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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Kate. I too seem to be getting seasonal allergies . I struggle with gastric issues. My TTG levels have only once been as low as I would like them to be since I was diagnosed in 2013, despite being careful. I also have low iron. I refer to myself as a "creaking gate". But that said, my sister, very close in age to me and in comparatively...
  2. cristiana
    Hi Kate I meant to include this link in my earlier post: https://www.coeliac.org.uk/information-and-support/coronavirus-information-hub/vaccinations/ Coeliac UK is Britain's leading gluten free charity and they have some very helpful information on Coeliac Disease and Covid on their website. I hope this might reassure you. C.
  3. cristiana
    Hi Kate As I understand it, for the most part Coeliacs in the UK are categorised as a more at risk group so are in Group 6. This is to do with spleen issues, a matter that has been covered in other threads. So I was really thrilled to be invited. However, I felt ghastly the week before my jab. I actually thought of postponing it - I was suffering...
  4. cristiana
    Hi Madmom It can be scary. I completely relate. And sometimes I still feel alarmed by some of my pains, and I was diagnosed back in 2013! If I had a pound (dollar) for every time I had a weird twinge I reckon I'd have quite a bit of money by now. Since being diagnosed with coeliac disease I've had some very strange twinges but they have come...
  5. cristiana
    Thanks, Posterboy - it is so kind of you to take the time to share all this. It is so true what you say about supplementation. I saw a fantastic dietitian after my diagnosis and she was a real advocate, but my doctors only told me to try iron supplementation, and that ended when my haemoglobin went too high.
  6. cristiana
    Hello Posterboy Thank you so much for taking the time to write all this down for me, and to share the links. Not being scientific I have to admit I need to look at them in greater depth, and probably with a medical dictionary, but I am very grateful! I've managed to get my B12 levels tested but I don't think my other B's have been tested, apart...
  7. cristiana
    It is good for about 24 hours after the coal tar shampoo. I read on a psoriasis site it was good to wash hair in the evening and I think that works best for me. Yesterday the itching started up again as I went 48 hours without a hair wash, so I would say that the coal tar wash is really helping. I'm also quite surprised at well it suits my hair type. ...
  8. cristiana
    That's fascinating, I think I've heard of Tallow and will see if I can find it here, too. I think in the olden days they used to make candles out of it?!I've never been screened for B2 deficiency - I think I might ask for it. Poor you - the rash sounds awful, I'm so glad that you have found such a helpful treatment.
  9. cristiana
    Hi Icey - I've just passed yet another Thyroid panel (I seem to have so many symptoms, but it's always normal - weird) so I think it must be something else with me. Do you find yours is worse in the winter? Although my skin is dry it is just really very pink, or red when I itch it a lot.
  10. cristiana
    Thanks Kate, so much of what you write is true of me. Definitely a nervous habit, and where we live it's hard water. The hand sanitizer bit is also true as although I don't pour it on my neck, I think having it on my hands when I do scratch has caused issues. I am a bit on edge at the moment with everything that is going on. Getting counselling will be...
  11. cristiana
    Hi Jane... so interesting.... So, out of interest, apart from being super gluten free are there any topical creams that would help?
  12. cristiana
    Icey... you too?! We really must be twins! One pharmacist seemed to think it was psoriasis and told me it was a typical site for it to occur. She told me to try Neutrogena T Gel Coal Tar and actually it seems to be working now but it has taken a week of using it every other day. I read somewhere it is good to wash your hair in the evening and I think...
  13. cristiana
    Thanks for posting this Posterboy. Do you mind me asking, do you have to have blood taken? Personally I don't have excess iron (in fact it is currently at 8 ) but I do seem to have high hemoglobin but at the moment it is just over high normal. My doctor says I shouldn't feel tired with low iron levels if my hemoglobin is "very good" - as he it puts...
  14. cristiana
    JaneWhoLovesRain - great name! (Do you really love rain? I do, most of the time, but here in England we could do with a bit more sun at the moment!) Thank you so much for taking the time to send this in. Until I started this thread, I assumed that people with DH always had it, and it was the rash that finally led to their diagnosis. And as I had...
  15. cristiana
    This is so interesting. "At long last, we finally knew why her numbers had dipped briefly in the aftermath of her diagnosis before climbing back up again—it was because we'd reintroduced her to dairy. Either because of the destruction in her gut from the gluten, or because it was something else she'd been born with, this intolerance to dairy had b...
  16. cristiana
    Hello friends I was DX'd with celiac disease back in 2013 and have been following a gluten-free diet as religiously as I can since then, with a few mistakes along the way. I was v. badly glutened before Christmas and I now have a very itchy rash come up, just on the nape of my neck and just under the hairline. I think it's dermatitis and to do with...
  17. cristiana
    Hi CMCM It's a pattern and yes, my stomach area starts to feel really sore/burn about 2-3 weeks after, although it can be sooner. Thankfully a few days on omeprazole seems to sort it. Very odd.
  18. cristiana
    Hi Scott Thanks so much for sending these really helpful tips. My husband reminded me that I got gastritis type pain about 2-3 weeks after my last major glutening and it's happening again, so very timely. Happy New Year to you too! Cristiana
  19. cristiana
    Hi Kate! Thanks so much for asking about us here in Britain. 😊The scientists announced this evening that they consider 1 in 50 people now have the virus, and of course we have a new mutation that is really driving the numbers through the roof. Sadly for a very long time a sizable minority have been flaunting the rules left right and centre and that ha...
  20. cristiana
    On the gluten front, I have a feeling of being at sea when I am glutened which lasts a good couple of weeks or so after the event. It makes me feel mildly sea-sick, or like when you have been travelling too long in a car, kind of car-sick, and is related to eye movement often. It usually catches me unawares. Sometimes it is mildly nauseating but other...
  21. cristiana
    Happy New Year Friends! A quick question - I was very badly glutened with a slice of cake containing normal flour just before Christmas, served up to be my mistake. My symptoms were really severe this time albeit shortlived. In the early days post-DX a glutening would make me feel sick, with chills, then D, and then I would slowly recover with a...
  22. cristiana
    Do you eat oats (even the "pure" ones, which haven't been contaminated with gluten)? Quite a few celiacs react to the protein avenin - and I'm one of them. If I eat them I'll end up with gastritis-like symptoms and an upset stomach for two to three weeks.
  23. cristiana
    Hello there! I'm just wondering (sorry if I have missed something in your post) if you have been drinking any alcohol? I get gastritis-like symptoms (burning stomach just under sternum, left side of ribs) when gluten sneaks into my diet. I had terrible burning there for months a while back and realised after some time my iron supplement contained gluten...
  24. cristiana
    Perhaps we could try to keep this thread updated as I'm hoping if there are any other similarly affected celiacs they will get in touch and who knows, someone might look into it in more depth. I'm going to ask my gastroenterolgist when I see him for my review if he's ever seen any other cases. Thanks, Scott, and a very Happy Christmas to you, too!
  25. cristiana
    Hi Scott Thank you for posting this. It is strange that you mention supplements as I have been wondering about those myself. I take B12 - just before I was diagnosed my levels were appalling and the difference that supplementing made on nerve issues and anxiety was extraordinary - night and day, totally transformational, so I have continued...
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