.
  22. cristiana
    Well, this is interesting. I am based in the UK and it just so happens that I've been eating a lot more oats recently, gluten-free of course, and I'm beginning to feel quite nauseous, I have an unsettled stomach and quite a few aches and pains. In three weeks I have my coeliac review - if my TTG levels are higher than last year, maybe that will be why...
  23. cristiana
    Great advice from @trents. A couple of other tips. Firstly, always try to have a good stock of gluten-free alternatives in the house so you aren't tempted to give in when there is nothing else available. Secondly, as you will have noticed, gluten-free bread does taste quite different from regular bread. But I think it was my GP who said...
  24. cristiana
    The early days are often tricky for the newly diagnosed. There were times I thought I'd never feel better, but it just takes some people longer than others. Hang on in there, and keep posting with any questions as they occur or if you need any encouragement.
  25. cristiana
    Great to have another UK person on the forum! Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana
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