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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    I have an arachonoid cyst in my brain which a neurologist told me was "of no clinical importance". It is always noted on MRI scans as an incidental finding, and was found about nine years before my coeliac diagnosis when I started to get aura migraines. As far as I know it has never changed in size, I seem to recall my neurologist told me it would have...
  2. cristiana
    You are very welcome, Liam. Do keep in touch and let us know how you are progressing, and come back to us if you have any more questions. And I agree with you, I wasn't terribly convinced with the dyspepsia diagnosis either! I felt sure that my Doc was going to say that they'd found my stomach was red raw, but he never mentioned it. Possibly...
  3. cristiana
    Hi Liam I may be wrong because I don't know all your details but I've just put your current weight and height into the BMI calculator the NHS provide online (I made up your age, level of physical activity etc ... because I don't know all those details) and it comes out with the result that your weight is now in the healthy range. Is it possible...
  4. cristiana
    Hi Liam I am sorry as I don't have time to read through your post properly but hopefully some of this might help. I was diagnosed with celiac disease in 2013 but it took an absolute age (this year in fact) for my blood test (tTG) to go down to normal levels. Still to this day I have no idea why, I was v. careful, stopped eating out etc etc. Anyway...
  5. cristiana
    I used to just wave the teabag in the water, now when I have peppermint tea I leave it there for a good couple of minutes. Ditto chamomile for as an alternative to caffeine if I have gastritis or a UTI. I think it helps to have it as strong as one can bear it. I can't say I'm that keen on the taste but it does seem to help.
  6. cristiana
    Something has just reminded me to mention, have you tried drinking peppermint tea? I have IBS as well as coeliac disease and if I get constipated and bloated I find it very helpful.
  7. cristiana
    As you say, it has only been three weeks. I've been through long stretches of having severe pelvic pain and bloating and my gastroenterologist recommended I had a pelvic scan just to make sure there weren't any non-coeliac issues going on, like problems with the ovaries, fibroids etc. I was given a blood test too. I found it reassuring to have these...
  8. cristiana
    Constipation is a real issue for many coeliacs. I have a close relative who is suffering from constipation and she is about to be tested for coeliac disease. I am not sure if you are a woman (forgive me if I've missed this info in this post!) but if so, it is worth considering that sometimes constipation can be linked with gynecological issues, such...
  9. cristiana
    Hi Angela How frustrating to have to wait for the printout. But at least you will know in a month. Do come back to us then. I ought to just say, however, that I had a tTG test done some months ago and it arrived many days after the other blood tests came in. Possibly about ten days later, I can't recall. No idea why, but this may happen...
  10. cristiana
    I hope someone will correct me if I'm wrong but it looks to me as if you are still waiting for the tTG result. Hopefully this was ordered by your doctor. Do please check this was done. Coeliac UK recommend the NHS to order both. I am not scientific so I find it very difficult to assimilate anything which involves acronyms, figures and the like...
  11. cristiana
    Hi Angela I totally understand your frustration. Do you think the receptionist gave you what the normal range was for their labs? Every lab should provide normal parameters alongside test results - if so, it sounds rather as if 0.65-4.21 is that lab's normal range. I have googled one of my favourite NHS websites (https://www.southtees.nhs...
  12. cristiana
    Hi Brookland It might be. Celiacs malabsorption can lead to stool containing a lot of fat, a condition called steatorrhea, which might cause this sort of problem. Or it might be that your stools are loose, so perhaps there is a bit of an issue with stool leaking between BM? If you haven't already, I would recommend you see a doctor and request...
  13. cristiana
    Thanks so much, Nightranger - it all sounds delicious! I hope too that our British (sort of) equivalent, the Penguin, will one day be gluten-free!
  14. cristiana
    Hi Veralenn Yes, I'm in the UK and I was diagnosed in Britain nine years ago. The National Institute for Health Care and Excellence has published these recommendations for coeliac testing: https://www.nice.org.uk/guidance/ng20/chapter/Recommendations#recognition-of-coeliac-disease Some GPs may not be up to speed with these recommendations...
  15. cristiana
    Hi Shem Forgive me but my personal circumstances at the moment mean I haven't got a lot of time to read this thread properly, so this may have been or not been covered already... I did note @Russ314's very interesting point about the half life of coeliac antibodies. That's good news, because I feel that it would be worth getting the full coeliac...
  16. cristiana
    Hiya Shem and welcome to the forum! I would definitely want to look into this further if were in your shoes. A few years ago I found an astounding statistic that around a quarter (it may have even been a third) of IBS sufferers in my country were thought to be undiagnosed coeliacs. (Sorry - this is a bit vague, but I can't lay my hands on the paper...
  17. cristiana
    Hi Angela I'm not sure where you are from but I'm British and by the levels used by NHS labs your ferritin is low. This is from the South Tees NHS website. https://www.southtees.nhs.uk/services/pathology/tests/ferritin/ FERRITIN guide to interpretation: Low: Less than 15 ug/L Borderline: 16 – 40 ug/L Normal: 41 – 400 ug/L High: Gr...
  18. cristiana
    Sorry, Frieze, typo... Just checking everyone is paying attention! Trents... in answer to your question, I have no idea!🤔 Do you think I should just change my celiac.com profile/signature to "Citizen of the World" before I start an international incident here? ....
  19. cristiana
    Currently, yes, but a lot of Scottish people would like it to become independent. Currently the United Kingdom of Great Britain and Northern Ireland comprises: Scotland, Wales, Northern Ireland and England. Plus a few islands, such as the Isle of Wight, the Isle of Man, Jersey, Guersey and the Scilly Isles.
  20. cristiana
    I say British because I hold a British passport. But yes, I do also say I'm English, as a citizen of the United Kingdom of Great Britain and Northern Ireland. I'm not sure why I put British rather than English on this website - I answer to both. https://en.wikipedia.org/wiki/United_Kingdom
  21. cristiana
    How funny! I've just googled it, thank you. And yes... Ozzie/Oz is most definitely not an official term. But here in the UK many often refer to Australia as Oz. In turn, the Ozzies sometimes call us Poms, which stands for Prisoners of Mother England!
  22. cristiana
    If you are from Australia you are an Aussie, which the British and Australians pronounce as Ozzie - hence abbreviation to Oz. I must admit I thought you were an Ozzie for years, trents, with your Location being WA Centralia - I thought that meant Western Australia!!😄
  23. cristiana
    Hi Eileen A UK coeliac here. Just out of interest, when you eventually find yourself in the gluten-free aisle at the supermarket I'd like to know if they are now selling Gluten Free Tim Tams in Oz? I lived in Sydney for a few months back in the 1980s and loved them! C.
  24. cristiana
    Hi Kate This is what I'm supposed to take daily. https://www.medicines.org.uk/emc/product/2813/smpc#gref Fultium D3 800, although you can get larger doses in the UK over the counter in the UK. It has helped to bring my levels up to normal in a few years, I think possibly it took so long as I do tend to forget to take them!
  25. cristiana
    I am afraid I'm no nutritionist but this lists what oats contains: https://www.webmd.com/diet/health-benefits-oatmeal#2 As your symptoms seem to improve when you eat oats, I think in your shoes I might see if I can get my blood tested to see if there are any deficiencies on this list, and then seek to address them through diet and supplementation...
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