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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana

    Gluten migranes at night

    cristiana commented on Debado's blog entry in Debado

    The first symptoms I had of coeliac disease were migraines. I think your doctor needs to test you for coeliac disease. The fact you are having migraines at night is interesting, but I never used to drink enough and my headaches were worse when I woke up in the morning. Dehydration was also a big cause for me.
  2. cristiana
    Hi @DayaInTheSun Welcome to the forum! I've been a Mod on this forum for some years now and your feelings are shared by many of us. I am not sure how long you have been diagnosed, but in my own case I do find that time has helped. It was pretty exhausting at first trying to explain to friends but they now have a pretty good grasp of coeliac...
  3. cristiana
    UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex... Yes, my symptoms did slowly improve. They started around October, from memory. Approaching Christmas I remember...
  4. cristiana
    Thanks @Scott Adams I've just read the recipe - it looks a fair bit healthier than mine, with carrots in it, it might even fulfil a person's 5-a-Day fruit and veg quota! I see the writer is of UK descent. For one minute there, I thought that perhaps the fruit cake, marzipan and icing thing wasn't just a weird thing we do in the UK? I am now wondering...
  5. cristiana
    Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan and icing. As usual, I've left it too late - we're meant to bake these things some time in advance to improve the flavour. I never remember. But it never seems to matter...
  6. cristiana
    So glad @sh00148 that you now have a coeliac diagnosis for your daughter. We really appreciate your update. If we can help any further, do not hesitate to get in touch.
  7. cristiana
    That is such a lovely post - thank you so much, @Kathleen JJ for taking the time to write. I am so glad I actually saw it as at the moment I'm not really supposed to be looking at the forum. I have a couple of long overdue work projects so I was taking a breaks from the forum to concentrate on my writing. 🙂 You have handled/are handling this situation so...
  8. cristiana
    Not sure if related to coeliac disease but my ear ringing has stepped up a notch since diagnosis. Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out. Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes...
  9. cristiana
    As a parent myself, I find we feel these things very keenly, it is completely understandable that you feel the way you do. It won't always be easy for your son, of course, but honestly most of the coeliacs I know are very healthy individuals who enjoy life to the full and have adapted very well. Family support is a massive factor in this, and your son...
  10. cristiana
    Thank you for the update. At least now you know what you are dealing with. Is the system similar to that in the UK in that you will have a follow-up with the gastroenterologist where you can ask any questions you have, and also a referral to a nutritionist?
  11. cristiana
    One thing I ought to add is that although any new medical condition diagnosis can come as a huge shock/blow, navigating the gluten free diet will one day become second nature to you all Yes, mistakes occur on the way, but it will get easier. A few things that have helped me on my journey: 1/ My husband has said to me a few times, and I think it...
  12. cristiana
    @Kathleen JJ I am based in the UK. The following link is to a website for UK based consumers but even post-Brexit, we are still importing from and exporting to mainland Europe, so chances are some of the products mentioned in the link are from the same factory. Therefore, what your son eats would likely be the same product that I eat when it comes to eating...
  13. cristiana
    If your son eventually becomes very symptomatic, that in itself will help keep him on the diet. I had a friend who was diagnosed roughly the same time as me and she used to tell me a lot that she could get away with eating certain gluten containing foods. (Not a good thing to do, but she did all the same). In time she was unable to tolerate them anymore...
  14. cristiana
    Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear. I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter...
  15. cristiana
    You are very welcome.😊 Do keep posting if we can help any further, and also if you aren't a member already I would recommend joining Coeliac UK if only for one year - they produce a very good gluten-free food and drink guide, a printed copy and also an app you can use on a smartphone which I am told is very helpful when one shops. I think the one th...
  16. cristiana
    Hi @aperlo34 Welcome to the forum. I am so sorry to read that you have been going through all of this. Firstly, I should say that your experience of anxiety is very common, and also, the worsening of symptoms is also something we see reported quite a lot on this forum. Achy joints, twitching as you describe and other symptoms were things...
  17. cristiana
    You are more than welcome. I think there are quite a lot of different types out there, my own nutritionist was a v. highly qualified scientist as well, but at least you can see what qualifications they are which seem to be quite well stated. I wish you all well on your son's coeliac journey. Cristiana
  18. cristiana
    Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link). For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a...
  19. cristiana
    @Gluten is bad Hi! I just caught this post, and am writing on the off-chance that you might be based in the UK. If so, I was told some years ago by a pharmacist that in the UK that if a medicine has a Product Licence printed on the packaging, which will appear as the letters PL plus a long number.... for example.... PL 4525908 (making that number...
  20. cristiana
    Hi @sh00148 I am so glad that your son is going to have a blood test next week. If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest. However, one thing you may wish to change...
  21. cristiana
    Thanks, @knitty kitty. I've been tested and don't have it, but there is certainly something odd going on. If I get indigestion that can set off palpitations, my sister has that too.
  22. cristiana
    Well, @mswhis I too have IBS, and I think bloating has a similar effect to constipation. Any changes that can lessen that internal pressure should help. Do you have pain in your sacroiliac region, or along the pudendal nerve? I have that. But it does seem to be a lot better now than it was several years ago when I first started the gluten-free diet.
  23. cristiana
    That's a shame, but on another tack - if you are coeliac with digestive issues, such as constipation, you may find that as they settle that might help somewhat. I've just had a quick read online and I see, for example, that constipation can exacerbate IC pain. https://www.healthline.com/health/constipation/interstitial-cystitis-and-constipation ...
  24. cristiana
    Hi @mswhis and welcome to the forum! I don't have IC but have suffered with standard cystitis on and off for years. I have found D Mannose helpful - have you tried it? I know that some IC sufferers have said that it has been beneficial to them.
  25. cristiana
    I remember reading about a passenger who was served the wrong food on a plane and reacted so badly to gluten they ended up having to sue the airline for the medical expenses incurred whilst in the States, where they were hospitalised on arrival. At the time my reaction to gluten was quite mild, and I couldn't understand how anyone could be that ill, but...
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