cristiana
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cristiana
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Not sure what to think
cristiana replied to AaronM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello there Aaron, and welcome to the forum! Well... it certainly sounds as if you have been experiencing a lot of celiac-type symptoms there but having read and re-read your account I am still not sure if you did what is known as a "gluten trial" before you had the blood tests. I'm from the UK and here it is usually recommended that someone needs to... -
Symptoms get better and then worse and then better
cristiana replied to CaseyH's topic in Food Intolerance & Leaky Gut
Hello Casey and welcome to the forum! Trying to find out whether we have intolerances to various foodstuffs is quite a science. If you aren't already, I would suggest you might like to try keeping a food diary to record what you eat at each meal and as snacks and any symptoms the food triggers and see if a pattern emerges. But re: gluten... -
Thanks for posting those. I guess the difficulty which we face in this sort of situation is that is possible to have negative blood tests and still be a coeliac - either because one hasn't been consuming enough gluten to generate a sufficiently strong reaction, or despite gluten consumption, a small minority of coeliacs have negative blood tests but...
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Hello Lenzipam and welcome to the forum You are right in stating that 6 weeks seems to be the minimum recommended time period for the trial. Here in the UK it's usually recommended that one consumes at least two slices of glutenous bread per day through that period. Out of interest, were you totally gluten free before the trial? Also,...
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I'm not sure if the original poster has seen this. But with regard to B12 injections, I wasn't offered any by the doctor that diagnosed coeliac disease but my nutritionalist who saw my blood tests said she was surprised that I hadn't been offered them as my levels were only borderline normal. This is a useful thread from the National Health Service...
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Brookside Dark Chocolates
cristiana replied to Trish01's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Trish I am in the UK and see these are for sale here, also marked gluten free (they look good!) I have never tried them but I just wanted to say to you that occasionally certain products are recalled because gluten sneaks in somehow. It can be worth contacting the manufacturer with the batch number and point out that you are having issues and... -
I'd really like to try this. I shall look out for it. However, I wonder if it would taste like or even "act" like Lyles as the only ingredient in Lyles is partially inverted refiners syrup which is made from either cane or beet sugar, and there is nothing else in it. I guess the message for flapjack purists would be to track down Lyles first, make...
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Coeliac blood test
cristiana replied to Sue Brown's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are more than welcome, do feel free to come back to us if you need any further support. ☺️ Glad you had a better night's sleep. -
Coeliac blood test
cristiana replied to Sue Brown's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Sue If you possibly can, I would agree with Scott and would encourage you to try to hang in there and consume gluten until the test. I think a couple of slices of normal bread a day or similar would normally be recommended, but as much as you can possibly can tolerate. There are benefits from having a formal coeliac diagnosis in the UK - you... -
This is very interesting. I didn't know oats and soya could aggravate DH.
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Yes... I googled an exact US alternative to golden syrup and several sites says there isn't one! However, I gather you can buy it in certain stores in the US. The brand you need for an authentic British flapjack is Lyles Golden Syrup. Sorry... going slightly off piste with this Oats thread!
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I reckon you are right there. One thing I ought to add is sometimes I think pain can be to do with the inablility to tolerate a certain sort of fibre content in the short term, while the gut is healing. I had the very same sore stomach when I ate lentils after diagnosis, so I had to give them up. I reintroduced them a few months after going...
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RMJ - thank you so much. I find the whole oat question so interesting. Strange thing is I had absolutely no pain eating oats until I adopted a gluten free diet, and ate them all day long those days .
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😊 RMJ - I wish I had your brain! Can you tell me, this T cell response etc, are they saying there was actual villous blunting as a result of consuming oats? It's late here in the UK and I'm reading this and finding all of this a bit complicated.
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Dave, this is something I would like to know as I've never been able to find this out. All I can say is about three months ago I found I could eat oats (pure, certified gluten free) again seemingly without pain and probably rather overdid it. Then, a month later, the burning stomach and neuro symptoms (muscle twitching) started up. There could of course...
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No problem at all. And thanks for sending that link - yes, it's funny you should send that as I vaguely recall a few threads on this website which mentioned tTg tests being affected by other autoimmune conditions. But as you think it is unlikely it is caused by these, it does sound as if coeliac may well be responsible. I hope the testing goes...
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Hi Hulia I think in your shoes - this is just my personal opinion and I should say I don't know anything about the reliability of home testing - I'd be inclined to get a blood test from a GP, as you will get to know how abnormal your test was. This can then be used as a benchmark to show how well you are recovering when you adopt a gluten free diet...
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Hi Hulia Do send that link, as trents says, it's fine for that kind of thing. But out of interest, where did you get tested for coeliac disease? Was it a test you sent off for or at your doctors' surgery? Cristiana
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Many, many thanks for keeping us updated. I'm a so glad a that a few important things have been ruled out already but my heart goes out to you both at this really challenging time. I hope that the treatment brings relief. Just one very important thing - crazy as it sounds, make sure the endoscopy will include checking for coeliac disease as I...
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https://www.nigella.com/recipes/guests/regula-ysewijns-flapjacks This looks like a good recipe. I'd advise to stick to oats - don't use spelt - and also forget about the chocolate chips. Your first flapjack should be unadulterated. If you slightly undercook them or add a bit more syrup (I think in the States it's called light treacle?...
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Hi Hulia Welcome to the forum! Can you post your results for us. There are different tests taken, it would be good to know which you had. Cristiana
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I think of porridge as oats cooked with water and salt (if one is Scottish) or milk and sugar (if one isn't!) At least, that is what we call it in this house. The thing that I do wonder about is what you Americans call flapjacks. Flapjacks in the UK are oats added to melted butter, brown sugar andgolden syrup etc to make a sort of oatey biscuit. Absolutely...
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I am so sorry she is having such a rough time. I really hope you will both get the answers you need very soon.
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Just read Wheatwacked's post. If you want your GP to check for this ask for a CA125 blood test, and even if the levels return as normal and your wife continues to feel bloated usually GPs are pretty good at referring patients for a a transvaginal ultrasound to rule out anything to do with the ovaries. You can always ask for this for peace of mind...
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Hi Layla Easy to say (because I panic about every new symptom), but try not to panic.😊 I get a tickle deep in my throat when I've been doing a lot of dusting. Is that the symptom you have? Or something else? Sneezing? Itchy eyes? It would be normal to react to the dust if you haven't done a bit of deep cleaning in a while. And I don't know ho...
