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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cristiana
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Test results
cristiana replied to Eileen B's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I say British because I hold a British passport. But yes, I do also say I'm English, as a citizen of the United Kingdom of Great Britain and Northern Ireland. I'm not sure why I put British rather than English on this website - I answer to both. https://en.wikipedia.org/wiki/United_Kingdom -
Test results
cristiana replied to Eileen B's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
How funny! I've just googled it, thank you. And yes... Ozzie/Oz is most definitely not an official term. But here in the UK many often refer to Australia as Oz. In turn, the Ozzies sometimes call us Poms, which stands for Prisoners of Mother England! -
Test results
cristiana replied to Eileen B's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are from Australia you are an Aussie, which the British and Australians pronounce as Ozzie - hence abbreviation to Oz. I must admit I thought you were an Ozzie for years, trents, with your Location being WA Centralia - I thought that meant Western Australia!!😄 -
Test results
cristiana replied to Eileen B's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Eileen A UK coeliac here. Just out of interest, when you eventually find yourself in the gluten-free aisle at the supermarket I'd like to know if they are now selling Gluten Free Tim Tams in Oz? I lived in Sydney for a few months back in the 1980s and loved them! C. -
Hi Kate This is what I'm supposed to take daily. https://www.medicines.org.uk/emc/product/2813/smpc#gref Fultium D3 800, although you can get larger doses in the UK over the counter in the UK. It has helped to bring my levels up to normal in a few years, I think possibly it took so long as I do tend to forget to take them!
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I am afraid I'm no nutritionist but this lists what oats contains: https://www.webmd.com/diet/health-benefits-oatmeal#2 As your symptoms seem to improve when you eat oats, I think in your shoes I might see if I can get my blood tested to see if there are any deficiencies on this list, and then seek to address them through diet and supplementation...
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Oats contain magnesium - have you considered supplementing this? Also, I wonder what your D vitamin levels are? I am prescribed very high Vit D by my gastroenterologist because the small amounts in OTC supplements frankly wouldn't go very far to helping me. I reckon it has definitely helped me combat fatigue, aches and pains.
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
Hi Aussinae I remember there were lots of unresolved issues for me at diagnosis - a recurring liver function test result which always worried my GP; tingling, buzzing and twitching; thinning hair; dizziness; bloating... there always seemed to be something going on. A fellow coeliac on this forum @icelandgirl was in the same boat, we joked we ought...- 65 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
Hi Aussienae Congratulations! It is possible that you just need more time for things to settle. If you haven't already, start keeping that food diary, and include supplements, probiotics - everything you eat and drink - and record activity too. You may see a pattern emerging. Try and vary your days a bit to see if anything helps or makes...- 65 replies
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Likelihood of Positive biopsy?
cristiana replied to swiftie-13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are welcome. Your GP is really 'on the ball' - I asked if my parents could be tested, and my request was refused because they didn't have anaemia or GI symptoms. Take care and enjoy the Jubilee Holiday!🍰 C -
Likelihood of Positive biopsy?
cristiana replied to swiftie-13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Swiftie and welcome to the forum! I can remember feeling exactly the same as you before my results came about. I remember thinking, if this isn't coeliac, what is it?! I didn't have proper GI symptoms until after some time after my diagnosis journey began. My journey started with anaemia, clinical anxiety and weird blood test results (liver... -
Today, up and down the British Isles, cooks everywhere will be baking a very particular cake to celebrate the Queen's Platinum Jubilee (a reign of 70 years). The famous cake is the Victoria Sandwich. I thought I'd share this gluten free version of it with my non-British friends on the forum. I also attach the history behind it. If you want to give...
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
I am not sure where you live, but do some research and see what local products are available to help you put some more good bacteria into your gut through probiotics, either through food or supplementation. I was put on gluten-free probiotic tablets by my nutritionist and when I could tolerate dairy again, she told me to try live Greek yoghurt.- 65 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
Aussienae, I agree with you. You do need more time. I seem to recall someone else on this forum advising me the same many years ago. We can't expect instant results if we've been undiagnosed for many years. I am not sure how old you are but I was diagnosed, by some strange coincidence, at the same time as two of my friends. One is about 15 years...- 65 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
Hi Aussienae I am so sorry - I missed your post completely.🤗 In a nutshell, us females should always get lower pelvic pain checked out in case it is a gynae issue, at the very least requesting a CA125 test from your GP. But if you have already had that checked, it does sound to me as if it could be some kind of bloating that builds up during th...- 65 replies
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Good point Trents, I was a silent coeliac I guess, because my first symptoms were not gastrointestinal. I had clinical anxiety, at that time anaemia, and also elevated liver enzymes. Thank goodness I ended up with gastrointestinal symptoms later on otherwise I think the doctors might still be stumped!
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Hi bfare and welcome to the forum If you had an endoscopy, I assume this patchy erythematous of the mucosa was found in the stomach? In which case, I believe this is would match the finding of gastritis. I am no medical expert but what I can tell you is that I have coeliac disease and also suffer from periods of gastritis, usually after I have...
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Nestlé GoFree Corn Flakes Now in UK
cristiana commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
These are very good, frankly I wouldn't have known the difference between the usual type. Also available with honey, and rice pops too. https://www.nestle-cereals.com/uk/products/brands/gofree?gclid=EAIaIQobChMIj_iX1MrX9wIV0OvtCh3lkAREEAAYASAAEgJWl_D_BwE&gclsrc=aw.ds I've read a few points of view about the pros and cons of fortifying gluten...- 5 comments
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Is it too late? Celiac/coeliac UK
cristiana replied to harry17's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Harry I'm sorry I didn't see this sooner - I'm snowed under with other stuff at the moment so not on the board much, but I've asked Scott to let me know if anyone from the UK posts who needs help, so you are that first post (the system is working, @Scott Adams!) I can relate to a lot of your issues and I am so sorry you are going through it... -
Hello All There's some really good advice here. Just something to add. I have IBS-D as well as coeliac. I was diagnosed with coeliac disease in 2013. Just before Covid hit, as I was experiencing diarrhea and discomfort again, my consultant did an endoscopy - clear - then specifically tested me for something called Microscopic Colitis during a...
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Can TMJ cause salivary gland pain?
cristiana replied to cristiana's topic in Related Issues & Disorders
Thanks so much for this, Wheatwacked. This is all very interesting. Interesting about aspirin, too, I had no idea about that statistic. Out of interest, do you ever recall the jaw pain coming on when you ate particular foods - and by that I mean very sweet or sour, rather than hard to chew stuff which would probably hurt anyway! I just feel it's... -
Can TMJ cause salivary gland pain?
cristiana replied to cristiana's topic in Related Issues & Disorders
Thanks, knitty kitty. I had odd tooth pain last year and I think you said something about the benefits of Niacin then, so I've just started to supplement again. It worked last time, I'm very grateful to you. Something's definitely wrong with the alignment of my bite, for years I've noticed my front teeth are slightly off centre! I also wonder... -
Can TMJ cause salivary gland pain?
cristiana replied to cristiana's topic in Related Issues & Disorders
I can't take them unfortunately because they make my stomach very sore. That said, I don't find it quite so bad using a topical NSAID like Ibuleve so I suppose I could give that a try. Thanks so much for this suggestion. -
Can TMJ cause salivary gland pain?
cristiana replied to cristiana's topic in Related Issues & Disorders
Hi Trents That's really helpful, thank you, I think you have a very good point there. It's a kind of burning pain, and it does remind me of the pain I've had in my sacroiliac joints and ribs since around the time of diagnosis. Musculoskeletal in nature. The procedure was on a molar and way back in the mouth, so I guess my mouth had to be... -
Hello all Sorry I've been off this forum for a bit recently - I've been under a lot of pressure with a project so have had to take some time out. I just wondered if anyone reading this today has suffered from TMJ and salivary pain? A bit more info I went to see a dentist about a month ago and got a clean bill of dental/oral health, other than...