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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Moni Firstly, welcome to the forum, but I'm so sorry you are going through the mill at the moment. Severe anxiety was definitely one of the symptoms I experienced and this isn't uncommon. It was absolutely awful - I really do sympathise. But I can tell you that it was temporary and gradually subsided. There may be some things you can...
  2. cristiana
    Hello Hope I agree with all the above. But also see if you can have your vitamin D, vitamin B12 and also iron levels checked. Deficiencies in these can cause fatigue. Cristiana
  3. cristiana
    Hi Alfrieda I too like I was taking one step forward, two back, early on in my gluten-free diet. It really does take time. Try supplementing magnesium in your diet, or taking warm (not hot) baths for about 20 minutes with a fistful of Epsom salts thrown in for muscle and joint pain. Take care not to fall asleep in the bath though, it's very relaxing...
  4. cristiana
    HI Leslee It takes a while to recover - although some things appear to improve in days, other things take much longer. It also takes time to figure out that there may be other foods that are slowing down recovery - such as dairy and oats. Add to this the confusion that sometimes we may have another condition that is causing symptoms that we mistake...
  5. cristiana
    Hi Lucy Just a thought... are you still consuming dairy? I find I have the same issues if I overdo the dairy products such as milk and yoghurt. I'm not saying to you exclude dairy - I have a family history of osteoporosis so I have tried to keep it in my diet (although at the moment I'm supposed to be cutting it out for other reasons, but that's a...
  6. cristiana
    I was raised on Weetabix -loved it- and my parents took a cine film of me eating it when I was a toddler! I haven't had it since my gluten challenge - but I do miss it!
  7. cristiana
    Thanks for sharing, never heard of them. This could be fantastic if I'm ever in a position where someone offers me a plate of food that they say is gluten free, but it turns out not to be - I'd rather find out this way, than getting ill! It's happened all too many times before!
  8. cristiana
    Martin... good detective work! I have read of this issue somewhere else. It would never have occurred to me. I'm so sorry you have to move - I hope the hotel you mentioned in an earlier email isn't too pricey! I would really like to try getting hold of the gluten kits you mentioned, I've never thought to look if they were available in the UK...
  9. cristiana
    Hi Hev I feel dizzy when I'm glutened. Over Christmas I was handed a piece of cake which was meant to be gluten free and it was made using wheat flour. Within a couple of hours I couldn't stand up with the dizziness - I'd describe it as something akin to motion sickness. In your case, it could be gluten or perhaps just be something like an...
  10. cristiana
    Hiya Flower, I have a flare every few months. What I will say is that in the past I waited quite a long time before taking any medication for it. Now I will give it a few days and if things don't improve will take just a few days' PPI. For me - and everyone is different - it seems to help if I act fast and "nip it in the bud". I know a lot of people...
  11. cristiana
    You are more than welcome, Hev. Yes... dairy might also be a factor, although hopefully a temporary one. Once your gut is healed (if you are a coeliac) things will most likely improve on the dairy front. Take care. C
  12. cristiana
    Hi Hev and welcome to the forum! If you haven't had any gluten/much gluten for a while, and you do have undiagnosed coeliac disease or non-coeliac gluten intolerance, your gut might well be protesting about it! As regards Bran Flakes, I had a particularly hard time with fibre around the time of my diagnosis when my coeliac was at its worse and...
  13. cristiana
    Hello and welcome to the forum, Flower! I am sorry that you are still encountering symptoms. They can take a while to settle. It is difficult to tell what's going on if you have gastritis as well, as your symptoms could well be attributed to both conditions. I have gastritis too sometimes - I get a burning sore stomach though, not nausea. A few...
  14. cristiana
    Hi Martin I have to say I find labelling a real minefield. As far as I am aware you are quite right - all food products have to state in bold if they contain gluten. That said, over the past few years I have eaten foods containing no such warning and I have had symptoms. Then I google various forums and find out others have had similar issues. Is...
  15. cristiana
    Hi Martin If you are based in the UK - not sure? - you may see the letters PL (Product Licence) followed by a number on the packaging of prescribed and over the counter and prescription medication. I was told by a pharmacist that if these letter appear on a medication it is gluten free. See link below for more info. I've had to supplement from...
  16. cristiana
    You are very welcome. I wish I lived in Scotland - love it, Perthshire esp!
  17. cristiana
    Hi Leslee Welcome to the Forum! It sounds as if you may well be onto something linking your symptoms to gluten. In Britain (I'm a British member of this forum!) a staggering number of coeliacs are misdiagnosed with IBS every year, and there is a real push from the Coeliac UK charity to address this problem. When it comes to getting a...
  18. cristiana
    Hi Ellawalls I'm chiming in here as I am based in the UK and like you was referred to a consultant once my blood tests came through as positive. In my own case my consultant was very keen to do an endoscopy as he said it was considered to be the "Gold Standard" means of diagnosing coeliac disease. I imagine this is because they can actually take...
  19. cristiana
    Hi Scotland007 - brilliant name, puts me in mind of Sean Connery! You may have already found the Coeliac UK website but if not it's worth a look. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/ My friend found herself in your situation. Her GP gave her the full coeliac panel as...
  20. cristiana
    Welcome to the forum Froggygirl. Have you been told the actual levels of your M Proteins? How do they compare with normal lab readings - these are usually given too, with blood results? I have not had exactly the same problem but I have had many strange blood tests in recent years and I have tried to interpret them using google, but find in the...
  21. cristiana
    Hi Chris It think this varies from individual to individual ... I was diagnosed at around the same time as a couple of friends and one of them found their levels went down very fast. Mine have taken a lot longer to settle. They still aren't as low as I'd like them to be (currently 18ttg) and I've been on the diet for a very long time, but I share the...
  22. cristiana
    Thanks so much knitty kitty, this is really helpful. I'm going to really try to get my D levels better before my blood test, as well as cutting dairy. I don't eat the other stuff but I was thinking about taking a seaweed supplement I read about so I'll give that a miss after all! I've just remembered, too, that I took some antibiotics just before this...
  23. cristiana
    Hi Knitty Kitty No... there's not much sun in England at the moment! But I do find changes in temperature really aggravates things, as does exercising outdoors. It's worse under a hot shower. I also notice that my skin really itches when I lie down but it's the places that are actually in contact with the bed or pillow, when my skin warms up....
  24. cristiana
    Yes... I'm beginning to wonder if that's an issue for me. I can't find it now but a story was posted on this site recently about a very sick child whose numbers were stubbornly high until they actually gave up dairy. When I read that I did wonder if dairy had been contributing factor as to why my numbers have taken sooo long to drop. This study is...
  25. cristiana
    I wanted to update this as my problems with itchy skin has progressed. 😓 I treated the itchy scalp problem pretty successfully with coal tar shampoo, and a product called Skin Salvation made with natural products that you can buy here in the UK. Things improved. A few weeks later what looked like a kind of nettle rash on my shoulders. Itchy bu...
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