cristiana
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Latest Celiac Disease News & Research:
Everything posted by cristiana
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Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...
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It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now. Probably cutbacks, everyone's trying to save money now! -
Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
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Not much use to Canadians but if any British Lindt lovers are looking at this, give Marks & Spencer's Swiss Truffles a try - no barley but same taste. I'm pretty sure that in a blind tasting a coeliac would not know the difference - but then again, if you want to put this to the test, get a non-Coeliac to try this! I don't want anyone here to get glutened...
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I'm based in the UK and haven't tried that bread but in the past have got on quite well with Genius. Mostly I tend to eat bread with added seeds just because I find it more interesting. It is good to speak to another UK coeliac though as I am absolutely sure that up until recently a lot of the bread I was eating had added vitamins - but when I...
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Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
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Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms. My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea. But you say that you haven't got any bad abdominal issues, so perhaps you...
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When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this. I am not a medical person but it seemed like the extra pressure...
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Does anyone here also have Afib
cristiana replied to Jhona's topic in Introduce Yourself / Share Stuff
Interesting, when I suffered for a few months with ectopics I noticed that carbohydrates would cause indigestion and bloating in my stomach, then that would lead to my heart skipping beats, and I could feel it in my throat, it was very unsettling. My last serious bout of this was after eating a Muller Rice Pudding for breakfast. I happened to be wearing... -
Ibuprofen
cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial... -
Ibuprofen
cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know... -
Ibuprofen
cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
@Colleen H I am just curious, when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium. Might be worth looking into having some more tests. Pins and needles can be neuropathy, again caused... -
Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
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Ibuprofen
cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
I seem to recall that my digestive issues actually started when I was taking NSAIDs c. February 2013 for some unrelated condition. My stomach got so sore during that time I went to see my GP and she thought it might be an ulcer or gastritis so prescribed me Omeprazole. That appeared to trigger diarrhea which, once I came off the Omeprazole, did not... -
Ibuprofen
cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
I cannot tolerate it at all - triggers burning and nausea, ditto aspirin. Here in the UK I take Paracetamol. -
@Gigi2025 Thank you for your interesting post. Some of what you say chimes with something my gastroenterologist tells me - that he has clients who travel to France and find the same as you - they will eat normal wheat baguette there without issue, for example. His theory was he thought it might be to do with the locally sourced wheat being different...
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Broccoli of all things. Chills, extreme nausea, diarrhea - lasts until it's passed through my system. Very similar to glutening. This started to happen to me some years prior to my coeliac diagnosis. Very odd.
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That's great news, you can do this. Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
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Not a scientific reply, but I thought I'd just chime in to reply the first part of your question: how long? Before I started to have gastric symptoms, I weighed about 66 kilos, and in the course of the following months, I seem to recall I lost about 6 kilos. From memory the last 2 or 3 kilos dropped off even when I was beginning to eat gluten free, from...
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Update - my Active B12 is 36. Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal. I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great,...
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Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test? I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests. My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals...
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Hello @lehum Greetings from the UK. Another struggler here - and I'm a Moderator on this forum, and have been extremely strict about my diet! My antibodies took years to come down to normal levels. Very annoying particularly when had friends who seemed to be the miracle turnaround celiacs that one reads about (although, of course, I am happy for them...
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@knitty kitty I saw my consultant yesterday. He is not worried about my high MCHC levels, he said he was more interested in my MCV levels and they are fine.. The Holocolobim test apparently is going to take time to come back - the report says 17th October which I think isn't actually the true date, I think it's just a random date thrown out by...
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Hi @knitty kitty Thank you, Kitty, and lovely to hear from you as well as trents on this one, I do appreciate your knowledgeable replies. Haemoglobin A1C and HBA1c have both come back as normal, so I think I am OK there - although I'll freely admit that I love sweet things and if they ever design a test which shows consumption of carbs over time...
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Hi Trents Good to hear from you and thanks for your prompt response. As far as I know I don't have any other autoimmune diseases but this elevated MCHC which has been in the background for some years now makes me wonder if I have something that has hitherto gone under the radar. I do wonder about B12 anemia. When I was diagnosed with coeliac...
