Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

cristiana

Moderators
 View Profile  See their activity

  • Posts

    1,835

  • Joined

  • Last visited

  • Days Won

    66

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Condy Welcome to the Forum. I wanted to check what was meant by duodenitis and when I google it the search engine stubbornly keeps taking me to the NHS forum on gastritis. I hope someone will be able to help who has issues with duodenitis, but I seem to struggle periodically with gastritis, which the NHS website gives the following as causes...
  2. cristiana
    Hi Felicity I've seen your spelling of "coeliac" - this would suggest to me that, like me, you may be British? If so, have you joined Coeliac UK? I ask because I understand they have an app which you can use with your smartphone when you go shopping that tells you if what you are buying is on their safe list. I don't have a smart phone...
  3. cristiana
    My friend is a restaurant inspector in the UK for Health and Safety. She says she's seen enough in her job to decide that she'd never eat out in a restaurant in the UK if she were a coeliac. There are of course exceptions, but it pays to be very careful.
  4. cristiana
    Hello Felicity and welcome to the forum! You are not alone. I too have had huge trouble getting my numbers to go down. It is so dispiriting when one feels one is doing one's level best. I was diagnosed in the UK back in 2013 and my TTG test came back showing >100. The cut-off in most UK labs for TTG tests is 100 so perhaps my numbers were...
  5. cristiana
    I think it is a combination of things. I did feel a lot better when my deficiencies were being addressed and also reading those books and applying their recommendations. But it took a while to lose the anxiety altogether after I went gluten free. It is not easy to predict how quickly recovery will come - it varies enormously from one person to...
  6. cristiana
    Hi grossi Months before I was diagnosed with coeliac disease I had the same symptoms you describe in your first post: "fatigue, brain fog, sometimes depression and anxiety" When tested my B12 levels were borderline normal. Because they were technically normal, I wasn't prescribed B12 but I have since learned through this website that British...
  7. cristiana
    @knitty kitty Finally, an explanation! Thank you for this, I thought it was so weird and only recently after years of googling did I find a thread on a forum with people who had experienced the same thing with "close work" but had had no explanation given for it. My optician and doctors weren't fazed by it at all nonetheless there was never an explanation...
  8. cristiana
    This is so interesting! I had no idea you had this issue, @knitty kitty. I suffered from very bad, nauseating headaches as a teenager and young adult. I then thought they were bad enough to qualify as migraines (self-diagnosed!) so started to take painkillers for migraines, which helped. In my mid-thirties when I fell pregnant with my first child...
  9. cristiana
    Hi Hi there I'm afraid I'd love to be able to help more but I've not had a diagnosis of this yet - do you know something I don't, @knitty kitty?! 😀 But so glad you've had the DEXA scan. It is one of the reasons that when people from the UK contact the forum wondering whether to bother with a formal coeliac diagnosis that I try to...
  10. cristiana
    Hi honecombe4 It's interesting to say you have slipped up a few times because I've had quite a few episodes of it since my own diagnosis. Sometimes it can mean that gluten is sneaking in somewhere - maybe when eating out, or from sharing a kitchen. The last time I felt nauseous was after eating a packet of chocolate that used to be gluten free...
  11. cristiana
    Hi Hypo I get this sometimes, particularly when I drink quite a bit of milk, to which I think I have a mild intolerance. Nothing severe. But if I were to eat gluten-free pasta, rice, potato and other pale foods as well as drink a lot of milk, I almost expect this to happen. I'm sure I read somewhere that yellow stool can suggest rapid transit...
  12. cristiana
    And as a PS, I have lived in Spain and there chamomile tea is regarded as a very good medicine for stomach complaints. I must say I find strong chamomile tea very helpful. I can't say I like the taste as much as coffee but I find it is very effective in calming the stomach. Also, on the subject of drink, I'm not actually keen on alcohol but I've drunk...
  13. cristiana
    I know a lot of people who struggle with these conditions who aren't coeliacs, so it stands to reason that some coeliacs might have these conditions as well without them necessarily being related to consuming gluten. I do have a few ongoing issues with gastritis-like pain, heartburn, and silent reflux, to the point that sometimes my throat gets irritated...
  14. cristiana
    Hello Unsure I'm a British coeliac. Great advice above from Trents. Just to say in your shoes I'd try to still get tested through the surgery if I were you. There are quite a few benefits of having an official NHS diagnosis in the UK: annual blood tests to check your diet is on track and checking for any additional health issues; DEXA bone scans...
  15. cristiana
    Hello lavranso4 and welcome! I wonder, before going any further, can you clarify if you have had an endoscopy to confirm your diagnosis, or has it been based on blood results? If you have the blood results it would be good to know what they were. In answer to your question: ... has anyone’s body changed just after starting a gluten free d...
  16. cristiana
    Hi Hannah I think grinding my teeth at night, stress and and dentistry (having to keep my jaw open for a few minutes for a filling, for example) all contribute. However ... there may be another reason. On a trip to the dentist I was told I do have a wisdom tooth on the lower left jaw that might be causing issues. It hasn't come through the...
  17. cristiana
    I have found I got something a bit this when on iron pills. I found that they caused bloating. I drank peppermint tea, which helped bring up the trapped wind through belching - not a nice subject, but it seemed to work!
  18. cristiana
    Hi there Nadia I agree with Trents, I am quite sure it must be coeliac disease. Just to say, although Trents is quite right about an endoscopy now not always being thought of as necessary here anymore, I think this change in direction coincided with the pandemic when the gastroenterology departments were struggling with a huge endoscopy backlog...
  19. cristiana
    I agree with @trents. Just to say, my pain is generally in the upper left quadrant, like yours. I had an ultrasound once and I showed the radiographer where the pain was - she told me it was my stomach. I also get gastritis like pain when I consume gluten so that makes sense to me that my pain is there. Definitely get tested if you can. This...
  20. cristiana
    Hello @lupusliving89 Welcome to the forum! I am sorry you are experiencing this constant pain. I do not have lupus, but I am a coeliac, and if I get glutened the place you describe is where I often get pain, sometimes for some days/weeks after a glutening. I wonder if you could clarify, have you had an endoscopy too, and did they find villous...
  21. cristiana
    Time to start saving....👑🙂
  22. cristiana
    Thank you @icelandgirl, for your kind words, she will be greatly missed. I just cannot get the images of the past few days out of my mind, scenes I am sure I will never forget - whether it was the mile long parade down Pall Mall or the scene where her corgis were sitting outside Windsor Castle, waiting for her return.... I was privileged enough to attend...
  23. cristiana
    Hi Dr Aunt Sue Speaking purely for myself, I find it isn't always easy to be sure when a gluten incident has even occurred. Sometimes I've felt very unwell seemingly for no apparent reason - I wrack my brain, and I can't figure out where the gluten has snuck in. This happened in France when we were on holiday in 2019 and after feeling pretty...
  24. cristiana
    @Rogol72, wow! That is interesting. Not having any scientific qualification beyond those I took when I was 15 at school, I have often wondered why I get relief from PPIs. Thank you so much for explaining! It only seems to take a few days and things get better - sometimes just the one PPI makes a difference, sometimes a short course of OTC (i.e. less than...
  25. cristiana
    Hello Dr Aunt Sue and welcome to the forum This is a very frustrating situation for you, I'm sorry for what you are going through. Obviously, coeliac or not, gluten is a big issue for you. It seems to me that you have coeliac disease, or have Non-Celiac Gluten Sensitivity (a condition where the body reacts to gluten, but the villi in your gut are not...
×
×
  • Create New...