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cristiana

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Everything posted by cristiana

  1. cristiana
    I have a good friend here in the UK who had negative blood tests but her symptoms were such that her gastroenterologist strongly advised that she had an endoscopy with biopsies taken from several sites to absolutely rule out coeliac disease. He was particularly keen because her father was a coeliac. It turned out that she did not have any villous...
  2. cristiana
    Hi LC9 Welcome to the forum. You are not the first person I've come across who was sent for an endoscopy but no biopsies were taken. I vaguely remember someone on this forum had the same thing happen to them, and another friend of mine who is unable to eat gluten was sent for one and they just looked with the camera! I found it extraordinary,...
  3. cristiana
    Just to add a quick note to this discussion, although you are as yet not anemic. My GP told me she saw a man in her clinic a little while after my own diagnosis and she said his symptom was anemia. She thought of me straight away, as anemia was one of two main symptoms (the other was anxiety). My GP tested the man and he indeed did have coeliac...
  4. cristiana
    Hi @Aileen Cregan and welcome to the forum. Looking at the time of day you have posted this, and also your spelling of 'coeliac' i.e. with an 'o', may I hazard a guess that you are in the UK? I live in England and I too have been told something similar to you. Here are a couple of posts on the Coeliac UK website which might be an interesting read: ...
  5. cristiana
    Quick update. I saw the title of this thread and forgot that I'd actually started it! Oh dear! It seems my new healthy diet was the cause of these symptoms, I had a clear colonoscopy, thankfully. Now I know what it is I shall try to resume the healthy diet - the symptoms are annoying rather than painful, and I think it was doing me a lot of good,...
  6. cristiana
    Hi @Maureen armey Just one point re: PPIs. Here in the UK the people I know with Barretts have had to take them long term, or H2 blockers instead, despite the fact they have side effects. I feel that it is very important that you follow your consultant's advice re: this type of medication but if you do need to take them longterm, see if they can offer...
  7. cristiana
    I must admit I felt the same as you about the load being lightened when I came across people on this forum back in 2013 and saw that others had the same symptoms as me. I had so many weird and wonderful symptoms that I thought something else other coeliac disease was going on. Being a hypochondriac, I worried about them all! It is incredible the damage...
  8. cristiana
    Welcome @KaCS! Deficiencies can cause neurological symptoms including nerve pain. I wonder if you have had any blood tests which show any vitamin (such as B12 and vitamin D) or mineral (such as iron) deficiencies? Chances are, if you have borderline results or clear deficiencies, you will be deficient in other vitamins and minerals. Even before...
  9. cristiana
    Welcome to the forum, Maureen. I suffer from reflux and Barretts is often at the back of my mind as I also suffer from a very itchy throat from time to time. My last endoscopy showed no inflammation but next time I see my consultant I might ask for another scope, its been a while since the last one. Anyway, I just wanted to say that in my case...
  10. cristiana
    Good evening @EssexMum You are quite right to be concerned about this situation. Once diagnosed as coeliac, always a coeliac, and the way to heal is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019. My spoken French isn't bad...
  11. cristiana
    Just to say that I too was hesitant to come off dairy products completely @dsfraley. Milk, yoghurt and soft cheeses definitely caused bloating. This bloating gave me rib and pelvic pain, and I remember the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu. Milk, yoghurt and soft cheeses also...
  12. cristiana
    Hi @trents Two things can happen: 1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus for a couple of days. 2/ For a substantial glutening, and thankfully it's only happened once in recent years, I get bad chills...
  13. cristiana
    Thank you @knitty kitty x
  14. cristiana
    Brilliant news for British Coeliacs! Colin was launched in 1990 so I am fortunate in that I was able to try this amazing chocolate swissroll cake before my diagnosis. But the good news is he has now appeared in the Gluten Free aisle at M&S, and also is available home delivery through Ocado. https://www.marksandspencer.com/food/made-without-wheat...
  15. cristiana
    Re: Michelin star. To give an example, the Ritz Hotel in London has two Michelin stars. Here's another article about Michelin stars - from our own archive.
  16. cristiana
    Very helpful @knitty kitty. Thank you. I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E. I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me. One day when my anxiety was completely through the roof...
  17. cristiana
    @trents Good question. We are strict at home, although I have to admit I've eating the odd thing that turned out to have been made in a shared facility. But that is very unusual for me, Therefore I have concluded that eating out must be the issue, which I do a lot more of now. But I do need to put it to the test, and I hope to do this by not eating...
  18. cristiana
    Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my TTG levels to settle to normal levels in blood tests. I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened...
  19. cristiana
    Totally agree, that is an excellent point. I tend to mention these vitamins and also ferritin, because in England (not sure about the rest of the UK) these are the tests generally offered routinely through our public health system. It is unusual to be offered much more than that. I was low normal/deficient in all three, and found that when I supplemented...
  20. cristiana
    PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood. I think what I am trying to say is you are going through a lot all at once, it is not surprising that...
  21. cristiana
    Hi @EvieJean I was delighted to read @hjayne19's comments about A LIfe at Last as the book definitely helped me to understand how anxiety works. You may be suffering from vitamin and mineral deficiencies which will can contribute to and even cause anxiety. Have you had any tests done? If you have and 'normal' results , do take a second look at...
  22. cristiana
    Hello @Heavenly Flower Welcome to the forum! It will take time to master the diet and find what foods you can eat but I'd suggest what might make it easier is to keep a food diary. You can write down what you ate, and then any symptoms that arise in a day. Patterns do start to emerge. Also, it is worth bearing in mind that sometimes intolerances...
  23. cristiana
    Very helpful advice from @trents I just wanted to chip in to say I had elevated liver function tests prior to and some months after diagnosis. Namely raised immunoglobulins at a level of 41, when the cut off for normal in our local lab was 35. I was quite scared all this time, esp. when my GP didn't know what she was dealing with, and even...
  24. cristiana
    Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  25. cristiana
    Watch this space! 😊
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