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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi trents Great question... You can buy gluten free food/ingredients without a prescription. Unfortunately often the prices are substantially greater than gluten containing equivalents. For example, my favourite brand of gluten-free bread is made by Genius and you are looking at £2.50 for a sliced white gluten-free loaf. Compare that with ...
  2. cristiana
    Hi Richard I think that because you have been on omeprazole for a while it would be a really good idea to rule out coeliac disease. Here in the UK I have a couple of friends with gastric issues and coeliac wasn't even looked into initially - it took some time before they were offered endoscopies. I know of one person who I believe just had their stomach...
  3. cristiana
    Hello Welshexport and welcome to the forum! Just one question first, are you a diagnosed coeliac? Cristiana
  4. cristiana
    That's a really interesting point - in fact, perhaps that's why when I supress tears, my nose gets blocked!
  5. cristiana
    Hi Carolynh I find my gastritis and reflux are tied to each other - sometimes I'm first aware of the reflux symptoms, other times I'm first aware of gastritis pain, then the irritated throat etc follows. But I tend to now treat them the same, and I try to get in quickly with the cure that works for me, which took a while to figure out. This includes...
  6. cristiana
    Hi Caorlynh I do sympathise, I have had lots of issues with gastritis and reflux in recent years. I found the reflux diet also led me to lose weight, having put a lot back on after being diagnosed a coeliac. A few things that help me are drinking camomile tea or warm water; not eating for three hours before I go to bed, taking some gaviscon before...
  7. cristiana
    Hi Lama It has been a while, but I hope you might hear from Emma, or perhaps someone else with a similar problem. If not, it may be worth starting up a new thread. I hope someone can be of help. Cristiana
  8. cristiana
    Hi Mark, Just chiming in again... I forgot to say that since my diagnosis, so not sure if it is related to coeliac or not, I occasionally get an itching sensation deep in my throat, sometimes it feels as if it is in my chest. It also triggers mild wheezing. When it first started, a few months before Covid broke out in the autumn of 2019, I got...
  9. cristiana
    Hi again Mark Nice to have another British person on board! Although I am sorry you are having these issues, obviously! Certainly, it is much easier to be a coeliac today, even compared with ten years ago, as there are some fabulous gluten-free products these days. Coeliac disease doesn't always show in blood tests, so if your doctor still...
  10. cristiana
    And a PS, I ought to have said, Mark - a lot of symptoms that coeliacs experience are due to vitamin and mineral deficiencies caused by years of malabsorption. You may find that this is at the route of some of your problems. Have you been tested for ferritin, B12 and vitamin D deficiencies? These tend to be the tests offered under the NHS.
  11. cristiana
    Hello Mark and welcome to the forum Firstly, from your spelling of coeliac, do I take it you are messaging us from the UK? If so, I should say I am a British moderator on this forum and so am familiar with the pathway to diagnosis here in the UK. Did your GP say to you that you must be eating gluten before any blood tests are taken? This will...
  12. cristiana
    That's a great tip about the tumeric. I had no idea. I ate some crisps with it today - not the healthiest way to consume it, though, methinks! Alan, have you had your B12 and ferritin levels checked? Low levels (or even low normal levels) give me brain fog. When this happens I buy some excellent B12 sublingual supplements from Holland...
  13. cristiana
    Wise words from Scott there. I'd also say do join Coeliac UK, if you are writing from the UK, if you haven't already. I'm pretty sure they support people with Non Celiac Gluten Intolerance, too. My local group actually organises meals out at safe venues. I have actually never gone myself yet but that's due to poor organisation on my part, more...
  14. cristiana
    Yes, me too. The dizziness is something that still comes back when I get gluten in my system.
  15. cristiana
    I used to have diarrhea with flushes, chills etc, and a sore stomach for days or weeks afterwards, but now it's changed to vomiting I just can't risk eating out any more. The shallow breathing and the feeling I might faint... that's also something that is fairly new. I'm just hoping that that's where it stays because I'm not sure that I could cope with...
  16. cristiana
    My symptoms exactly - I could have written this myself.
  17. cristiana
    Hi Dena, Yes! It has happened to me so many times I've pretty much just given up eating out altogether, with the notable exception of one pub that has never let me down. I have so many stories. For example, we once went to a restaurant which prided itself on catering gluten-free. I ordered salmon and scrambled eggs (what could possibly go...
  18. cristiana
    I think in your shoes I would take this back to the doctor. I had a friend with similar pain and she was offered an ultrasound scan. Unhelpfully I cannot recall what the diagnosis was. Have you ever had any issues with your kidneys? Or diverticulitis?
  19. cristiana
    OK - well, it's good that your bloodwork is normal. Is the pain in your left side constant, or do you notice relief when you go to the loo, etc? (Sorry, you will get used to personal questions on this website!) C
  20. cristiana
    Hello Fooze Welcome to the forum, but I am sorry you are feeling unwell. The symptoms for coeliac disease/non-coeliac gluten intolerance are very varied, and I am sure that most those of us who suffer from one or other of the conditions would be able to identify with more than one of your symptoms. If you are reacting to gluten it can take a while...
  21. cristiana
    You are very welcome, S2. In my own experience tiny amounts of gluten don't always cause symptoms, but over time - Wham! - I'll know about it and I can end up with gastritis-type pain and an upset stomach for a few days or even a week or two. I used to love Ready Brek but there is no way I'd want to chance it now. If it is the consistency of the...
  22. cristiana
    Hi Stephen2 I don't know where you live but I live in the UK and I've just checked the manufacturers website (Weetabix) and they say all of their products contain gluten. https://weetabix.co.uk/faqs/#:~:text=All our products contain gluten from either wheat%2C barley or oats. As I understand it, although oats don't contain gluten themselves...
  23. cristiana
    Hello QLisa The problem with my tTg numbers at diagnosis is we had no idea how high they were - just that they were over 100, because that is the NHS lab cut off point here in my part of England. I've seen people on this forum who've managed to find out their actual tTg levels and they have been well in excess of 100 - perhaps mine were stratospheric...
  24. cristiana
    Hi Russ Thanks for the update. So glad you have some good news to share. Less about bad British food please though - my cooking is excellent! 😉 Hahah! All the very best.
  25. cristiana
    Hi Notorious and welcome to the forum, It does indeed sound as if you have good grounds to suspect coeliac disease. Noting your spelling of "coeliac", I suspect you may be in the UK? The reason I ask is I am British, and there are some real advantages to having a coeliac diagnosis in this country from the NHS perspective. If it is properly diagnosed...
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