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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    At the time of the one awful, substantial glutening I experienced a few years ago, I felt very near to passing out. I think if I hadn't been able to lie down, I might have. As a child I was prone to fainting, and was told then how to avoid it, by putting my head between my knees, or lying down. So now, if I feel things going grey that is what I do and...
  2. cristiana
    In my case I the rash and marks that present tend to be AFTER I have been scratching the skin, not before. There are several varieties of eczema. . https://www.aad.org/public/diseases/eczema/types A few years ago, I was convinced my son had ringworm. He had marks all over his torso, and given we live near livestock, I assumed he'd picked...
  3. cristiana
    PS You asked about severe symptoms. Yes, I can tell you that the one and only time I have taken a really major gluten hit in recent times I had chills, sweats, vomited and thought I was going to pass out. I also felt my heartbeat was affected. I was really concerned at the severity of the reaction. And that was down to eating one piece of homemade...
  4. cristiana
    Hi @Louise Broughton Fellow Brit here! I am sorry to hear of your health issues. If I may chip in here, I think it might be worth your while at least having the blood test to see if you have raised antibodies. Whilst I agree under ideal circumstances people need to eat gluten for a period before both the blood test and endoscopy, it could well...
  5. cristiana
    @sh00148 Hello and welcome to the forum, I'm a coeliac based in the UK and I have only just spotted this thread. Reading your posts about PALs I imagine you are based in the UK too? I am so sorry for all your daughter has been going through but congratulations on your achievement on getting an appointment. I would definitely recommend you...
  6. cristiana
    One other thought: what other blood tests have you had? It might be worth having your iron and haemaglobin levels tested.
  7. cristiana
    @SoBannaz Have you ever been offered any sort of topical treatment for your skin? I occasionally have issues with my skin and during one of the lockdowns in the UK the itching was driving me up the wall - it was in my scalp, on my chest, shoulders, across the stomach. I was really stressed and worried about it. At his request, I sent a photo to...
  8. cristiana
    I think I'd give it a try, it does seem that it helps a lot of people. Do let us know if you want anymore advice, and how you get on.
  9. cristiana
    Hello @Bindi Welcome to the forum! I wonder if you have come across this post on the forum? Do have a read of it. I struggled for quite a long time with ongoing symptoms and I remember seeing a lot about the Fasano diet when I first joined the forum. I never actually adopted it, but it was on my 'to do' list had my issues continued longer...
  10. cristiana
    Hiya @sadiec123s. I am not sure this will be terribly helpful, but in case, I'll share a couple of things here. Rather than aggression, my mental health struggles were anxiety-related. I am sure there was a connection with my low B12 levels, and low iron, because once those were addressed I did start to feel better. Have you been checked for deficiencies...
  11. cristiana
    I had rib pain, but also hip and leg pain - google sacroiliac pain, it's common in coeliacs. SI joint pain affects the hip, buttock and thigh area. When I had it at its worst it was incredibly painful, a sort of burning sensation. If this is what your child is experiencing, she may find it helpful not to wear tight jeans or waistbands. Any pressure...
  12. cristiana
    Just repeating what my gastroenterologist was saying. Sorry - not a helpful post of mine, as I wasn't even sure what he meant!
  13. cristiana
    @matts Sorry - I didn't register the type of test. In the UK they routinely also do the tTG test too, so I wouldn't be surprised if it hasn't come back yet. For some reason, the tTg test can take quite a long time to come back from the lab ... maybe more than a week. I recall my total IgA wasn't convincing, but my tTG levels were through the roof...
  14. cristiana
    Hi @matts Yes.... it's a mystery to me why we are holding onto that 'o'. I expect it won't be there in 100 years! I think you are very wise to go back to your GP to chat through your options. If you would like to know one way or another, he or she may be happy for you to see a gastroenterologist through the NHS. If not, and you would...
  15. cristiana
    Hi @matts Welcome to the forum. I'm a coeliac living in the UK. I have a hunch you may be posting from the UK because of the way you spell 'coeliac.' Our American friends, quite sensibly in my opinion, drop the 'o'! Anyway, if so the UK, 'satisfactory' blood tests mean as follow: 'Satisfactory. Take no action - This means that the doctor...
  16. cristiana
    @trents @Vickey Matteson Trents makes a very interesting point. I did not have gastric symptoms initially but about six months before my diagnosis I had very odd liver function test results, iron deficiency and anxiety. I developed gastric symptoms just prior to my diagnosis - I honestly think that if I hadn't, my doctors would still be wondering what...
  17. cristiana
    Good point, they should never have cut this from the syllabus.
  18. cristiana
    Hi @Sarah Grace I'm a British coeliac too, and have had quite a number of different types of migraine. ***Are you under a gastroenterologist and receiving annual coeliac blood tests to test for compliance, and perhaps also for deficiencies? If not, I think that is worth considering. If gluten is still sneaking into your diet that could be the...
  19. cristiana
    @CeeBee1807 This is the webpage you need to look at, I imagine the reading material is building up! However, I think NHS have some useful info on diagnosis in eh UK on their site. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/ I just wanted to add that I too had odd liver function tests. Raised globulins...
  20. cristiana
    @CeeBee1807 Forgive the brevity of this post CeeBee as I cannot write a lengthier reply just now, but I have just read your post and wanted to say I think you are onto something. Do mention to your GP that you already have a relative with coeliac disease. Do also take a look at the Coeliac UK website before you see the doctor, they have a...
  21. cristiana
    @Pgomez300 In answer to your separate question, no images or any other tests were done.
  22. cristiana
    Hello @Pgomez300 and welcome to the forum! Firstly, I ought to say I am not medically qualified. However, I remember asking my GP about lumps in my abdomen. They were very noticeable when I lost a lot of weight when I was first ill with coeliac disease. She laughed and said, "It's fat!" Oddly enough a friend of mine has just found a very large...
  23. cristiana
    I recall some statistic I heard some years back, that in powdered chocolate milk there were something like 25 different stages in the production process taking into account all the ingredients. I can see that if this is true, the more stages there are the more chances there are for cross-contamination. Eating whole foods helps minimise or totally eliminate...
  24. cristiana
    Hi @Schellee94, it is good to know that you have found this a helpful thread. Do let us know how you get on! Cristiana
  25. cristiana
    @hilly Sorry as this is a blind post as I have a lot to do today and haven't read the entire thread. But I had bad bloating for a while, and at my gastroenterologist's suggestion after a three week trial of going entirely dairy free I found relief. I reintroduced dairy gradually and am pretty much OK with it now. I also found heavy iron...
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