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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Thanks for drawing our attention to this, Scott. I have no idea about this in the UK, I think I need to do some more homework!
  2. cristiana
    Just to add something here... if any people in the UK are reading this, there can be definite advantages if you are formally diagnosed coeliac, in terms of getting extra support from the NHS. For free you get to see a nutritionist, additional vaccinations if deemed necessary, in some areas prescriptions for gluten free food; bone density scans, annual blood...
  3. cristiana
    The reflux according to the hospital can be the culprit. I think sometimes, too, the medication that they gave me to stop it caused bloating which again added to the pain in the back and chest. I hope you get some answers soon, let us know how the results go.
  4. cristiana
    I've had to be checked out twice by cardiology at what we call in the UK 'Accident and Emergency' with chest pains the conclusion was reflux and costochondritis. Both are very bad when I've been glutened. I've also had very bad bloating in my upper back when taking iron. I'm glad you are being looked after by a cardiologist, though, as best to be safe...
  5. cristiana
    Agreed, @Scott Adams.
  6. cristiana
    Hi @Ginger38 Well done on your challenge... nearly there. I noticed odd shaking in my voice - I recall my voice sounded shaky - it was really weird. Feeling off balance is something that people have posted about a lot to do with gluten exposure. Ditto forgetfulness and struggling to find words. Gluten assaults the system in many, many ways. ...
  7. cristiana
    I think it's a gluten trial?
  8. cristiana
    Hello again @kate g I wonder if you are posting from the UK? We get a lot of people from the UK posting on this forum because I don't think Coeliac UK have their own. (It is an excellent organisation, by the way, and well worth joining for its gluten-free shopping guide/app.) I ask as in my own case, the only NHS tests I was offered for deficiencies...
  9. cristiana
    Hello @kate g I am so sorry your daughter is going through all this. Although she should soon start to feel better, it can take a while for symptoms to improve. Personally, I would say the swallowing could well be anxiety related, I know several people who have had this when anxious. Might be worth looking up 'globus'. Also, could it be that...
  10. cristiana
    Hi @jayjays Reading your post something really struck me: you mention night terrors/hallucinations. I know how scary this can be. Before I go any further, I must tell you that I am not a doctor or qualified to give medical advice, but I would like to share my own experience in case it helps. I suffered with hallucinations for about ten years...
  11. cristiana
    Hi @bluegrass2024 I am so sorry you are having continuing symptoms. Whilst not in the USA, so I cannot comment on the products you list, I wanted you to see this content I posted the other day to someone else on the forum in case it helped. Forgive the re-post but I've not got to go to work shortly. Cristiana *** Eating out This...
  12. cristiana
    Thanks so much, @Eldene, and that sounds an interesting drink to try. Some people also say to try HRT but my family has quite a high incidence of breast cancer so I'd rather try to deal with this naturally.
  13. cristiana
    Hello @Dee4825 and welcome to the forum! I echo @Scott Adams statement about eating out - it really is an important factor to consider. Although most caterers have a better grasp of catering for coeliacs today, mistakes slip in - only this summer I was given a plate of gluten free food, a Ploughmans Lunch, and the baguette was normal bread! Now...
  14. cristiana
    From Shar's UK website, if of interest to UK readers: https://www.schaer.com/en-uk/a/codex-wheat-starch
  15. cristiana
    Thanks, Scott. Interestingly I've seen another post on another forum stating Vitamin C helped someone. I've tried some /c supplements and whether it is just the sudden improvement in the weather here or Vitamin C it really works, but the inflammation has definitely improved. I'll look into turmeric more, and thanks for the advice re: blood thinning and...
  16. cristiana
    Hello all A question from a Mod this time! We have a lot of arthritis in our family, to date this has been diagnosed as osteoarthritis. There may also be rheumatoid arthritis, but as far as I know no-one has been diagnosed with that so far. Anyway, my question is, there are a lot of advertisements in the UK press about the benefits of supplementing...
  17. cristiana
    I felt worse before I felt better... it took a while. Soy containing products hurt my stomach - that took about a year to right itself, and dairy made me feel bloated and very uncomfortable. (Damaged villi can cause temporary lactose intolerance, once they are healed often dairy no longer causes problems.) I also found certain foods containing fibre hurt...
  18. cristiana
    Baz, you could be talking about me. I too used to feel absolutely fine, going about my business, then this very alien feeling would hit me. I remember often it would be just when I was sitting in front of the TV (not watching anything scary!) It sounds like you are experiencing something very similar. As I say, I am not medically qualified, but perhaps...
  19. cristiana
    Hi @Eldene My experience is yes, albeit in my case, I think it was due to low B12 and low iron. In particular I found that when I drank anything with B12 in it at that time, my anxiety left me within a few hours. Are your B12 or iron levels low? That said, it is worth bearing in mind that non-coeliacs get depression and anxiety, so it...
  20. cristiana
    Hi Baz I am not medically qualified, I ought to say that first! But my B12 was considered borderline normal by UK standards at diagnosis and reading around the subject at the time other countries set their limits higher. I read on this site that 500 is a better level, and that is the Japanese normal (but please do check up on this, I am afraid...
  21. cristiana
    Hello @Baz. LIke you I'd never suffered anxiety in the form I had it prior to diagnosis, and in the months after. In my case it was debilitating and so alien to me I didn't know what it was at first. It is not uncommon in coeliacs. In my case I think it was to do with low B12 and low iron. You need to be tested for deficiencies in these, if you haven...
  22. cristiana
    Hi @Niki Svik Welcome to the forum! I am afraid I have not ever visited Malta, hopefully someone else will chime in about that. However, I've read a lot of posts on this forum about Italy and it seems that for the most part, the Italians are very good at catering for coeliacs. In Italy they look after their own coeliac population very well...
  23. cristiana
    So strange you should post this today, @Karen Allott Malkin, as this lack of clarity affected a purchase today. I went into an old fashioned sweet shop on the coast, near where we live. They sell sweets in jars and had put blue stickers on the jars containing gluten free sweets. I asked them to double check the Walkers Nonsuch Chocolate Toffee...
  24. cristiana
    @MzMillz Hello again. As it sounds that you are dealing with an allergy as opposed to Coeliac Disease (although there may be a chance that you have both) I think you might be best to contact the Allergy UK helpline for further advice and support and to find out what sort of help you can get in this country. I have not used their services but they...
  25. cristiana
    Hi @trents. I think I should have also worded it 'less than'. I didn't know this difference existed, thanks for the clarification.
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