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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    I have found I got something a bit this when on iron pills. I found that they caused bloating. I drank peppermint tea, which helped bring up the trapped wind through belching - not a nice subject, but it seemed to work!
  2. cristiana
    Hi there Nadia I agree with Trents, I am quite sure it must be coeliac disease. Just to say, although Trents is quite right about an endoscopy now not always being thought of as necessary here anymore, I think this change in direction coincided with the pandemic when the gastroenterology departments were struggling with a huge endoscopy backlog...
  3. cristiana
    I agree with @trents. Just to say, my pain is generally in the upper left quadrant, like yours. I had an ultrasound once and I showed the radiographer where the pain was - she told me it was my stomach. I also get gastritis like pain when I consume gluten so that makes sense to me that my pain is there. Definitely get tested if you can. This...
  4. cristiana
    Hello @lupusliving89 Welcome to the forum! I am sorry you are experiencing this constant pain. I do not have lupus, but I am a coeliac, and if I get glutened the place you describe is where I often get pain, sometimes for some days/weeks after a glutening. I wonder if you could clarify, have you had an endoscopy too, and did they find villous...
  5. cristiana
    Time to start saving....👑🙂
  6. cristiana
    Thank you @icelandgirl, for your kind words, she will be greatly missed. I just cannot get the images of the past few days out of my mind, scenes I am sure I will never forget - whether it was the mile long parade down Pall Mall or the scene where her corgis were sitting outside Windsor Castle, waiting for her return.... I was privileged enough to attend...
  7. cristiana
    Hi Dr Aunt Sue Speaking purely for myself, I find it isn't always easy to be sure when a gluten incident has even occurred. Sometimes I've felt very unwell seemingly for no apparent reason - I wrack my brain, and I can't figure out where the gluten has snuck in. This happened in France when we were on holiday in 2019 and after feeling pretty...
  8. cristiana
    @Rogol72, wow! That is interesting. Not having any scientific qualification beyond those I took when I was 15 at school, I have often wondered why I get relief from PPIs. Thank you so much for explaining! It only seems to take a few days and things get better - sometimes just the one PPI makes a difference, sometimes a short course of OTC (i.e. less than...
  9. cristiana
    Hello Dr Aunt Sue and welcome to the forum This is a very frustrating situation for you, I'm sorry for what you are going through. Obviously, coeliac or not, gluten is a big issue for you. It seems to me that you have coeliac disease, or have Non-Celiac Gluten Sensitivity (a condition where the body reacts to gluten, but the villi in your gut are not...
  10. cristiana
    Thank you, Scott - a Royal Warrant for your Services to Paddington Bear is now on its way to you!
  11. cristiana
    Thank you both. What the Queen actually carried in her handbag was hotly debated! That was a real coup, trust Paddington the Bear to find out! I am not sure if it was a gluten free sandwich, though... She was so loved, and even people who didn't think themselves as Royalists are saying how surprised they are at how upset they find themselves...
  12. cristiana
    I know this has nothing to do with Coeliac disease but as a British contributor to this forum I hope you don't mind if I mark the passing of the Queen. A very sad day. I found this sweet image on the internet, reminding me of the video she made with Paddington The Bear to mark her Platinum Jubilee only three months ago. I wanted to post that video...
  13. cristiana
    I'm not sure if you are posting from the UK (your spelling of coeliac makes me think you might be) but if you are British, I'd be inclined to ask for a copy of your biopsy results via your GP surgery, which should be available to you, even if they have been archived. Then, try to find out if there was villous atrophy, and what it was on the Marsh Scale....
  14. cristiana
    Yes, it is lovely. It did make me wonder why in the UK (I'm not sure what it is like in the States) if something is gluten free, even to the point of appearing in the Coeliac UK gluten free app, British food manufacturers aren't as keen to advertise the fact in an obvious way on their packaging, as per Mercadona, Spain. It would make life so much...
  15. cristiana
    We've just returned from visiting family in Spain and I wanted to let any coeliacs visiting Spain know that the Mercadona Supermarkets have a fantastic range of gluten free products, all clearly marked. It is so impressive - not just limited to the basics bread and pasta, they clearly label anything that is gluten free as "Sin Gluten" which takes so...
  16. cristiana
    I agree. Wouldn't it be wonderful there was a directory of nutritionists in this category, or restaurants, bakeries etc who claim to be gluten free that are actually run by people who are coeliacs or have family members who are!
  17. cristiana
    I think a really good properly accredited nutritionist is worth their weight in gold. I have had three nutritionists, but only two of them were helpful: one was NHS, the other private. However, the first nutritionist I saw after my diagnosis seemed to me to only have a basic grasp of the gluten free diet and I was in and out of his office in less than...
  18. cristiana
    Lulu, that is interesting. I'm afraid I've got to go out just now but many of our Moderators are based in the USA so I'm hopeful someone will pick up on this soon, in my absence. What I would say is it is good that you have had the biopsy, because some people have positive biopsies but borderline or negative blood tests. Hopefully you won't need to wait...
  19. cristiana
    Hello Lulu and welcome to the forum. Tell me, were you eating roughly 2 slices of normal (gluten containing) bread or the equivalent for 6-8 weeks before your blood tests? You will have needed to be doing so to produce a reaction. The reason I ask is because sside gluten, I understand there are a few medical conditions that could give a positive...
  20. cristiana
    Nancie, have you been eating gluten? For a coeliac blood test, you need to eat about 2 slices of normal (gluten) containing bread or the equivalent for 6-8 weeks before testing. There is no need to fast before a coeliac blood test. Also, Nancie, what were your symptoms prior to being diagnosed with lymphatic colitis?
  21. cristiana
    I agree with Trents. You may be able to have both investigations on the same day. Definitely ask for both if the endoscopy doesn't show anything.
  22. cristiana
    You are very wise, Meisam. It could be nothing, but so much better to err on the side of caution in this sort of situation. I hope all goes well.
  23. cristiana
    Just out of interest, has anyone on the forum had a covid rash/itching? A member of my family (not celiac) is struggling with this at the moment, it started just before she tested positive c. 30th July. I'm wondering how long it's going to last and if I can do anything to help. It gets worse with stress. and hot weather - not good at the moment!
  24. cristiana
    Trent's is also good advice.🙂 One thing to add - I am not sure where you are posting from, but in some countries there are real benefits in obtaining a formal diagnosis. In my country, a coeliac diagnosis = an annual follow-up from a gastroenterologist, a nutritionist referral, and as one ages (I am not sure if it applies to children) a DEXA bone sc...
  25. cristiana
    Hello Sasha and welcome to the forum, What a frustrating situation for you both. It is strange the biopsies were negative, but one thing I believe that can happen is that damage can be patchy, and therefore it is possible that it was missed. Do you know how many samples were taken, and from how many different areas - this info sometimes finds its...
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