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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hello Harry I'm sorry I didn't see this sooner - I'm snowed under with other stuff at the moment so not on the board much, but I've asked Scott to let me know if anyone from the UK posts who needs help, so you are that first post (the system is working, @Scott Adams!) I can relate to a lot of your issues and I am so sorry you are going through it...
  2. cristiana
    Hello All There's some really good advice here. Just something to add. I have IBS-D as well as coeliac. I was diagnosed with coeliac disease in 2013. Just before Covid hit, as I was experiencing diarrhea and discomfort again, my consultant did an endoscopy - clear - then specifically tested me for something called Microscopic Colitis during a...
  3. cristiana
    Thanks so much for this, Wheatwacked. This is all very interesting. Interesting about aspirin, too, I had no idea about that statistic. Out of interest, do you ever recall the jaw pain coming on when you ate particular foods - and by that I mean very sweet or sour, rather than hard to chew stuff which would probably hurt anyway! I just feel it's...
  4. cristiana
    Thanks, knitty kitty. I had odd tooth pain last year and I think you said something about the benefits of Niacin then, so I've just started to supplement again. It worked last time, I'm very grateful to you. Something's definitely wrong with the alignment of my bite, for years I've noticed my front teeth are slightly off centre! I also wonder...
  5. cristiana
    I can't take them unfortunately because they make my stomach very sore. That said, I don't find it quite so bad using a topical NSAID like Ibuleve so I suppose I could give that a try. Thanks so much for this suggestion.
  6. cristiana
    Hi Trents That's really helpful, thank you, I think you have a very good point there. It's a kind of burning pain, and it does remind me of the pain I've had in my sacroiliac joints and ribs since around the time of diagnosis. Musculoskeletal in nature. The procedure was on a molar and way back in the mouth, so I guess my mouth had to be...
  7. cristiana
    Hello all Sorry I've been off this forum for a bit recently - I've been under a lot of pressure with a project so have had to take some time out. I just wondered if anyone reading this today has suffered from TMJ and salivary pain? A bit more info I went to see a dentist about a month ago and got a clean bill of dental/oral health, other than...
  8. cristiana
    Hi Rogol72 This might work - but CAUTION, don't buy Floradix (it has gluten in it), buy FLORAVITAL. https://floradix.co.uk/product/floradix-floravital-liquid-iron/ But use with caution: don't supplement iron on a regular basis without monitoring by a doctor - too much iron in the blood can cause very serious health issues. Sorry for...
  9. cristiana
    My experience of the NHS has been very positive with Coeliac Disease, so I'd go for it if I were you - nothing to lose. In fact, one NHS consultant spotted something that a private consultant of mine missed. I'm sure that tightening up on "the may contains" should make a difference. It is amazing how small amounts of gluten can add up over time. On...
  10. cristiana
    Hi Onegiantcrunchie I'd prioritise another full coeliac panel as your blood test should tell you if gluten is getting in. In the UK, since COVID, we've noticed on this board UK residents are reporting there is less emphasis on the need for an endoscopy for a formal diagnosis, so you may be able to finally get one (I think in part because of huge NHS...
  11. cristiana
    Hi Onegiantcrunchie! 1. Eating out. Some coeliacs I know eat out without any issues, but I get glutened almost every time I eat out. From the time that someone prepared a salad for me, and there were visible breadcrumbs in the lettuce (it had been prepared on a breadboard), to an honest mistake by the waiting staff: I ordered scrambled eggs...
  12. cristiana
    Hello Perpetually Confused and welcome to the forum! I am sorry you are having more pain - it's disappointing, but be reassured, quite a few of us on this forum didn't bounce back straight away after going gluten free. There are several reasons you might be feeling worse: Perhaps trace amounts of gluten are sneaking through. Are you sharing...
  13. cristiana
    Hello Daisy I'm afraid this isn't my subject - the only cats I know are our neighbours' cats and so I only see them when they stray into the garden but never feed them, but yours is an interesting post - do let us know how you get on! Cristiana
  14. cristiana
    Hello Bneill Good to have you on board - welcome to the forum. The way I start new topics is I go to forums, then click on the topic area sub-forum I feel my post would best go under - perhaps in the case of your post above, this might be Dermatitis Herpetiformis, and then that takes you through to the Dermatitis Herpetiformis sub-forum where you...
  15. cristiana
    Thank you Tessa, I did wonder if there was some sort of connection as the pain is quite close to the joint. Yesterday I had to walk a couple of miles and that area felt tight, a new type of pain, sharp and a very tiny area was affected, but after the walk I had no more pain after that. I will try to find a way that I can get a physio to look at this.
  16. cristiana
    Hi Sabaarya "Anyone here with marsh 3 a score damage and did you have ups and downs until you get completely healed or it was right away after gluten-free diet. I just want to be ok again, I want my brain and my body relax" Ups and downs sounds just like me for a while. And yes, I was marsh 3 too. On the mental health side of things, one...
  17. cristiana
    Thanks so much, ErinLu, that does sound like the pain I'm suffering. I would very much like this level of investigation but I am not sure how easy it would be to pursue this within the NHS system in the UK. However, I also have pain down the leg too but it's very difficult to pinpoint, it sort of moves around and doesn't appear to be following a particular...
  18. cristiana
    Joanna - my Vitamin B12 was within normal range, but was low-normal, i.e. just within normal range by UK lab standards. I felt a lot better when they were around 500, which I gather in some countries is considered low normal. Do you know what your levels were, and what were the lab's normal parameters?
  19. cristiana
    Hello Joanna24 and welcome to the forum! I am so glad you are already seeing some improvement in your symptoms since coming off gluten. I remember years ago reading on this website that neurological symptoms can be some of the slowest to improve. I wish I could point you to that post, but can't remember where it was. But it did give me hope...
  20. cristiana
    Well, at least we can control this thing through diet. Also, you never know, a treatment or cure might be round the corner. I just feel that at my age I should have lost my sweet tooth by now and get so cross with myself for eating so much chocolate! I've just bought a book on reducing blood sugar through diet, and also the Country Walking Magazine...
  21. cristiana
    Hello icarumba... I've just looked at your profile and I see you've been travelling with us for a few years now. Nice to hear from you again! It isn't always easy following this diet, but well done for your honesty and for resolving to pick up the pieces and start again. I must admit, I've taken great pains to avoid anything with gluten as a main...
  22. cristiana
    Thank you Trents, I wondered about that. Would I be right in thinking lidocaine isn't a NSAID, @philastror?
  23. cristiana
    Thanks so much @philastror, a friend has recently suggested this to me. I think perhaps I can get these on prescription in the UK. It is something I'll bear in mind if the pain gets more severe. At the moment it seems to be a little better, although TV ads for knee pillows, rise and recliner chairs and bath seats have suddenly taken on a new significance...
  24. cristiana
    Cheley, so funny you should mention this but I've booked to see one but have just postponed the visit because it has improved a fair bit over the past few days. It is good to have this recommendation as I wasn't sure if I should be asking for physio instead. Thank you for the tip.
  25. cristiana
    This is such an interesting discussion. Although I truly believe my mental health issues were caused by coeliac disease and deficiencies, I would say that I needed quite a lot of help recovering from those issues after adopting the diet. I'd fallen into very unhelpful behaviour and thought patterns. In the UK waiting lists for a mental health clinic...
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