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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Yes, I've often wondered what the different phrases mean. One other variation we get in the UK is "free from gluten containing ingredients."
  2. cristiana
    Hi Wendy This is an interesting subject. When in doubt, it is always wise to contact the manufacturer. In more recent times I have started to suffer from what my doctor thinks is eczema, but I'm beginning to think that it gets a lot worse after consuming certain foods. I stay off gluten religiously, but it seems to be when I eat too many manufactured...
  3. cristiana
    I seem to recall having had a similar thing happen to me - I am sure I read in my letter following endoscopy that everything looked normal but was told in the same letter the results from the samples would not be known for a while. I had very high tTG so coeliac was suspected, and of course when the samples came back they showed I had coeliac disease....
  4. cristiana
    Hi Smitty I have a feeling in the UK Coeliac UK has an app which alllows you to scan a bar code and it will tell you whether the product contains gluten - or something along those lines. You may wish to have a look at Coeliac UK's website. Cristiana
  5. cristiana
    Hi Marina I've had some very odd neck issues and when I had an MRI once, even to my non-medically trained eyes, I could see my neck was in a right mess! Vertebrae all over the place. My consultant seemed to think that was whiplash related - perhaps so. But now you mention it, long before the whiplash injuries (I've been rear shunted by vehicles twice...
  6. cristiana
    I agree, Trents. And it isn't for want of publicity. One of my relatives is a doctor and he has had lots of information about it sent to him, I guess the problem is doctors have so much else to read and to do. However, I think once a doctor has seen such a case first hand it can make a difference. My own GP never thought of coeliac disease when I...
  7. cristiana
    Hi Marina Oddly enough, I had a similar situation in that my GI issues didn't start for a while after my neurological issues manifested, which were migraines, tingling extremities, numb arms on waking and seeing odd things on waking. I got diarrhea eventually though and that's what led to the tests which led to my diagnosis. It is frustrating as my...
  8. cristiana
    Thanks so much for sending this link, Russ, that's very helpful.
  9. cristiana
    Hello Russ Welcome to the forum. It certainly sounds as if coeliac disease is a real possibility. Over time I've had all but no. 8 of the symptoms you mention. When you say you have not been offered a helpful diagnosis, have you been offered any tests whatsoever? Cristiana
  10. cristiana
    Hi Marina You may wish to check with your doctor but when I was officially diagnosed coeliac in the UK back in 2013 I was told that an official diagnosis would allow me access to a nutritionalist on the NHS as well as regular check-ups (incl. an annual blood test) to check my coeliac numbers, liver function etc, again on the NHS. I don't think I would...
  11. cristiana
    I had to give up milk for a while when I was first diagnosed. I am now able to tolerate it in moderate amounts. While I was healing I was told to try lactose free which of course is cows milk but it didn't help. I couldn't find anything with a similar taste but I tried various replacements and found that I liked almond milk the best, particularly with...
  12. cristiana
    Hi Josh I think quite few of us can relate to that happening - it's SO frustrating being told something, only for the doctor/consultant to be called off somewhere and one is left with a head full of unanswered questions! Trents is absolutely right - not everyone has positive blood tests. I am glad you have a follow-up in ten days' time....
  13. cristiana
    Hi NLR That's really interesting, that sounds so much like the pain I get. And my coeliac friend, similar age, told me she has been having that random sensitivity too. For me, it isn't really that "Ouch, I've eating something cold" like they show in the Sensodyne ads here in the UK. It's a pain that sometimes can be triggered caused by biting onto...
  14. cristiana
    Thanks knitty kitty. I had to go back to see the dentist and it seems it's TMD/TMJ - depending on your nationality. Very odd as I could have absolutely sworn it was my teeth. It felt like appalling dental pain but the weird thing is it was moving around my mouth. He says I have got sensitive teeth already but the jaw issue is just adding to it. ...
  15. cristiana
    Hello everyone I wonder if anyone has had experience of bouts of tooth or gum pain which they think may be related to coeliac disease? I have heard coeliac disease can impact upon our dental health but I'm wondering if actually it is a nerve problem that I have rather than dental. I do have mild neuralgia on the right side of my face which is...
  16. cristiana
    Yes... that 44% rings a bell. But whatever - it definitely worth getting tested. My poor mother had a bad time with her health in later years and she never got tested.
  17. cristiana
    Hi GFinDC That is a very good point. Not meaning to hijack this thread, but do you know what the latest is on chances that a first degree relative has it? When I was diagnosed back in 2013, I was told 1 in 10, but I'm not sure if that still stands? Cristiana
  18. cristiana
    Hi Renee Welcome to the forum! Unfortunately this isn't all that uncommon. There is a lot of ignorance surrounding this condition. I have people in my own circle that have said, in the past, some ridiculously insensitive or ignorant things. However, I've noticed over time they have stopped - partly because I've tried explaining things very sensitively...
  19. cristiana
    Hi there, I agree with everything trents has posted. One other thing - do you if his haemaglobin levels are high? I suffered from phlebitis in my left leg in my teens, most unusual for a teenager apparently, and I was told I had sticky blood. Since then I've had blood tests that reveal just beyond high normal readings for haemaglobin, which most...
  20. cristiana
    Hello glutendasher I'm not very scientific or good at explaining things but does this link help? https://nationalceliac.org/celiac-disease-questions/i-just-had-a-blood-test-and-my-igg-is-6-it-says-weak-positive-what-does-that-mean-to-me/#:~:text=A person with celiac disease,reason is typically gluten exposure. From my own experience, I can...
  21. cristiana
    Don't exceed the dose recommended on the packet, but I understand it is best to introduce it gently so your system gets used to it (and you might not need to take the maximum dose to get the required effect) I generally only take a half dose before it kicks in, and stick at a half dose, but we're all different. I'm not a doctor BTW so this isn't medical...
  22. cristiana
    Hi there, I remember that Coeliac UK used to list gluten free sweets in their printed Food and Drink Guide but unless I'm missing something, those listings no longer appear, although they do list supermarket own products. Of course they may be trying to discourage us coeliacs from eating sweets for dental health/waistline reasons (!) but I have...
  23. cristiana
    Hope, I'm no expert on magnesium but I always make sure I have some in the house. If I get a bit constipated I find just one-two tablets gets things back to normal again, but it's important to drink plenty of water. The other thing is for many years I've suffered from occasional spates of twitches under my eyes, which I find very distracting, and sometimes...
  24. cristiana
    Hi Sophie I'm so glad you've had good such good experiences in the UK of eating out. That is really encouraging to know. Things are certainly improving in the UK, particularly since the very sad case you mentioned - I remember it being in all the papers. I was diagnosed in 2013 and since then I have been glutened three or four times in restaurants...
  25. cristiana
    Here in the UK we are witnessing what we hope will be signs of herd immunity beginning to take effect, thanks to the vaccination programme which has now reached nearly 50 per cent of the population. Of course, figures are improving too because we've been in a lockdown since January. The concern is new variants could undo some of the good work. But I'm so...
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